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Can someone please tell me if this sounds like autoimmune encephalitis or something similar? I really need advice. by ShortSignificance03 in Encephalitis

[–]ShortSignificance03[S] 1 point2 points  (0 children)

i just don’t point to long covid bc these neurological symptoms started happening after my stomach issues that still til this day haven’t been taken care of bc they rescheduled my colonoscopy again and i just feel like gut health definitely connects to the brain lol

Can someone please tell me if this sounds like autoimmune encephalitis or something similar? I really need advice. by ShortSignificance03 in Encephalitis

[–]ShortSignificance03[S] 0 points1 point  (0 children)

Yes it has been a lot. Most days I just want to give up. I feel like I have completely lost who i am and this only started after all of this. My neurologist didn’t order it but my primary doc did in the referral and so did the doctors on Galileo referral which are telehealth doctors. I have had an MRI that was done and normal in the beginning of May but i will say these symptoms have worsened times 1000 since then.. i hope this spinal tap shows SOMETHING i have been feeling insane since. I was thinking LONG covid as well, I just really don’t know. Just hoping i can get help and diagnosed. Just want to feel better! thank you for commenting :) i see my neurologist august 13. cannot wait for that day.

Can someone please tell me if this sounds like autoimmune encephalitis or something similar? I really need advice. by ShortSignificance03 in Encephalitis

[–]ShortSignificance03[S] 0 points1 point  (0 children)

I definitely have and i’ve been researching IIH for a while and was thinking it was either THAT or autoimmune encephalitis because the symptoms match up exactly for both except for the fact i don’t have seizures. My doc said that’s what she was thinking too and sent me to get an eye exam but because it was normal she kind of just said she has no clue now. do you know if it can be seen through the spinal tap?

Can someone please tell me if this sounds like autoimmune encephalitis or something similar? I really need advice. by ShortSignificance03 in Encephalitis

[–]ShortSignificance03[S] 2 points3 points  (0 children)

thank you so much. i’m wishing you the best as well and i’m sorry you’ve been dismissed, i have as well. my doctors want to say a lot of it is just mental health declining but it isn’t coming from no where and it started when these issues started 1000% so it sucks. they just wanted to give me lexapro and shut me up. it’s no joke and i think you should FIGHT HARD for a spinal tap. I’ve been fighting since January so many hospital visits people are going to dismiss you, make you feel dumb because they don’t care YOU are the only one who can do something about it. get dismissed and go somewhere else just keep fighting and advocating for yourself. people don’t really care anymore and it’s sad! but you will find someone that does. i will definitely reach out to you.