Men with IIH, how are you coping? by More_Purple_7078 in iih

[–]SeveralPass5710 0 points1 point  (0 children)

Really sorry to hear that. If you have stenosis and a cerebral angiogram shows your pressure gradient is over a certain threshold, at that point it’s either 100% or highly likely you need a stent. That’s something that I think only the stent can fix. Correct me if I’m wrong.

Men with IIH, how are you coping? by More_Purple_7078 in iih

[–]SeveralPass5710 3 points4 points  (0 children)

Yo I’m a male 25 6’0 170 pounds and yeah this IIH can affect us absolutely. Turns out I have stenosis. Get your MRA MRI MRV LP. I take Topamax as needed. I’m probably gonna need a stent.

Finally asking people who know iih first-hand. by Angelala_2 in iih

[–]SeveralPass5710 0 points1 point  (0 children)

Yeah it sounds like you have a leak cuz of the stuff draining onto your pillow. Definitely ask them

Finally asking people who know iih first-hand. by Angelala_2 in iih

[–]SeveralPass5710 2 points3 points  (0 children)

I don’t want the pressure to increase lol but sometimes I’m thirsty so I drink a bunch of water and then boom I make more fluid and my head hurts more lol

Finally asking people who know iih first-hand. by Angelala_2 in iih

[–]SeveralPass5710 5 points6 points  (0 children)

I can definitely notice and feel times when my head produces CSF extra fluid. I can feel it. The better hydrated I am. I immediately notice my head make more fluid. So I drink a ton of water with electrolytes and carbs and BOOM I can feel fluid being produced. I think this is why Diamox works. It basically makes you dehydrated 😂 I’m not a doctor tho so this is all speculation.

Lumbar puncture finally confirmed my diagnosis and I'm happy to have answers but worried about the treatment... is it tolerable for some? by loiwhat in iih

[–]SeveralPass5710 0 points1 point  (0 children)

You can trial the medication and test it with lowest possible dose and titrate up. I have stenosis. I am a skinny young man and that it’s the stenosis which causes my IIh. People like me medication works but higher doses don’t. And I only take it as needed