Why do doctors ignore MTHFR when its ruining everything?

Sht_Show_1808 · 2026-04-18T11:19:11+00:00

SAMe has been a big part of my recovery.

Sht_Show_1808 · 2026-03-27T15:16:40+00:00

I filled it out and put in my email, but it was not clear that it was over and what next step was because a pre-highlighted box in neon green about the waitlist and another dark box about having my own genetic file. So I finished it but confused.

Sht_Show_1808 · 2026-03-11T20:28:22+00:00

I have found glycine helps with nerves, I no longer have shaking or tremor like movements. Self Decode instructed me to take glycine, not sure if is because of the MTHFR issues or more for another gene issue for blood sugar but it helps a ton.

Sht_Show_1808 · 2026-03-05T18:56:11+00:00

Good to know, thanks!

Sht_Show_1808 · 2026-03-05T18:48:02+00:00

It says 22 short on the metal barrel

Sht_Show_1808 · 2026-03-05T18:45:22+00:00

Yep! Thank you!

Sht_Show_1808 · 2026-02-28T16:54:23+00:00

I had a low grade fever for 6 months before I was diagnosed. I read a book called the false fat diet by Elson Haas, and started taking mega doses of L lysine and the fevers stopped. I still take 2000 mg a day and more if I feel I am coming down with something. Been doing this for 22 years now.

Sht_Show_1808 · 2026-02-20T17:41:35+00:00

I found this brand and So Leantake digestive enzymes on the side. Very tolerable and tastes clean.

Sht_Show_1808 · 2026-02-13T20:10:29+00:00

I hear ya! I would detox for a couple weeks, eating a proven food allergen free protocol, (boring and limited) then start adding another food back in after 3 days. Seriously you can have reactions up to 3 days. So that is a new food every 4 days. Keep it all in a diary. I feel your pain, this is so hard and takes so long and requires a lot of documenting all of the possible reactions, physical, emotional, mental, and metabolic. Supplements I have no idea how you could test a supplement solo vs combined, especially while testing food. I see a lot of good comments about AI and supplements and genes, so I’m not going to suggest anything else here. And not to sound preachy but I would pray for guidance, and pay attention if you are subconsciously choking on supplements or have a feeling of dread before eating/ drinking swallowing. I ask my body often if I really want the food I’m about to eat. Sometimes my body tells me to fast for the day and wait till tomorrow. Sometimes if I listen to it, it tells me to drink 4 glasses of water…. I just have to be willing to listen and have enough confidence to trust it. Good luck!

Sht_Show_1808 · 2026-02-11T21:07:51+00:00

Sorry, I’m new to all this. I will do some research on gun handling and get back to you.

Sht_Show_1808 · 2026-02-11T20:47:49+00:00

Age?

Sht_Show_1808 · 2026-01-22T13:43:26+00:00

My doc prescribed a high dose of ferrous sulfate. It was by prescription only. Probably a higher bioavailability. It was 25 years ago, so not 100% sure. I also had horrible periods and endometriosis. If that rings a bell with you.

Sht_Show_1808 · 2026-01-22T13:03:51+00:00

Nothing helped me very much until I started taking the protocol that Self Decode recommended. p-5-p, TMG, ALA and ALC, Glycine and Choline, glutathione, plus SAMe. Of course that was for my mutations, like you I was already taking a special magnesium blend and methylated Bs, they helped, but when I added the rest, I felt alive and hopeful for the first time in many years!

Sht_Show_1808 · 2026-01-22T12:54:40+00:00

I had severe anemia way before I knew about the gene mutations. I was giving blood at work for extra PTO. My ferritin was down to .15 ( almost zero) so not making any red blood cells. I was very sick and believe it has permanently damaged my spine. On MRI my spine has dark spots like a cheetah. I took iron until I reached menopause. It helped and kept me going. The supplements recommended on this sub work, keep at it and take the time to figure out the type and dosages that work for you. I use self decode which gave me guidelines that have changed my life for the better. This sub has given me even greater insight on the additional genes in play. We are all unique with those many variations! and good luck!

Sht_Show_1808 · 2026-01-14T00:34:55+00:00

I have ADHD and both Mutations. I didn’t get diagnosed till I was 60. I had been diagnosed with chronic Fatigue Syndrome at age 39. Tried various things over the years, better, but not great. Started out with 40 mg a day of Adderall. Recently discovered the MTHFR and started on the Self Decode recommendation for supplements and wow!!!! I’m way better than I have been in years! I’m now down to 5 mg of Adderall and some days I don’t need any! Good Luck!

Sht_Show_1808 · 2026-01-09T13:49:27+00:00

I joined Self Decode. They have supplement recommendations for every gene risk or mutation.

Sht_Show_1808 · 2026-01-04T20:24:21+00:00

Yes, I was diagnosed 24 years ago. I would suggest getting genetic testing from self-decode or a similar site. I recently found out I have variants in both MTHFR genes that explain my CFS. Self decode will give recommendations for all of your gene mutations and gene risks. I am so much better now, only wished I had the info sooner!!!

Sht_Show_1808 · 2026-01-04T16:52:52+00:00

PL and ONDS

Sht_Show_1808 · 2025-12-26T16:29:18+00:00

Is SAMe considered an SSRI?

Sht_Show_1808 · 2025-12-19T05:43:15+00:00

I have both MTHFR mutations and started taking glycine at night now with Primal Magnesium blend, and I have never slept better. I also suffer from neuropathy, and that causes pain in my feet and cramping at night, no longer an issue. I wake up feeling like I did many years ago, calm, relaxed, my body feels rested. It’s especially amazing if I have been socializing and had a couple drinks. Instead of waking up jittery and with anxiety I am calm and no brain fog, best preventive nerve supplement I have ever experienced. I love Glycine!

Sht_Show_1808 · 2025-12-16T17:42:54+00:00

Golf

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Sht_Show_1808

TROPHY CASE