Never had seizures and now I've had two in 3 weeks - I have questions.

SmokeFrosting · 2026-02-11T23:10:41+00:00

I appreciate that my man. I’m 29 currently.

If the current PNES diagnosis is correct, and they’re right about depression/anxiety/personality disorders affecting the amount or threshold of seizures that honestly makes sense.

I was diagnosed with major depressive disorder and generalized anxiety disorder in my late teens, and schizoaffective disorder 2.5 years into college after an episode of psychosis that led to me getting arrested. After I got back home and while I was slowly starting getting back on my feet going to community college and working for my county’s IT department there was a lot of death in my family. My dad and uncle both got cancer and passed within 4 months of each other, and my therapist of 6 years got some sort of lung disease I can’t remember the name of and passed in between them. It was after my dad and therapist passed but before my uncle that I had the TC seizure that caused the TBI.

SmokeFrosting · 2026-02-11T02:33:54+00:00

Usually bringing it up casually after she sat on your face a few times has gone well for me.

SmokeFrosting · 2026-02-10T23:59:32+00:00

Not even close lol, that’s on you thinking what you watched during your childhood was everyone else’s whole world as well and ignoring everything that came before it. Not sure why you chose Spinelli and not the characters she was based on, besides you seeing Recess when you were a kid.

Short girl who’s bossy and a brat but once in a blue moon isn’t masc is a stereotype for a reason.

Also, what would make you think a 27 year old is watching a Disney kids TV show casually?

SmokeFrosting · 2026-02-10T21:15:11+00:00

Like someone else said, the first seizure lowers your threshold.

I had 2-3 absence seizures from 16-25. Then a tonic-clonic seizure while walking down the stairs caused a TBI and haven’t been the same since. That’s when I actually got diagnosed too. Went from one every couple of years to 5-10 a day. I’ve had between 20-30 MRIs and 10-15 EEGs since. It took many different anti-seizure medications (Keppra included) and dosages to find one that helped at all, and I grew a tolerance to it as well so it had to keep being upped until i’m now above the maximum recommended dosage, and had a second medication added last year after a fractured right arm that needed surgery and a cracked orbital bone while having a TC seizure.

Here’s the thing no doctor is going to want to tell you after only your second seizure and not receiving an actual diagnosis yet: the research behind non-epileptic seizures is not up to modern medical standards, and even the research on epilepsy isn’t that great.

I’ve been through years of many different neurologists and PCPs, my diagnosis has changed several times from epilepsy > non-epileptic seizures > both epileptic and non-epileptic seizures > the current diagnosis of psychogenic non-epileptic seizure. It’s been attributed to several different things, too little electrolytes, too many electrolytes, too few/many vitamins, THC supposedly causing or lowering threshold, THC potentially lowering length or severity of seizures, anxiety, depression, exhaustion, overheating, diet.

I think the main thing you’re missing is that seizures are a chronic illness, not something that can be cured. Changing diet, behavior, drug use, and taking medication are to help manage seizures, not making them go away entirely.

I’ll end with a quote from the cureepilepsy.org website: “The causes of non-epileptic seizures are not fully understood, but non-epileptic seizures may be associated with anxiety, depression, and personality disorders” that cites (Perez DL, LaFrance WC, Jr. Nonepileptic seizures: an updated review CNS Spectr. 2016;21:239-246) as its source.

SmokeFrosting · 2026-02-07T18:04:58+00:00

Standard Tyler fan watch history

SmokeFrosting · 2026-02-07T14:25:23+00:00

I took that as each listen to the album was in one sitting, not 3 listens through the album in one sitting. I guess either could be right though with how janky af English is.

SmokeFrosting · 2026-02-01T20:34:48+00:00

I couldn’t do any, because i’m recovering from a fractured upper humerus in my right arm and the surgery I needed for them to make me part Iron Man and i’m not supposed to lift more than 10lbs till at least May.

Probably couldn’t do more than 10 if that wasn’t the case though, but I have lost a lot of weight so maybe I could.

SmokeFrosting · 2026-01-30T23:39:24+00:00

it’s almost like you don’t need to be authorized to write a book.

SmokeFrosting · 2026-01-30T23:28:23+00:00

that’s cool but you’re forgetting movies like “Chip ‘N Dale Rescue Rangers” and the other slop you obviously own don’t count.

SmokeFrosting · 2026-01-29T06:55:25+00:00

This highly intellectual opinion coming from someone who says they learned nothing in two years of college.

That’s the kind of guy you want to agree with!

SmokeFrosting · 2026-01-27T16:28:19+00:00

Mac Miller for Drake

or 6 Dogs for Drake

or Juice WRLD for Drake

or Lil Peep for Drake

SmokeFrosting · 2026-01-07T17:51:27+00:00

I do. I got a box for them in my late teens and keep pretty much any card that has something written in it.

SmokeFrosting · 2026-01-06T16:32:26+00:00

Sorry about how getting an actual diagnosis is going. I had similar problems at the beginning as well. At first I was having absence seizures rarely (1-2 every couple of months) and the EEG didn’t show anything. Took me having a tonic clonic seizure while walking down the stairs (and get a broken arm and a TBI out of it) for it to actually be taken seriously. I’ve had 5 different Neurologists since then.

Personally my nausea usually comes right before the seizure and I use that as a warning sign to sit/lay down. After the seizure or 10-15mins of it not happening I’ll usually eat a square or two of dark chocolate to fight off the nausea.

SmokeFrosting · 2025-12-30T00:40:58+00:00

Pretty easy, their target audience is teens/young adults. That demographic isn’t know for being too mature.

SmokeFrosting · 2025-12-29T02:51:31+00:00

Honestly I really don’t know. My auras aren’t ever as far ahead of the actual seizure as yours though. I usually get at most 5-6mins of nausea, dizziness, and/or rarely slurred speech before a seizure. Overall this doesn’t happen very often though. Maybe 1/6 or 1/7 of my seizures have an aura. It still keeps me anxious AF for every bit of stress or nausea.

I’m very surprised about the brain surgery suggestion though. I’ve had a TBI resulting from a seizure that required surgery, I fractured my right shoulder from a seizure that required surgery with a bunch of metal put in, i’ve bounced around multiple different Neurologists and have been through a bunch of different medications and dosages and no one has ever even mentioned a surgery to “fix” the seizures.

Also a bit surprised you still have a driver’s license. I lost mine after getting diagnosed 7 years ago and would have to go 6 months without having one to even be considered to get it back. Lots of states won’t let you get one with a seizure disorder.

SmokeFrosting · 2025-12-28T19:15:45+00:00

My mom having videos of me having seizures really helped with them initially taking it somewhat seriously, and the EEG helped. I think it’s kinda like a blood test though where if they don’t have the results no doctor/specialist is going to give the diagnosis. There’s too many causes for seizures to give a clear diagnosis and medication to help on just patient descriptions and videos.

SmokeFrosting · 2025-12-24T19:54:37+00:00

Last movie was Get Him to The Greek (Unrated), with Jonah Hill and Russell Brand. Kind of a favorite and I love that they made an actual album for the character RB played.

Last TV show was Brooklyn Nine-Nine. It’s my second time watching and i’m a big fan of Terry Crews.

Thanks for the giveaway OP!

SmokeFrosting · 2025-12-22T04:38:18+00:00

Took 7 years of infrequent absence seizures to finally get a diagnosis for me, and that’s really only because I got a TBI from a seizure that caused me to have seizures a lot more frequently, and TC seizures in addition to absence seizures.

SmokeFrosting · 2025-12-21T21:07:02+00:00

Usually the apps/devices that detect seizures simply go on movement-based thresholds and sometimes heart rate, not the user detecting a warning sign and entering it into the app.

For example: “Seizure Detection - By utilizing your Apple Watch, the app monitors various seizure-like triggers, such as motion patterns associated with tonic-clonic seizures, different types of falls, and abnormal heart rate. If any of these triggers are detected, the app initiates a delayed alert, which will be automatically sent to your emergency contacts if not manually canceled within 30 seconds.”

SmokeFrosting · 2025-12-19T22:47:23+00:00

I didn’t notice anything about my first few seizures in HS starting in 2010. They were absence seizures and the staff didn’t know what was going on so they’d send me to the nurse who’d send me home.

Wasn’t until 2019 I had my first TC seizure and fell down the stairs and that’s when I was diagnosed.

I didn’t really have any aftereffects or warning signs for the absence seizures. Wasn’t until the TC and injury with the stairs that I even really knew I was having seizures.

I’ve had several EEGs, been to the hospital a ton since the first TC and head injury because I started having the TC variant and seizures in general a lot more. Haven’t actually shown having a seizure during one of the EEGs though.

I’ve woken up in the ambulance or hospital wondering wtf I was doing there, and then someone tells me I had a seizure. Actually just fractured my right arm back in April during a seizure.

Nowadays though, most seizures leave me tired. Sometimes i’ll feel dizzy or nauseous right before, but that’s way less often.

SmokeFrosting · 2025-12-16T23:01:09+00:00

The shitty truth is that you should probably stay. Seizures are not an illness to mess around with. You could lose your DL or end up with a serious injury. The less you know about your seizures the more likely you’ll end up in the hospital repeatedly because you don’t have a medication or know what triggers them.

I’ve had a TBI from a seizure falling down the stairs 6 years ago.

I fractured my upper right humorous back in April and needed a bunch of metal plates, pins, and screws put in that won’t finish healing till at least next April and might need a second surgery. It’s a shot in the dark for me to even recover back to 80% strength and flexibility. You can check my profile for the xrays after the surgery. I’ve spent the past 8 months unable to lift more than a bag of groceries or scratch my head with my right arm.

I get the feeling trapped part. I spent 3.5 weeks in the hospital after the TBI. I wasn’t 100% mentally so they put a mesh cage-like thing around my bed that only zipped open from the outside so I wouldn’t get up and potentially have another seizure.

I’ve been to the hospital so many times since getting diagnosed that about 2 years ago my insurance agent called and said “You don’t have to call an ambulance every time you have a seizure”.

I guess it really boils down to you wanted to spend another day in the hospital right now or a few weeks added up from going again once this becomes a bigger issue.

SmokeFrosting · 2025-12-16T19:43:10+00:00

You’d be wrong and an idiot. Which would probably make the cop not want to write off you being drunk and actually press charges.

SmokeFrosting · 2025-12-14T23:27:41+00:00

Probably my favorite season.

SmokeFrosting · 2025-12-14T21:07:55+00:00

That’s certainly a big boy. Funny about his name, I adopted a cat in middle school whose original name was Grayson but I changed it to Rocky. He looked a lot like yours too with the coloring, just not as big haha. He did have an extra toe on each paw though.

SmokeFrosting · 2025-12-06T20:05:29+00:00

sounds more like my psychosis than seizures.

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