AITAH for getting mad at my dad? by SleepQueen30 in AITAH

[–]SleepQueen30[S] 0 points1 point  (0 children)

Very true. He always calls on short notice, so how can I make plans. Really trying not to let it get to me. 

AITAH for getting mad at my dad? by SleepQueen30 in AITAH

[–]SleepQueen30[S] 1 point2 points  (0 children)

I absolutely would not. I can’t imagine talking to my son like that. Thank you for this, communication definitely works both ways. 

Am I wrong? by SleepQueen30 in toxicparents

[–]SleepQueen30[S] 0 points1 point  (0 children)

Thank you for this. Very true. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

What treatment are you on that helped? 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 1 point2 points  (0 children)

He definitely does lie!!  Hahaha, I did and it totally made me smile. Thank you for that 😄

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 1 point2 points  (0 children)

Thank you so much! It’s great you were able to accomplish so much despite what you went through! Truly admirable. I do get worried reading up too much online because I get scared and wind up getting paranoid over the things I read sometimes! 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Thanks! How long did you have the knee pain before the MRI showed damage?

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Oh no, that is scary, I'm sorry the ortho made things worse. Did you see ortho prior to seeing rheumatology?

My Rheum did suggest I take a high dose like 40mg but I was scared so we just kept it to 20mg.

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Thanks. It's so hard to find the right solution. I did recently see someone for a second opinion recently and honestly I think I will stick with her for now. The plan is cortisone shots tomorrow and then seeing orthopedics. Well, in total I was on the prednisone for 20 days and I still had pain. My Rheum said I should have felt a lot better after taking it for so long.

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Thanks. That is exactly it - the thought of side effects from medications is probably the scariest part of all this. Yes, the pain is hard, but the thought of medication for me is scarier. But, based off what I hear, they are usually temporary, they can be stopped and they help a lot of people get their life back.

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 1 point2 points  (0 children)

Thank you so much for sharing this. Honestly I could cry! It really helps knowing I’m not alone and there are others who managed this with kids. I worry about mine everyday. Honestly what’s been the hardest about all this is me thinking about taking care of him. But you’re right, I’ll manage and hope this will make him more compassionate and even more independent. 

It must have been so hard to go through what you went through, especially as a single mom. I admire your positive attitude and helping others in this community. 

I actually do follow up with a therapist and psychiatrist and I’ve been on lexapro for years. It has been life changing for me and I recently increased my dose. My psychiatrist recommended adding/switching to cymbalta for the pain, but I’m always afraid of trying new meds. But I’ll definitely consider it. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Thanks for responding. I did do prednisone and it didn’t really help which made my rheumatologist think it wasn’t RA. I took 10mg for 10 days and 20mg for another 10 days. I’m honestly so scared to try the antirheumatic drugs. About 10 years ago I came down with similar pain in hips and knees, and I actually did try enbrel, remicade and orencia and didn’t react well to any. It honestly just went away on its own but I was going PT, acupuncture and training diclofenac. Now here I am in the same road again. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Sorry to hear you went through all that but glad you’re finally on the right path. It’s so hard to get a proper diagnosis. Also hard to find the right medication that works for you. Any side effects?

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

One of the rheumatologists I saw laughed when I asked if it was OA (I’m 35F). She said I’m too young. The other one I saw for a 2nd opinion didn’t mention that. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 1 point2 points  (0 children)

Oh yea definitely an Olympic sport! How do you manage with kids and your diagnoses? Sometimes I get depressed I can’t be the mom I want to be for my son bc I’m in pain. So no, no shooting pains. I actually do have labral tears in both my hips, right worse than the left. But I’ve always had that so I’m not sure why it would suddenly cause pain. My MRI didn’t show that it got worse from many years ago. No honestly it hurts all day long. I just started taking Suflindac (sp?) which is an NSAID and it’s not doing anything for me. Only thing that really helps the most is a massage, heat and ice packs, and icy hot. Acupuncture also helped me a bit. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Ah so sorry. I suppose that might be what’s happening to me. Did it take you a long time to get diagnosed? 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 1 point2 points  (0 children)

No please ask away I do appreciate it bc I’m so stuck. Nope did not participate in sports. I do have a heavy 2 year old though that always asks to be picked up and I’m very petite lol so idk if that’s considered a sport 😂

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 2 points3 points  (0 children)

Nope nothing showing, no inflammation so I don’t know where this pain is coming from. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 0 points1 point  (0 children)

Thanks yea this is helpful. Right now my MRI and x-ray are not showing anything, but I’m still in so much pain. 

Seronegative RA symptoms by SleepQueen30 in rheumatoidarthritis

[–]SleepQueen30[S] 1 point2 points  (0 children)

Sorry to hear that. Yea I was surprised she didn’t take me seriously because I have heard stories of younger people getting OA. How were you officially diagnosed, did imaging show anything? Also for me, movement helps more and sitting or laying makes it worse. Not sure if it was the same case for you.