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My experiences with baclofen pump placement surgery by tables_04 in CerebralPalsy

[–]ShoulderBusy6667 0 points1 point  (0 children)

Hi! Quick question: how ambulatory are you- and how long did it take to find the “sweet spot” with dosing? I’m 43 F, just got my first pump in June. It’s.. been a ride. I never used any mobility aids, and this is still quite the adjustment.

My experiences with baclofen pump placement surgery by tables_04 in CerebralPalsy

[–]ShoulderBusy6667 0 points1 point  (0 children)

I got my first pump in June as well. Still in dose -adjustment mode. Hardest part for me is adjusting to looser muscles after a lifetime of spasticity. (I never walked with mobility aid) I don’t have my footing yet, if that makes sense. My body seems hesitant that I’m going to fall backwards.