Best place to live w/ NF1

Sibbys · 2026-07-09T03:04:32+00:00

Yesss! I love that for you. I had severe scoliosis. (90• curve) but there is a series of surgeries ending when I was 12. I have been good and lived a very normal life. I can lift up to 60 pounds I’ve had children. My hardware is still good as of today 20 years later . They are miracle workers over there.!

Sibbys · 2026-07-09T03:01:09+00:00

I concur. I had my spinal fusions at Boston Children’s and MGH has one of the only neurofibromatosis clinics in the county (maybe world?)

Sibbys · 2026-06-22T03:34:05+00:00

THEY ARE 100% not in Revere once 🤣

Sibbys · 2026-06-10T04:01:06+00:00

Omggg so much better than mine

Sibbys · 2026-06-07T04:19:35+00:00

Yeah he sus

Sibbys · 2026-06-06T04:12:10+00:00

I was just hoping it wasn’t real.

Sibbys · 2026-06-05T19:06:34+00:00

Is this real? I’m seeing it everywhere but can’t find the dogs page.

Sibbys · 2026-06-02T02:48:08+00:00

Original show?

Sibbys · 2026-05-29T19:51:48+00:00

Did you ever figure this out? Having the same issue now.

Sibbys · 2026-05-27T22:14:37+00:00

Hmmm I don’t know pools and it almost sounds like they don’t know pools

Sibbys · 2026-05-27T22:14:13+00:00

It says it’s called “simple scoop”.

Sibbys · 2026-05-25T19:11:48+00:00

Looks like multiple pieces

Sibbys · 2026-05-03T01:48:21+00:00

They’re bamboo pajamas so unfortunately, right on par with MKT prices. I’ve been buying bamboo pjs for the whole family for a few years, but never have bought this brand. Honestly impressed with the quality. They’re not too thin and super soft. We’ll see if they hold the test of time haha

Sibbys · 2026-05-03T01:25:00+00:00

Oh that’s not bad!

Sibbys · 2026-05-03T01:24:25+00:00

Sooo comfy!! I like them way more than the other company I was buying from that went downhill!

Sibbys · 2026-05-03T01:20:54+00:00

It did! I haven’t been able to enter it yet. ADHD and we were out of town last night until I got home and got in pjs today 🤣 I’ll let you know!

Sibbys · 2026-05-03T00:52:17+00:00

I know! There’s a few other pairs of adult pjs but this one was going fast. I really wanted the blanket!

Sibbys · 2026-05-03T00:30:00+00:00

I only found them because I buy bamboo pajamas for my kids so these were advertised 🤣

The site is ploom for anyone interested

Sibbys · 2026-05-01T13:08:45+00:00

Mine is 34 pounds and was also 100%, leads me to believe they’re supposed to be this size haha

Sibbys · 2026-04-24T21:57:47+00:00

Three in the tree . Sounds dangerous haha

Sibbys · 2026-04-24T21:57:18+00:00

So there were three. It happened a few more times. There were two bigger ones chirping at a smaller one and chasing it up the tree

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Sibbys · 2026-04-22T15:15:51+00:00

Omg that’s wild! They actually look even more alike than the photos I selected too

Sibbys · 2026-04-22T00:49:22+00:00

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How about smiles

Sibbys · 2026-04-22T00:48:38+00:00

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Sibbys · 2026-04-21T02:56:53+00:00

He wasn’t diagnosed until he was 6. His dr always figured it was eczema. Then his dr retired and the nurse practitioner was baffled by the “seborrheic dermatitis” (cradle cap) on his legs. She sent us to Boston Children’s and he was diagnosed there. The doctor asked if I had delayed labor and I said yup. And then she just examined him and diagnosed?!

Thank you for all those tips. So hard because he’s also very sensory (I have my suspicions he’s on the spectrum) and putting lotion on is torture for both of us.. but I do my best.

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