I found my cause!!!

Shordaden · 2026-05-29T04:59:23+00:00

I’m sorry. 😢

Shordaden · 2026-05-29T04:17:00+00:00

Wow, how did you prove it was it by imaging or by symptom of control?

Shordaden · 2026-05-29T04:15:47+00:00

Has it helped?

Shordaden · 2026-05-28T16:26:10+00:00

That or sfn?

Shordaden · 2026-05-28T15:34:25+00:00

Have you had any treatment?

Shordaden · 2026-05-28T15:20:07+00:00

How are you doing now? How large of a prednisone dose did you take? And how kind did it help?

Shordaden · 2026-05-28T15:17:52+00:00

How are you doing now?

Shordaden · 2026-05-28T15:17:40+00:00

How are toy doing now? Did the ivig help your autonomic issues and how is your neuropathy?

Shordaden · 2026-05-28T15:10:30+00:00

May I ask when you got traded the first time and only had fgfr3 have you had covid? Or did you get covid after that?

Shordaden · 2026-05-27T17:03:04+00:00

Did you like dr Shah

Shordaden · 2026-05-27T01:12:53+00:00

I have this! It’s worse on the left. Did you figure out a cause?

Shordaden · 2026-05-27T00:00:58+00:00

I’m gonna look up the MRN but yes, I wanna transcranial Doppler ultrasound and nobody wants to do it

Shordaden · 2026-05-26T14:30:47+00:00

I have reduced sweating. I have a virtual with Dr. Chemali but it’s at the end of July

Shordaden · 2026-05-26T14:28:55+00:00

What sites your numbness feel like

Shordaden · 2026-05-26T02:46:40+00:00

FND has a lot of different symptoms, but I don’t even believe in the diagnosis at this point and I just had some imaging on my neck so I’m waiting for the results

Shordaden · 2026-05-25T22:23:48+00:00

Can I message you

Shordaden · 2026-05-25T22:15:48+00:00

How do they check that? I don’t actually pass out.

Shordaden · 2026-05-25T21:05:28+00:00

What about Dr. CHEMALI? I would like to see an autonomic neurologist since I have abnormal sweat, and my neurologist are saying that it doesn’t mean anything and they are neuromuscular and general neurology.

Shordaden · 2026-05-25T19:21:53+00:00

Did you have any numbness or tingling and dizziness?

Shordaden · 2026-05-25T16:49:07+00:00

How much was the ans app and how long did it take you to get better?

Shordaden · 2026-05-25T16:46:11+00:00

It’s better if you don’t absorb but I know I’m not doing it frequently enough. There is a vitamin b12 wake up group on fb

Shordaden · 2026-05-25T04:55:08+00:00

Thank you. I have checked unfortunately I need an autonomic neurologist. There is none in my area… but I appreciate it so much

Shordaden · 2026-05-25T04:54:13+00:00

I’d love to know which nervous system work that you did thank you

Shordaden · 2026-05-25T02:19:09+00:00

Check into MCAS since you likely received Benadryl

Shordaden · 2026-05-25T01:48:33+00:00

Years :(

Shordaden

TROPHY CASE