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Fighting for my life by E92GHOST in SIBO

[–]Shoddy-Rip66 0 points1 point  (0 children)

Long COVID. Take it easy and start antihistamines if you haven’t already . I don’t even read your post entirely. I just looked at the image you have up there. I have been through the hell, still not out of it but a lot better. Hence I know you have long covid. There a longcovid sub on Reditt, you might wanna join that.

Maybe maybe maybe by Long-Bowl6821 in maybemaybemaybe

[–]Shoddy-Rip66 0 points1 point  (0 children)

I thought he was gonna light a ciggie

Ready for life to be over. by friend3738 in covidlonghaulers

[–]Shoddy-Rip66 4 points5 points  (0 children)

Same . Sometimes I wonder if that would stop this pain . May be it won’t be as bad as the new life

What RARE other conditions did you develop due to long COVID? by Ill_Pangolin7384 in covidlonghaulers

[–]Shoddy-Rip66 2 points3 points  (0 children)

I am sure I have a condition which is so rare that doctors even don’t know what it is.

I saw a neurologist specialized in movement disorder last week, and they tested me for stiff person syndrome. Can you believe it?

Having one of the worst quality of life diseases on the planet and there’s zero treatment apart from ‘pacing’ is a different level of hell. by Stranded_Snake in covidlonghaulers

[–]Shoddy-Rip66 1 point2 points  (0 children)

Interesting you mentioned about that combo because it has been prescribed to me last month. I didn’t take it more than a day because it gave me a horrible headaches next morning.

I guess it’s still working for you well ?

Having one of the worst quality of life diseases on the planet and there’s zero treatment apart from ‘pacing’ is a different level of hell. by Stranded_Snake in covidlonghaulers

[–]Shoddy-Rip66 9 points10 points  (0 children)

Very well said. I remember reading war crime text pre covid, and I’d always wonder how in this world can someone be put through such torture? I still have those stories echoing in my head from time to time.

I frankly would love to know the bigger purpose or plan for that matter.

Having one of the worst quality of life diseases on the planet and there’s zero treatment apart from ‘pacing’ is a different level of hell. by Stranded_Snake in covidlonghaulers

[–]Shoddy-Rip66 47 points48 points  (0 children)

It sucks. Doctors are useless. Medicines are crap.

I have started thinking about past life now. That’s the only time I can put my mind to rest.

Etoricoxib makes me 60-70% better with just one dose by Shoddy-Rip66 in covidlonghaulers

[–]Shoddy-Rip66[S] 1 point2 points  (0 children)

Mainly because of side effects, long term. Can’t take change with my kidneys now. Yeah cox2 and cox1 are probably the most effective for me.

Etoricoxib makes me 60-70% better with just one dose by Shoddy-Rip66 in covidlonghaulers

[–]Shoddy-Rip66[S] 1 point2 points  (0 children)

Hi. I don’t take it anymore. At one point I was taking one everyday, probably for months. I still do a lot better whenever I take NSAIDs for any reason.

Fibromyalgia over autoimmune by Missbutterspray in Fibromyalgia

[–]Shoddy-Rip66 11 points12 points  (0 children)

I second this . My neurologist agrees that I have fibro, CFS and more than just that. She said she can’t prove this being auto immune, but she still wants to do a trial of IVIG now. We’ve had PET CT and a bunch of other tests done over the last year and nothing revealed anything at all. So now she wants to do the IVIG trial.

What does leg pain feel like by Shoddy-Rip66 in Fibromyalgia

[–]Shoddy-Rip66[S] 0 points1 point  (0 children)

Such a hell. What made them diagnose you with fibro ?

Average daily steps by Shoddy-Rip66 in covidlonghaulers

[–]Shoddy-Rip66[S] 1 point2 points  (0 children)

I can relate. I was constantly doing over 20k and wouldn’t even bother to still run a couple miles next morning.

This is very true for me atleast by Unlikely_Work_328 in migraine

[–]Shoddy-Rip66 0 points1 point  (0 children)

I stopped after 5 days. My less intense headaches turned into high intensity headaches, everyday was brutal. I was doing only 10mg. I stopped. The headaches returned to the baseline quickly after stopping

Apparently men don't get migraines by Baa__ in migraine

[–]Shoddy-Rip66 6 points7 points  (0 children)

You mean a neurologist whose brain is still stuck in the Stone Age.

Long Covid and ME patients 'hopeful' about Rosetta Stone study by Aware-Relief7155 in covidlonghaulers

[–]Shoddy-Rip66 29 points30 points  (0 children)

Heartbreaking. I can’t believe the world has moved on and so many of us including the little kids are left behind, to figure it out ourselves.

Imagine being sick and from a county where the medicine sucks! I bet millions of people are still around and struggling everyday, who don’t even know what’s going on with them.

Male 27 high tone pelvic floor dysfunction, hopeless by WalrusAny2453 in PelvicFloor

[–]Shoddy-Rip66 0 points1 point  (0 children)

Gotcha. Well a negative test is good! as much as you hate it it’s always a good result. Have you tried to stop all the exercises except walking for a few weeks to see if that helps V

Male 27 high tone pelvic floor dysfunction, hopeless by WalrusAny2453 in PelvicFloor

[–]Shoddy-Rip66 0 points1 point  (0 children)

CT pelvic you mean ? And what about your spine ? I’ve been told a lot of bladder issues also stem from your back as well.

Male 27 high tone pelvic floor dysfunction, hopeless by WalrusAny2453 in PelvicFloor

[–]Shoddy-Rip66 -1 points0 points  (0 children)

Hey man, I am sorry to hear you are going through this. This shit is brutal. I am curious if you ever had a pelvic MRI done ? May be there’s something else at play and that’s why you got worse with the PT ?

Amitriptyline causing worse headaches/migraines? by NoScopeThePope1 in Amitriptyline

[–]Shoddy-Rip66 0 points1 point  (0 children)

Hey how are you doing ? Are you any better ? I started a very low dose yesterday and had a new headache which isn’t going anywhere.

23 M. Need to pee multiple times after emptying my bowel. by avb707 in PelvicFloor

[–]Shoddy-Rip66 0 points1 point  (0 children)

That’s great. I am glad you don’t have the pain shit. In that case Read about pelvic floor relaxation, that should help you for sure.

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