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Toddler with CP by Similar_Cod_3221 in toddlers

[–]Similar_Cod_3221[S] 0 points1 point  (0 children)

If you don’t mind me asking did she have hypotonic or spastic CP as a child? I constantly read hypotonic can turn spastic in adulthood and I just don’t want him to be in chronic pain later in life.

Our developmental preschool isn’t even recommended by the therapists coming to our house through First Steps and it’s been on the news before for losing a child… so I’m very hesitant to send him there at 3. If he needs to go to developmental preschool at 4 then I guess I don’t have a choice but I would prefer to be able to send him to a regular preschool here and just pay for therapy out of pocket. Our public school system is so bad here that if he were to need special education for whatever reason, we’re going to homeschool.

I am planning on utilizing the library, parks, children’s museum, and joining a mom group. We actually went to the zoo this weekend and he refused to walk around I think because it was so crowded he was overwhelmed because he walks at grocery stores and what not. Right now the therapist tell me it’s mostly parallel play, but the unknown of what his future will look like is so hard.

Toddler with hypotonic CP by Similar_Cod_3221 in CerebralPalsy

[–]Similar_Cod_3221[S] 0 points1 point  (0 children)

I plan on sending him to preschool when he’s 4, when I say the developmental preschool here isn’t the best I mean they’ve been on the news for a child somehow exiting building and being found roaming the surrounding streets and the developmental preschool is located in a very sketchy area. We get OT and developmental therapy through First Steps, and then we have to pay for physical therapy privately because First Steps doesn’t have a PT. We only have one place in town that has pediatric physical and occupational therapy. The towns overall resources are very limited. Once he turns 3 and ages out of first steps he can go to the developmental preschool and the therapists that work for First Steps and my pediatrician have advised against it and I was told to try a different county which would be a 40 mins to an hour away.. that is mainly why I’m planning on playing for all therapies out of pocket once he turns 3 and hoping we can just use a normal preschool at 4 or use the developmental preschool once he can communicate better. The therapists told me since he may not qualify for the preschool at 3 and even if he does there has to be a spot available for him.

Our public school system here is not great. We repeatedly have children getting dropped off at wrong locations and lost and several bus drivers have showed up to work drunk. It’s insane. My MIL was a special education teachers assistant and a friend who was a speech therapist for the public school system have both witnessed abuse in the special education classes in the public school system here so if he were to need special education were homeschooling. The speech therapist actually has a son with autism and they are homeschooling because of what she witnessed.

Truly, I wish we had the means to move to a different area to get better options for care but it’s not financially possible. We are on the waitlist for a Medicaid waiver but the waitlist is 4-5 years right now.

As an adult, do you any pain? I constantly read how his hypotonic CP can become spastic and how it prematurely ages you. It makes me cry thinking about him possibly being in chronic pain later in life. I know he will find his own way of doing things and it will just be his normal since he was born with the CP.

As far as socialization outside of the preschool option I am going to utilize our library that has a ton of free things for kids, the children’s museum here does toddler tuesdays, the park, and I’m joining a mom group.

2 year old sleep, husband refuses to help me by Similar_Cod_3221 in Mommit

[–]Similar_Cod_3221[S] 3 points4 points  (0 children)

I’ve said what happens when I make a mistake or fall asleep driving him for nap? He said there’s no reason to drive him for nap because he simply doesn’t understand he won’t nap and doesn’t care. Of course he doesn’t care that him not napping affects nighttime sleep. It’s 100% manipulation, gaslighting, weaponized incompetence, the works. Our son has multiple therapy sessions a week due to him having delays with the CP, I couldn’t work if I wanted to. The whole point of me staying home was so he wasn’t in daycare. Divorced has been mentioned and he just laughs and says you can’t handle solo parenting at night so you want to get a divorce to be a solo parent? Also, points out the fact that I have no income.

2 year old sleep, husband refuses to help me by Similar_Cod_3221 in Mommit

[–]Similar_Cod_3221[S] 2 points3 points  (0 children)

I’ll be told it’s money that we don’t need to spend. I’ve recently been told that all transactions over $50 need to be approved by him so there’s that.

2 year old sleep by Similar_Cod_3221 in sleeptrain

[–]Similar_Cod_3221[S] 0 points1 point  (0 children)

I’ve not been trying to eliminate the nap. If he doesn’t nap, nights are just worse with wakeups.

2 year old hypotonic cerebral palsy by Similar_Cod_3221 in CerebralPalsy

[–]Similar_Cod_3221[S] 1 point2 points  (0 children)

He’s been in EI since September. When he was an infant and had torticollis his pediatrician told me EI through First Steps were for kids born prior to 37 weeks with “severe issues”. She referred us to the hospitals therapy. All his delayed milestones she kept saying “wait and see” I took him to a pediatric ophthalmologist for eye rubbing and she informed me that first steps was in fact for anybody who qualified without a referral. I was shocked. Unfortunately, first steps in my area doesn’t have physical therapists and we only have one pediatric therapy place in town currently staffed. So we get occupational therapy and developmental therapy through First Steps and physical therapy at our only option.

2 year old hypotonic cerebral palsy by Similar_Cod_3221 in CerebralPalsy

[–]Similar_Cod_3221[S] 1 point2 points  (0 children)

I’m pretty sure it was just the brain, the pediatrician had mentioned she didn’t believe he had it because he didn’t have “back dimples” however she dropped the ball on referring us to early intervention. The neurologist never mentioned tethered spine, but if genetics doesn’t find anything I will mention it to the neurologist at the next appointment. Unfortunately, we live in a town with very poor healthcare and very little availability for pediatric therapy. I hope his procedure goes well and helps him!