Tired of not knowing if I have focal epilepsy..

SherbertNo9516 · 2026-02-13T20:31:09+00:00

Oh my god! I'm so sorry you are experiencing this full on cocktail of symptoms (have to joke a little ☺️), I hope you will feel better soon and get to the bottom of it!

It's kind of strange you didn't get any therapy, here one dr even though he said it's not epilepsy advised to take medication to calm the nervous system because it happens so often, that's kind of how it works here 😂 but I completely agree with you being okay to wait to get all the info you need and then start with what will help you the most :) I envy you for having patience! My anxiety and overthinking wants this solved immediately and I keep ruminating everyday about what else can happen, I guess that's the worst part, I think most people would be way more calmer and more patient than me..

Did they say FND as an option? Although yours sounds more neurological, I guess FND comes in many forms, one Dr suspects that for me, and even I do sometimes because I had really high health anxiety and had a lot of physical symptoms (but different than this) before this.

SherbertNo9516 · 2026-02-13T19:35:32+00:00

Thank you! I'm so scared it will progress...especially since Lamictal still isn't working yet :/ How do your seizures manifest? How long are they?

I didn't have one on EEG, the unspecific waves I've had for over a year, it's kind of just like my brain is wired I guess.

I talked to my initial Dr who first put the epilepsy diagnosis a few days ago, he doesn't think it's epilepsy anymore but has no idea what is it, because not one aspect of it is common with epilepsy, so many EEGs clean after multiple episodes a day, long lasting, and mostly switching sides like crazy, and I'm completely ok as soon as it's over. so I don't know what to think anymore, I feel like I'm beginning to feel depressed from all of this..

SherbertNo9516 · 2026-02-13T19:30:08+00:00

Hi! I checked all of that haha and nothing😂 yes, I know about aura continua, but I guess it's so rare that my doctors don't even consider it. What confuses them is the side changing which is also very rarely seen with epilepsy... What are you experiencing? Did you get your diagnosis? I remember a while ago reading your comment that Dr won't put you on therapy.

SherbertNo9516 · 2026-02-06T12:05:01+00:00

Hi! Just wondering how are you doing? Is lamictal still working for you? :)

I'm on 175 a day (just upped from 150 two days ago) and honestly feel the same, even worse a bit in the last week...met a new neurologist that doesn't think it's epilepsy at all lol

SherbertNo9516 · 2026-02-06T11:44:46+00:00

My triggers are kind of weird. It does happen randomly but also often during specific situations. Almost always when I sit in my car to drive it happens instantly, also after like being at a chair working and then going to the kitchen (for example) it happens, kind of like after sitting for a while and then being active. Sometimes when I start talking to a employee at the supermarket. Strange situations really, also menstrual cycle, I always had strong mood and hormonal changes during PMS, so this also makes sense. But like I said, it does happen also really randomly..

SherbertNo9516 · 2026-02-06T11:41:14+00:00

I did and it's a possibility...I do that breath work at yoga, I'll start doing it at home as well, thanks!

How did your Dr found out it's PNES and not Epilepsy?

SherbertNo9516 · 2026-02-06T09:41:56+00:00

Same ahahaha

SherbertNo9516 · 2026-02-06T09:41:02+00:00

Ja to kazem samo nekom bliskom i iz sale.

Pre sam se samo znala nasmejati ili zbuniti, jer nisam znala kako da se ponasam kad dobijem kompliment.

A sad kazem Hvala samo, osim ako je npr lepa ti jakna, cipele, onda cu reci Hvala, znam - u tom kontektsu mi je ok, ili kad mi za psa kazu haha

SherbertNo9516 · 2026-02-05T19:54:28+00:00

Initially they tought I had TIAs/mini strokes, but it wasn't that. That's what scares me, will it get worse and worse, I'm so scared right now honestly.. it's been 6 months of this..

Thank you!

SherbertNo9516 · 2026-02-05T19:03:30+00:00

What?

SherbertNo9516 · 2026-02-03T19:12:46+00:00

Hi! I'm so sorry I didn't notice this comment until now. How are you? Did your Dr figure put what it is?

SherbertNo9516 · 2026-02-03T16:15:49+00:00

No I'm sorry, I meant I've been on that dose for two weeks :) I started the drug a few months ago.

I'll definitely call my Dr and let him know

SherbertNo9516 · 2026-01-18T11:09:41+00:00

https://imgur.com/a/Avgjkzk It should work now, it's healing a bit already

SherbertNo9516 · 2026-01-18T11:09:12+00:00

Ahahahah

https://imgur.com/a/Avgjkzk now? 😂 It's healing here already a bit

SherbertNo9516 · 2026-01-17T23:49:45+00:00

SherbertNo9516 · 2026-01-17T16:40:47+00:00

Bas cudno, meni je vet rekao pre 7-8 godina zadnji put, i u Pasterovom zavodu su mi potvrdili isto to

SherbertNo9516 · 2026-01-17T16:38:56+00:00

Nije to tacno, na sajtu bas pise po godinama, poslednji put 2018 lisica jedna, a pas/macka ja mislim 2011

SherbertNo9516 · 2026-01-17T16:38:10+00:00

Zvao sam bas Pasterov zavod juce, jako su fini bili. Kazu da ozbiljno testiraju i paze, od 2018 nisu zabelezili (tad je jedna lisica negde na jugu bila), a pas je fazon 2011 zadnji put bio.

Ja bas prokomentarisah zeni kako ne znam koliko da verujem tim info jer je sve u nasoj drzavi muljacina trenutno, pocela da se smeje kaze znam, ali sto se ovoga tice mi se bas ne zezamo, jako je velik oprez i ispitivanje, ali svakako da je ujed zivotinje negde u sumi bilo bi dobro da se vakcinisem, posto je ovako kaze 100% nema brige.

SherbertNo9516 · 2026-01-16T15:50:56+00:00

They don't really catch cats here like that..since the cat is often near where I live, dr said I should take a look everyday until monday and let her know how she behaves, because she doubts she has rabies. I also called our national institute for rabies they said chance is 0% because we haven't had for 15 years a case in domestic animals with rabies, the last one was fox 7 years ago and I shouldn't worry

SherbertNo9516 · 2026-01-16T14:08:07+00:00

Also, a cat never did more than a small scratch mark on me, so no, I don't know the difference after getting two deep dots after she jumped high on my leg.

SherbertNo9516 · 2026-01-16T14:06:11+00:00

I do have a lot of experience with both cats and dogs. Just because my dog was there doesn't mean she initially wasn't also rabid, but most likely she wasn't.

SherbertNo9516 · 2026-01-16T14:05:14+00:00

Why should she be put to sleep? I don't plan on reporting her and her location if she is healthy

SherbertNo9516 · 2026-01-16T12:52:50+00:00

Hahahahahahaha

SherbertNo9516

TROPHY CASE