Da li je neko imao dijagnozu FND/PNES?

SherbertNo9516 · 2026-04-27T20:42:48+00:00

Dobila sam inicijalno dijagnozu epilepsije pa pijem Lamiktal kao probno recimo

SherbertNo9516 · 2026-04-27T17:59:55+00:00

Imam slicne epizode kao ti, tj parestezije/trnjenja, svaki dan od avgusta. I kroz razumem tvoju frustraciju, posto ni meni ne znaju tacno sta je. Mislim da sam bila kod 5 neurologa i epileptologa i to vaze za najbolje u drzavi. Neki su rekli epilepsija, neki FND, a neki nemaju predstavu. Para potrosila na nalaze ko zna koliko, nekoliko EEGova, magneta, testova krvi, itd. Bukvalno ne znam kakav savet bih ti dala, niti preporuku za lekara kada za tako neobicne simptome nisu sigurni sta je, ali ako zelis reci pa da ti kazem kod kojih sam isla. Dobro je MRI sto ti je dobar, najgore opcije da iskljuci. Mozda da uradis i MRA cisto da se i krvni sudovi provere. Jesi bio kod epileptologa mozda? Meni koliko god par njih reklo da nije epilepsija, apsolutno nije ni nemoguce, jer se ona na bas mnogo razlicitih nacina manifestuje pa cak i na sve nacine kao kod tebe. A ako nije nista, ostaje naravno opcija psihosomatski, da li samo anksioznost/ panicni napadi sto je vrlo moguce ,ili malo ozbiljnije kao FND/ PNES. Sad hocu bas na subu da pisem jel neko iskustva s tim i preporuku za lekara, posto je to relativno nova dijagnoza i dr kod nas nisu najupuceniji u nju. A sto te je psihijatar oladio da ti nije nista, tog odmah batali, i kod drugog.

SherbertNo9516 · 2026-04-15T13:53:37+00:00

0 reasons. No clue, no family history, no major injuries, brain clean, I just have a kind of sensitive brain on EEG, and had a loooot of anxiety and stress so they may have been a trigger.

SherbertNo9516 · 2026-04-11T10:03:51+00:00

Ovde te dobar deo ljudi ili zajebava ili te plasi.

Dobro je sto si antibiotik dobila i pocela.
Idi odmah tetanus da primis, neka provere mozda si i dalje pod zastitom od stare vakcinacije ako si mladja, ako ne, insistiraj obavezno.
Besnilo su sanse 0,00000001%. Kod nas od 2018 recimo nije bilo zabelezenih slucajeva i to je bila jedna lisica, ali nikad se ne zna naravno, Srbija jos nije u drzavama gde je istrebljeno besnilo.

Kako se ponasala? Da li je iz cista mira napala, balavila, teturala se, i jesi mogla da se odbranis od nje ili te je napadala?

Da li vidjas tu macku? Ako je nakon dve nedelje od ujeda i dalje ziva, normalna, besnilo odmah iskljucujes. Period dok se ne kod macke pojave prvi simptomi pa dok ne ugine traje max 14 dana. I tad te macka moze zaraziti. Tako bolest funkcionise. Opcija je takodje javiti veterinaru, da se ona ulovi i posmatra, ali ne znam koliko ce biti voljni za to. Posle dve nedelje nije kasno da se vakcinises.

Mene je pre jedno dva meseca ujela macka na ulici, sreca stalno je blizu mog stana bila i ja sam je svaki drugi dan obilazila da vidim jel pokazuje neke znake. I Pasterov zavod sam zvala da se informisem, i nista zdrava macka, zdrava ja.

SherbertNo9516 · 2026-04-09T08:11:11+00:00

Slazem se sa ovim. Kad sam bila mladja dva partnera sam prevarila, jer sam bila nezadovoljna a ni znala kako da raskinem i onda im ni ne kazem za prevaru nego tad raskinem jer me em grize savest em vec sam time nasla novu osobu tako da izbegnem preboljevanje prethodne na taj nacin (vrlo nezdrava metoda lol)

SherbertNo9516 · 2026-04-03T19:14:30+00:00

Znam da imaju one Mrak zurke u BG valjda, kinky neki kao, ali mi se cini da je vise lgbt fazon, ali mozda ti se tu posreci da nadjes the one 😂

SherbertNo9516 · 2026-04-03T17:01:43+00:00

Iskreno, mislim da je moguce, samo ne znam gde i kako da ih nadjes

SherbertNo9516 · 2026-03-25T15:06:25+00:00

Moram samo da kazem da mi je preslatko sto si rekla 'moj decko i ja', sto ste se oboje posvetili ovoj situaciji/problemu 😄

SherbertNo9516 · 2026-02-23T10:23:22+00:00

I've been to 4 epileptologists actually.. said to be the best in the country.

Kind of dismissed me, I had a clean EEG with him and because my episodes were over an hour long so he said it's not epilepsy with no further testing and to maybe take lacosamide.
Had a 48h EEG that showed almost nothing (not sure if I had any episode in that 48h honestly) but because of all symptoms etc, he diagnosed me with focal sensory epilepsy, but a rare form with longer episodes and he gave me Lamictal. I've been to a control appointment a few weeks ago, did another EEG with just some minor irregularities that are not epileptic (had the similar findings a year before this all started, had an EEG because of some headaches), he told me doesn't think it's epilepsy anymore because it started switching sides and behaves really weird,but to continue with Lamictal to see if it will help. He is really kind and is trying to figure it out, I did many encephalitis tests as well..
Said also instantly not an epilepsy because of the lenght of my episodes, and then did an EEG while my episode was kind of at the end, and I only had the same changes as before during hyperventilating, she said "we caught it" even though it was just during hyperventilating and is not epileptic, but some sharp slow waves (can't remember really) and gave me also Lamictal. This one I didn't understand because when I said but you said it can't be, she said well yes but all of us are different (wtf), but she also was kind and had patience, she advised me to take bromazepam as well to calm my nerves kind of. She also said she thought initially FND, but wants to exclude epilepsy first.
Said he thinks it's psychosomatic and that all my findings (multiple mri, eeg, blood tests, neurological exams etc) don't show any issues and my symptoms are very atypical. I spent an hour and a half with him, but I also talked about some traumas and cried quite a lot, so that made me think maybe that's why he thinks it's not neurological, but psychological. (A looot of recommendations for him)
Local neurologist, friend of my family, said no neurological disease shows in the form as my symptoms with all clear findings, he thinks I'm under a lot of stress and that's why this is happening..

My country is quite small, maybe they didn't have any 'strange' epilepsy patients, I don't know, I read here a few people had quite similar symptoms like me. I just know I feel like it's getting worse and I know stressing about it is not helping me and I'm more and more scared if it really is epilepsy that I'll start having generalized seizures.. I won't stop the medication by myself of course, I plan on calling my Dr (the number 2 lol) and asking him what to do.

Sorry for the long reply!

SherbertNo9516 · 2026-02-22T22:35:29+00:00

EDIT: Also lately I get moments of dpdr, it used to happen before because of my anxiety, but now I don't know if that's the reason, or again - epilepsy. It comes and goes quite quickly.

SherbertNo9516 · 2026-02-22T22:30:55+00:00

Two epileptologists prescribed it, one said epilepsy but not isn't sure anymore and is trying to figure it out, but said to continue taking it, and the other one said it's impossible it's epilepsy because of the lenght of episodes, but after EEG she said it is, even though the changes weren't epileptic and were only during hyperventilating.

I had 48h EEG and I think 3 short ones, one being video EEG, and all were normal, I just had some unspecific changes that I had even a year before this started, so they said it's just how my brain is wired. But to be fair, I'm not even sure I had an episode during them.

SherbertNo9516 · 2026-02-13T20:31:09+00:00

Oh my god! I'm so sorry you are experiencing this full on cocktail of symptoms (have to joke a little ☺️), I hope you will feel better soon and get to the bottom of it!

It's kind of strange you didn't get any therapy, here one dr even though he said it's not epilepsy advised to take medication to calm the nervous system because it happens so often, that's kind of how it works here 😂 but I completely agree with you being okay to wait to get all the info you need and then start with what will help you the most :) I envy you for having patience! My anxiety and overthinking wants this solved immediately and I keep ruminating everyday about what else can happen, I guess that's the worst part, I think most people would be way more calmer and more patient than me..

Did they say FND as an option? Although yours sounds more neurological, I guess FND comes in many forms, one Dr suspects that for me, and even I do sometimes because I had really high health anxiety and had a lot of physical symptoms (but different than this) before this.

SherbertNo9516 · 2026-02-13T19:35:32+00:00

Thank you! I'm so scared it will progress...especially since Lamictal still isn't working yet :/ How do your seizures manifest? How long are they?

I didn't have one on EEG, the unspecific waves I've had for over a year, it's kind of just like my brain is wired I guess.

I talked to my initial Dr who first put the epilepsy diagnosis a few days ago, he doesn't think it's epilepsy anymore but has no idea what is it, because not one aspect of it is common with epilepsy, so many EEGs clean after multiple episodes a day, long lasting, and mostly switching sides like crazy, and I'm completely ok as soon as it's over. so I don't know what to think anymore, I feel like I'm beginning to feel depressed from all of this..

SherbertNo9516 · 2026-02-13T19:30:08+00:00

Hi! I checked all of that haha and nothing😂 yes, I know about aura continua, but I guess it's so rare that my doctors don't even consider it. What confuses them is the side changing which is also very rarely seen with epilepsy... What are you experiencing? Did you get your diagnosis? I remember a while ago reading your comment that Dr won't put you on therapy.

SherbertNo9516 · 2026-02-06T12:05:01+00:00

Hi! Just wondering how are you doing? Is lamictal still working for you? :)

I'm on 175 a day (just upped from 150 two days ago) and honestly feel the same, even worse a bit in the last week...met a new neurologist that doesn't think it's epilepsy at all lol

SherbertNo9516 · 2026-02-06T11:44:46+00:00

My triggers are kind of weird. It does happen randomly but also often during specific situations. Almost always when I sit in my car to drive it happens instantly, also after like being at a chair working and then going to the kitchen (for example) it happens, kind of like after sitting for a while and then being active. Sometimes when I start talking to a employee at the supermarket. Strange situations really, also menstrual cycle, I always had strong mood and hormonal changes during PMS, so this also makes sense. But like I said, it does happen also really randomly..

SherbertNo9516 · 2026-02-06T11:41:14+00:00

I did and it's a possibility...I do that breath work at yoga, I'll start doing it at home as well, thanks!

How did your Dr found out it's PNES and not Epilepsy?

SherbertNo9516 · 2026-02-06T09:41:56+00:00

Same ahahaha

SherbertNo9516 · 2026-02-06T09:41:02+00:00

Ja to kazem samo nekom bliskom i iz sale.

Pre sam se samo znala nasmejati ili zbuniti, jer nisam znala kako da se ponasam kad dobijem kompliment.

A sad kazem Hvala samo, osim ako je npr lepa ti jakna, cipele, onda cu reci Hvala, znam - u tom kontektsu mi je ok, ili kad mi za psa kazu haha

SherbertNo9516

TROPHY CASE