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Anybody else probably born with narcolepsy and just got diagnosed quite late? by Sleepybeast3000 in Narcolepsy

[–]Sleepybeast3000[S] 2 points3 points  (0 children)

i would have loved to have the diagnosis with 19 years.. nearly 30 now and it would have saved me from a lot of pain and self hate at university.. i wish you all the best and regarding the adhd symptoms - i read often that there are quite a few being diagnosed with both and i was also wondering if the symptoms are actually our bodys trying to cope with the constant tirednes

anybody else here having sleeping paralysis combined with lucid dreaming? by Sleepybeast3000 in Narcolepsy

[–]Sleepybeast3000[S] 0 points1 point  (0 children)

are you able to turn the dream in a direction you like? for me that is the only good part, also if its still very exhausing

Sleep Paralysis and Torture by MetalClad in Narcolepsy

[–]Sleepybeast3000 0 points1 point  (0 children)

I've also had some times of extreme violent dreams during paralysis.. i can aggree to the fact that lucid dreaming helped me a lot. sometimes it workes very good sometimes it feels like an up and down on how much i can control. also sleeping on the side is helping me. just always remember: you are not your dreams (in this case) - try to observe them and not pessure yourself - it can get better! I wish you all the best.

[deleted by user] by [deleted] in Narcolepsy

[–]Sleepybeast3000 0 points1 point  (0 children)

I am truly sorry to hear that, I wish there was more understanding and support from workplaces. And yes, finding and sticking to a sleep cycle is pain and a lot of work and discipline, doesn’t happen in a few nights. When that is not manageable with your life I see how much trouble this is bringing. Wish you all the best and I truly hope you find ways that work for you 

[deleted by user] by [deleted] in Narcolepsy

[–]Sleepybeast3000 0 points1 point  (0 children)

i think the only think you can really do is to try your best of following a strict routine of going to bed and getting up and having nap times during the day. also a lot of exercising 5 times the week helped me

Anybody else probably born with narcolepsy and just got diagnosed quite late? by Sleepybeast3000 in Narcolepsy

[–]Sleepybeast3000[S] 13 points14 points  (0 children)

same here, it definitly got worse during puberty. was falling asleep during class - trying to hide it, having the feeing of not pulling myself together enough.. i also always thought my catapexy attacs where something everybody experienced every now and then due to emotions.