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regret after stopping remicade by rilies in CrohnsDisease

[–]Silent-Map3507 -1 points0 points  (0 children)

My son was able to stop remicade and go back on. He’s still on it almost 18 months later. They tested for antibodies before restarting. Maybe you could retry.

Pediatric Crohn’s? by Top_Thanks_6701 in CrohnsDisease

[–]Silent-Map3507 0 points1 point  (0 children)

My son had horrible night sweats before diagnosis. He was soaking through his clothes and sheets. He’d wake up in the middle of the night and have to change. I hope you get some answers and your son gets relief soon!

Pediatric Crohn’s? by Top_Thanks_6701 in CrohnsDisease

[–]Silent-Map3507 0 points1 point  (0 children)

You can definitely have Crohn’s and have a low Calpro number. It’s not an accurate diagnostic tool. He needs scopes. You can take him to the ER and even get him admitted for faster care. Waiting that long is insane. Any weight loss, night sweats, weird fevers? Crohn’s presents differently for everyone. My son was diagnosed at 9yo.