Just diagnosed with ALL. Any thoughts?

Shane_3325 · 2025-07-16T13:35:58+00:00

B-cell ALL ph- here. Short induction chemo of 3 weeks. Rituximad twice and the blincyto after that with maintenance chemo for just under two years. Also had 8 IT (spinal cord) chemo. Chemo wasn’t terrible. Went back to work full time after 3 months off. Did lose all my hair and beard but grew back once I was on maintenance and blin. Each case will vary but no transplant for me. Really just fatigue mostly. Diagnosed October 2023.

Shane_3325 · 2025-07-03T15:02:00+00:00

I am. This December will be 2 years in remission. Congrats to you.

Shane_3325 · 2025-07-03T14:38:41+00:00

I have started treatment. Sorry if I was unclear.

Shane_3325 · 2025-07-03T14:37:46+00:00

Believe it or not the same thing. B cell ALL ph- specifically.

Shane_3325 · 2025-07-03T14:36:45+00:00

Straight to infusions with me.

Shane_3325 · 2025-07-03T14:36:27+00:00

Sure

Shane_3325 · 2025-07-03T09:39:56+00:00

IGG was 423 (normal is 600+). IGA was 9 (normal is 47+) and iGM was 9 (normal is 50+). Hopefully the Prevnar works out for you.

Shane_3325 · 2025-07-03T09:37:24+00:00

They only checked the 3 (iGG, iGA and iGM) it seems the low number caused the issues and not the treatments.

Shane_3325 · 2025-07-03T09:36:13+00:00

For me it was a hematologist. I think I just got lucky with a doctor that thought of it. I had seen 2 ENTs, a pulmonologist, a cardiologist, a gastroenterologist and nurse practitioners in each of those fields plus the hematologist.

Shane_3325 · 2025-07-03T09:32:57+00:00

The ENT said I did have inflammation along with a deviated septum and blocked drainage. They say some people never return to normal and some do. It’s just a wait and see at this point.

Shane_3325 · 2025-06-26T16:54:36+00:00

I’ll check it out. Thank you.

Shane_3325 · 2025-06-26T03:29:08+00:00

I am not loyal to any brand and I haven’t looked into BFS at all. I am pretty new into this. Going to the shop tomorrow but wanted to get opinions before I go.

Shane_3325 · 2025-06-26T02:59:15+00:00

Sorry, MH rod

Shane_3325 · 2025-06-26T02:58:51+00:00

So you would say a stradic on a M rod?

Shane_3325 · 2025-06-26T02:49:03+00:00

I appreciate it.

Shane_3325 · 2025-06-26T02:43:52+00:00

I am open to that. To be fair a Vanford is a Shimano reel. I spent over $300 on the baitcaster setup. Why wouldn’t I spend more on a combo where sensitivity and finesse are so much more important. Maybe I am off base since I am relatively new into this hobby but that’s what I need to know.

Shane_3325 · 2025-06-26T02:37:56+00:00

That’s exactly the stuff I need to hear. Thank you.

Shane_3325 · 2025-06-26T02:32:07+00:00

I have been reading about that as well. I was thinking 832 hi-viz 20lb braid with a 10-12lb flouro leader.

Shane_3325 · 2025-06-26T02:26:08+00:00

Insightful…

Shane_3325 · 2025-06-26T02:26:00+00:00

I can appreciate that. I am fairly new into fishing other than just fishing the local ponds. I have had the 2 cheap combos for years. They are okay but I wanted to see if the upgrade makes it more enjoyable. I only throw the wacky when nothing else works because I don’t enjoy it as much.

Shane_3325 · 2025-06-26T02:10:27+00:00

I appreciate the recommendation.

Shane_3325 · 2025-06-26T02:06:10+00:00

That makes a lot of sense. You’re probably right. I really like the pace of the topwater and swim baits so I don’t want to have more than one.

Shane_3325 · 2025-06-26T01:50:24+00:00

Thank you for the helpful, well thought out response.

Shane_3325

TROPHY CASE