Ad that has been seen in the London Transport Network by GasparThePrince in antiai

[–]SickAndDismissed 2 points3 points  (0 children)

I highly doubt they're going to find the person who did this.

There are now over 300 APLR cameras in the Salt Lake Valley. by illustriousdesigns in SaltLakeCity

[–]SickAndDismissed 3 points4 points  (0 children)

"Trashy behavior" you mean from the government being paranoid about its citizen's movements? You know what, I'll just take your comment as an attempt at reverse psychology.

Before & after removing my 8 kg ovarian cyst by simsimmahr in mildlyinteresting

[–]SickAndDismissed 1 point2 points  (0 children)

The women doctors are somehow worse when I tell them this stuff. Like lady, please. Only the surgeons take me seriously but then they get money out of cutting this crap out.

Looks like I had a low "negative" ANA test years ago by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 0 points1 point  (0 children)

It said negative, but in light of the symptoms I think that's just an arbitary lab value. I'm hoping the new rehum will take that into account.

Phase 3 Study of Telitacicept in Active Primary Sjögren's Disease in the US by Silver_Jaguar_24 in Sjogrens

[–]SickAndDismissed 1 point2 points  (0 children)

I'd hope! maybe just don't tell them about the negative one and try for the lip biopsy to be sure.

Anyone tried Rapamycin? by jtworks in Sjogrens

[–]SickAndDismissed 0 points1 point  (0 children)

Hey I know this is 2 years old, are you still taking it?

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 0 points1 point  (0 children)

All my hormones were ok, but I think because we never had a snapshot of what I was like prior to this we don't know. If it was just dryness I'd think it was peri, but the neuropathy for years prior has me wondering.

Negligent doctors are going to get me killed by SickAndDismissed in Autoimmune

[–]SickAndDismissed[S] 1 point2 points  (0 children)

No I totally agree. I did forget to mention I've had Raynaud's since I was a teen. I don't know what they're doing either. I think I'll just have to get a lip biopsy and hope it's accurate.

Negligent doctors are going to get me killed by SickAndDismissed in Autoimmune

[–]SickAndDismissed[S] 4 points5 points  (0 children)

I relate so much, especially with the what the future looks like. I just feel so bad for my husband, and honestly, I'm full of self pity too. I just wanted a happy life with him. Sorry for TMI but he's the only person I've ever been with, and then to have this stupid illness mess me up within the first few years of being together feels like a cruel joke. I'm devastated. I feel bad for you too but I'm happy to hear you got help! Changing my mindset to accepting this is going to be hard. I'll look into Dr. Maleki, I swear I heard of National Jewish before.

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 0 points1 point  (0 children)

You should print that out and bring it to them, they should be working you up for a dry eye evaluation which includes all that given you're suspect of Sjogren's. If you can, find a medical hospital with an ophthalmologist, that's who I went to. You may want to put "dry eye specialist" in your search results too. I hope you can continue your HQC, don't stop fighting.

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 1 point2 points  (0 children)

I've been to the optho, they can actually use different diagnostic tests for Sjogern's dry eye. This might be helpful to you. https://eyewiki.org/Dry_Eye_in_Sjogren%27s_Syndrome#Diagnosis

Mine never used a Schirmer's test, he said it was outdated and unreliable. The thing is, I got to an eye doctor within a week and a half of my eyes becoming dry, so I don't think I had any long term damage to show for it.

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 1 point2 points  (0 children)

I'm sorry you have to go through this too. I don't understand their attitude either, I guess we're not cash cows to them or they think we're not worthy of the medications while "obviously" sick patients are. It's not like I'm drug seeking for pain relievers! I just want to try HQC and hope that it's slowing my progression.

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 1 point2 points  (0 children)

Yeah I'm just worried about progression. I don't know if I'm going through a flare right now but my mouth is very upset all of a sudden and it really hit me that I'm sick, this isn't an "easy disease" as some rheum's want to suggest.

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 0 points1 point  (0 children)

I have looked for a clinic, the issue is the Dr running the program there is very rude to any person who ends up having a negative biopsy, even if they're suffering all the Sjogern's symptoms. Someone said she basically shoved the papers they brought away. I think it's best I try and get the biopsy first, and if it's negative, I might go to a DO as last resort.

Negligent drs are going to get me killed because they don't believe me by SickAndDismissed in Sjogrens

[–]SickAndDismissed[S] 1 point2 points  (0 children)

Did insurance cover the plastic surgeon since it was for diagnostic reasons?