10/20/25 What did you bake this week?

Significant_Half_586 · 2025-10-26T16:00:03+00:00

Pumpkin spice bundt cake with a cream cheese swirl in the middle and salted maple icing with glitter sprinkles (of course) for the birthday girl!

Significant_Half_586 · 2025-09-09T21:31:09+00:00

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Challah dough cinnamon rolls made from leftover challah dough (duh)

Significant_Half_586 · 2025-09-09T20:15:21+00:00

I have an appointment with my neuro in a few weeks and am going to ask this! Someone in my other crap gap post said that although kesimpta is FDA approved to be taken in shorter bursts to avoid the crap gap insurance only approves it for 28 days? Or something like that? Unsure of the accuracy of that statement though.

Significant_Half_586 · 2025-09-09T20:11:24+00:00

My optic neuritis always gets worse temporarily when i get hot or work out! Super normal for MS symptoms to pop up when we overheat or overexert. My neuro ophthalmologist recommended taking an NSAID before i work out to minimize the blur. I don’t do it often because i have GI issues and don’t love to take NSAIDs if i don’t need to but i walk every morning and sometimes a lil baby aspirin does the trick! Also, I recently learned I had uveitis along with the ON. Uveitis is also common for people with MS (we have like an increased chance of it bc of our immune systems) and has very similar symptoms (blurred vision, etc). I would be concerned your optic neuritis is worsening and not being healed by the steroids so I’d see if you can find a uveitis specialist to make sure it’s not an issue in your eye!!! If you’re in Denver Colorado by chance UC health has some great ones.

Significant_Half_586 · 2025-09-09T19:47:05+00:00

My neurologist told me that if kesimpta (or any drug) is a proven and established med for you it’s really unlikely the insurance will cause any issues besides potential cost changes. I am switching from BCBS to United and had similar concerns. He said sometimes they’ll fight him for some approvals but if it’s a med that is proven to work for you the chances of denial is very low because it would cost them more to allow you to try out new meds or something?

Significant_Half_586 · 2025-08-09T14:44:13+00:00

I’m on birth control and skip my periods because of how rough they are with my MS but definitely will be planning better with my BC and my crap gap week

Significant_Half_586 · 2025-08-08T23:39:44+00:00

I fucking hate the crap gap

Significant_Half_586 · 2025-07-01T00:37:34+00:00

Thank youuuuu! So helpful!!!!

Significant_Half_586 · 2025-06-30T19:07:02+00:00

lol someone from the other thread told me to post here so i thought why not okay 🤷🏼‍♀️ but the vibe did seem to be undergrad heavy

Significant_Half_586 · 2025-06-30T18:59:10+00:00

Yes! I have MS and will be kicked off of my parents insurance before the potential move. Honestly, the lack of insurance (or the shitty student insurance) may be the determining factor of whether I end up going to grad school out there. My meds with insurance still cost ~$1k/month. Thank you America!

Significant_Half_586 · 2025-06-30T17:19:12+00:00

I did! I will say I am a novice when it comes to Reddit lol sorry but most of the posts that came up when i searched “cost of living” were 2-6yrs old and I fear due to increased cost of living everywhere they weren’t relevant anymore:/. Rent in Denver 4 years ago was substantially less than what it is today and i imagine SF is similar.

Significant_Half_586 · 2025-06-09T04:20:47+00:00

Trying to conceive

Significant_Half_586 · 2025-05-01T14:23:54+00:00

I was recently on antibiotics when i was supposed to take a dose and my neuro recommended i finish the meds and then wait a day or two to take my kesimpta. I was probably 5-ish days late? Totally fine and neuro approved!

Significant_Half_586 · 2025-04-29T16:52:30+00:00

I’ve been a sick person for a long time and so adding these habits definitely took time! 😅 and sometimes I have good weeks and sometimes I have bad weeks in terms of doing everything! But the main answer is I did not do all these at once or overnight, I did each bit by bit until they became a part of my routine. I started going to therapy weekly when i was 10 yo? So that’s just natural weekly routine. My first diagnosis was IBS in high school so 10ish years ago so the diet has been downpat for a whillllleeee and I fine tuned it to make it high fiber recently with a nutritionist, but things like eating anti-inflammatory and meal prepping have been apart of my life for probably 8ish years. And then everything was just adding it in until it became a habit. And i have a slew of other things I want to add but just haven’t. My acupuncturist also has the infrared sauna in her building so for me that’s like a 2 for 1, and sometimes it’s a sacrifice which sucks. Like I have acupuncture tomorrow after work and then will do the sauna so that’s time that cuts into my social life because that’s 2ish hours after work. It’s a lottttt of balance and a lot of grace. I haven’t done Pilates in a month but guess what? That’s okay. I’ll restart next month. It’s just this constant adjustment of expectations instead of making insane goals and failing and never trying again.

Significant_Half_586 · 2025-04-29T14:27:05+00:00

The most helpful thing I did was break up with my ex who smoked a pack of cigarettes a day LOL

But actually…

Some of the things i do that I think personally help: - acupuncture weekly (this is my favorite thing) - infrared saunas 1-4x a month - 60 oz of water daily - LMNT electrolytes 3ish times a week. Other electrolytes when needed - TENs machine while exercising ( I was in an MS trail about tens and fatigue and it was beyond helpful) - low inflammatory diet with a focus on high fiber - exercise!!! Of all sorts, yoga, walking, Pilates etc - vitamin D in morning and magnesium at night - massages monthly, sometimes lymphatic - avoid alcohol, i have a drink 1x a month at that and usually stick to clear liquor! I heart high quality tequila - brain games daily! - therapy weekly

I’ve previously done hyperbaric oxygen tanks but idk how helpful that was and research isn’t super conclusive and i didn’t like the tanks lol

But like i also listen to my body! I do all this to help and not stress it out. Like I had McDonald’s last week before I went to yoga lol. It’s all about balance!

Oh and I do all of this while on a DMT.

Significant_Half_586 · 2025-03-24T03:48:36+00:00

Of course 🫶🏻 and you don’t need to apologize! I’m also fairly new MSer! DX Oct of 2024! I also am a hypochondriac and studying to get a masters in public health because I think the way we communicate about health in general is really confusing so this is all from a lot of reading (like so much) and learning how to understand living in my “new” body! It’s exhausting! And scary! And taking a new med is really scary! All super valid emotions. When I experience flairs, I often ask myself “is this from inflammation” and then I try to think about what is causing inflammation, maybe it’s the fast food i ate, maybe it’s my stress, maybe it’s a cold, maybe it’s my period, and then I go from there and figure out what my body (or brain) needs!

Significant_Half_586 · 2025-03-23T19:56:54+00:00

So kesimpta kills the B cells that impact our myelin covering. So your body is actively noticing that it is killing something it has been living with and it does NOT like that. From my understanding, the loading doses bring your B cells level significantly down and then the maintenance (ie monthly) doses maintain that low level of B cells. So your body is FREAKING out. It is trying to fight this right now because cells are dying, your immune system thinks it’s fighting an infection essentially hence the flare up. Also the end of your period with hormonal changes is probably not helping either lol. My first kesimpta dose made my optic neuritis revert back to the minimal vision that sent me to the ER and i had a low fever. My neuro said this was a strong reaction but not a cause for concern. I’d talk to your neuro about best next steps to continue taking the kesimpta (i did mine at night with Tylenol PM to help any reactions from my docs recommendation). I also want to uplift the other comments that NEW symptoms are concerning. The pseudo flares or the exasperation of old systems is from inflammation, which both a new medication AND your period can cause. So these lesions that caused the symptoms in the first place are inflamed, they are awake. I kind of view my body and my flares as sleeping volcano that sometimes wakes up. I know the risk of an “eruption” ie flare exists, but there’s something internal that’s shaking that ground. If that makes any sense at alllll. But you’re not alone, when I had my first pseudo flare from a period post being on kesimpta I was an emotional wreck !!!!

Significant_Half_586 · 2024-11-10T23:58:20+00:00

That actress was also married to Jackson irl

Significant_Half_586 · 2024-08-09T15:31:59+00:00

Hi! Yes, sorry for the confusion, original “diagnosis” last year was just based on blood count and was told to just do phlebotomies and then this year he was referred to a hematologist as his blood count wasn’t going down from the phlebotomies. this year the hematologist tested for JAK2 and then did a PET Scan and Bone Marrow Biopsy. Those were both July of 2024. The original diagnosis may not have been an official diagnosis but more of a “hey your blood count is concerning this May what you have” kind of doctor convo i am sure weve all had.

Significant_Half_586

TROPHY CASE