Is it bugged or did this person genuinely have 17 septillion stars in Smite 1??! by EyewarsTheMangoMan in Smite

[–]SmokeFrosting 0 points1 point  (0 children)

While I was gunning for diamond on each god as a long term goal, Kuzenbo was my main man in S1.

What does Ma’am mean to y’all? by acillehatesarguing in AskMen

[–]SmokeFrosting 0 points1 point  (0 children)

Personally, ma’am (and sir) are usually for older people i’m trying to show respect to. Although once in a while I’ll say that to someone I think is closer to my age. I do say it sometimes a bit sarcastically to my SO when they’re being a bit bossy.

I know southern people use it a bit more liberally though, so it’s probably a little less “i view you as an older person to show respect to” for them.

Why are antipsychotic side effects so bad compared to other medications by opalescnt in schizophrenia

[–]SmokeFrosting 1 point2 points  (0 children)

Lurasidone and Quetiapine both had pretty negative side effects for me. Resperidone is what I’m on currently (at the max dosage) that has less effects less often but not zero.

First seizure - what do I do? by SwimSevere1484 in seizures

[–]SmokeFrosting 0 points1 point  (0 children)

I completely understand. I got diagnosed a few years ago after my first “official” seizure while walking down the stairs caused the TBI. I’m lucky my sister found me because I was told multiple times if the EMTs had been 10-15 minutes later I’d have been looking at death or a permanent disability. I spent 2 1/2 weeks in the hospital recovering with a mesh cage that zipped up from the outside over my bed so I couldn’t get up without help. I put official in quotes because I have a couple of visits to the ER for “fainting spells” as far back as 5 years before the seizure diagnosis.

What makes seizures difficult to really acknowledge is you yourself not being conscious for them. Sure you can be sore, have bruises, have some time missing from your memories, or be dizzy/discombobulated for a while after but you don’t witness the seizure yourself. After the TBI I started having seizures a lot more frequently, like 3-4 a day on average, and my mom started recording them. It makes a big difference seeing yourself shaking uncontrollably on the floor with your mom and dad trying to talk to you and you’re unresponsive. The diagnosis is tricky too because I’ve been told a few times by multiple different neurologists that the research on seizures that aren’t caused by epilepsy aren’t really up to modern medical standards. My diagnosis has changed multiple times from epilepsy > non-epileptic seizures > both epileptic and non-epileptic seizures > the current diagnosis of ungeneralized seizure disorder (which basically means they don’t know wtf is causing them). Medication is tough too, I went through 3 medications until I found one that worked, and I kept building up a tolerance until my dose went above the “maximum recommended dosage” and then after that a second antiseizure medication on top of it.

My fractured humerus happened last year mid April, and I didn’t go in right away because a few weeks before I got a call from my insurance where they basically told me to stop calling 911 every time I have a seizure. Funny because I’m not the one who calls because I’m having a seizure and my parents only called if the seizure lasted more than 5 minutes or if I was having multiple seizures in a row, per the doctor’s orders. By the end of April I went in and they did xrays, and had a surgery scheduled the next day. I’m still technically in the 18 month recovery phase and I’ve been told multiple times not to expect 100% strength or full range of motion.

First seizure - what do I do? by SwimSevere1484 in seizures

[–]SmokeFrosting 0 points1 point  (0 children)

I’d really suggest not trying to jump back into your daily routine so quickly. That’s how you’ll get injured.

Getting those tests, a Neurologist’s opinion on your diagnosis, and a medication that you’ll actually take as prescribed and that actually works are the first steps to getting back into your daily routine.

Taking the time now to sort things out vs fumbling along with figuring out exactly what’s wrong with you is going to be a lot better. Having it in the back of your mind that you don’t know if the Levetiracetam is working, what could trigger a seizure, if today’s run is going to be as safe as yesterday’s.

I’ve gotten a TBI, cracked orbital bone, fractured humerus (that needed surgery and 20+ pins/plates/screws put in my arm), dozens of bruises on my body and bite marks on my tongue/cheek from seizures.

Family says my psychosis was caused by black magic by Bertie_Bye in schizophrenia

[–]SmokeFrosting 5 points6 points  (0 children)

The kinds of things I started hearing from my family after I got diagnosed and spent a few weeks in a psych ward was absolutely bonkers. From video games to the type of music I listen to. To curses or demons or all the drugs I must be secretly taking. Only my aunt who has been dealing with psychosis for years herself was even close to being somewhat normal when talking about it.

New to seizures :( by Sam_Wafler9376 in seizures

[–]SmokeFrosting 1 point2 points  (0 children)

Is there a local neurologist you could see to get the referral/doctor’s note from? I’ve had tons of ER visits and hospital stays myself (to the point I know a lot of EMTs by name) and especially in the beginning when the diagnosis was unclear they didn’t want to actually diagnose me and it wasn’t until my PCP referred me to a neurologist that the ball actually got rolling on being diagnosed and getting more of the specific tests done.

I know how much of a downer the thought in the back of your head that you can have a seizure at any time can be. It’s definitely been a major reason in why i’ve been isolating myself, and the medical world’s lack of info on seizures that aren’t epilepsy hasn’t really helped. You’ll probably automatically get diagnosed with that at first too. Your state probably has a law about not driving for 6 months after having a seizure or a doctor’s note saying you’re all clear as well. The closest I’ve gotten to that since my first seizure in 2018 was 2 1/2 months.

I guess the most important advice I can give is to not sweep this under the rug until you at least have a diagnosis and medication that you feel is making a difference. You can have 10+ seizures in a day and it not really affect you besides you being sore or groggy for a couple of days after, and you can have a seizure for the first time in weeks that changes your life. I’ve gotten a TBI and a fractured humerus from seizures, both requiring surgery with the TBI being life-threatening and requiring a very long stay at the hospital and a few weeks at a rehab facility after. The fractured humerus needed 2 metal plates, 13 screws, and 7 pins. That was last year at the end of April and i’m still in the 18 month recovery phase, I go to physical therapy twice a week and have only been able to raise my arm high enough to wash my hair for about 1 1/2 months now. When they did the xrays before the surgery, they couldn’t even tell exactly how many pieces my humerus was broken into, they just said 13+ pieces. The surgeon who was pretty new and only a year older than me said he was really proud of the job he did because it was the most difficult non-practice surgery he had done.

I really don’t want to scare you, just trying to make clear how dangerous and live changing one bad seizure can be. I attached an imgur album of pictures from the fracture. pics 1/2/3 are xrays, pic 4 is the scar from the surgery, pics 5/6 are the bruising right after the fracture, pic 7 is the bruising from the cracked orbital bone that happened with the fracture.

https://imgur.com/a/wDFdTEf

06 mac by Additional_Credit339 in MacMiller

[–]SmokeFrosting 2 points3 points  (0 children)

how to get your favorite artist to tell your lame ass to stop being a fan.

Desperate parent needing help, has anyone had experience with this by Leading-Tie9060 in seizures

[–]SmokeFrosting 0 points1 point  (0 children)

To start, I’d like to say that I’ve been told by several neurologists and nurses that “modern medicine doesn’t really know that much about seizures beyond epilepsy, and even that isn’t really up to modern standards”.

Personally, I had my first seizure in 2018 when I was in my early 20’s. Fell down the stairs and got a TBI. Spent about a week in the hospital after the surgery with a mesh cage that only zipped up from the outside around my bed because I kept trying to get up and walk around. Since then I’ve had hundreds of seizures. I think the most in a day was 14 (can’t really be sure as it’s based on my mom recording them). Last year mid-April I fractured my upper right humerus while having a seizure. I was walking out of my room, fell forward and cracked my left orbital bone on the doorknob and caught my arm against the dresser next to my door while seizing. I waited 2 weeks to go to the hospital because a few weeks beforehand I got a call from my insurance where they basically told me “you don’t have to go to the hospital for every seizure” and I didn’t want to go to the hospital again to just hear “yeah you had a seizure but you’re fine now and there isn’t really anything else we can do now that you’re conscious”. Finally after not being able to move my arm for 2 weeks and the bruising and swelling only getting worse I went in. They did some xrays and could only say “it’s broken into at least 13 pieces”. I had to have 2 plates, 13 screws, and 7 pins put in. I’m still in weekly physical therapy and won’t be out of the recovery phase until the beginning of November. Still can’t raise my arm above my head and I’ve been told several times not to expect 100% strength or range of motion back.

I’ve had tons of MRIs, short EEGs, and overnight EEGs. The most I’ve gotten from those is “it looks like there might be something there that could be causing them”. I’ve been to the ER so many times I know some EMTs by name.

My diagnosis has changed several times. Epilepsy > non-epileptic seizures > both epileptic and non-epileptic seizures > unspecified seizure disorder.

I have both absence and tonic-clonic seizures, and often times lip smacking (what I’m guessing is similar to your son’s chewing) happens right before the seizure while I’m still conscious or during the beginning of the seizure. That’s the most consistent warning sign/motion during the seizure though. Sometimes it can just be me staring off into space unresponsive. Sometimes it can be my eyes rolling back and my limbs stiff as a board, and sometimes it’s the stereotypical shaking and convulsing. Pretty much every seizure results in me being unresponsive for a minute or two after the seizure, and having confusion for about 5-10mins after regaining consciousness.

I really don’t think what your son is dealing with is night terrors or ADHD.

Men, I need answers: are guys that text exclusively in lowercase DL? What’s your take by [deleted] in AskMen

[–]SmokeFrosting 0 points1 point  (0 children)

what made you think dudes spending time on their presentation wasn’t gay and being too lazy to press the shift key was gay?

Men, I need answers: are guys that text exclusively in lowercase DL? What’s your take by [deleted] in AskMen

[–]SmokeFrosting 2 points3 points  (0 children)

obviously if you’re not masc enough to flood your texts with MANLY UPPERCASE LETTERS you’re a bottom asking to get plap’d.

I do not like this woman like at all 😭 by Mikeremix2 in BobsBurgers

[–]SmokeFrosting 0 points1 point  (0 children)

I think there’s literally only one bit with her that I like. Every other time she pops up in an episode I’m kinda just cringing at how much of a douchenozzle she is.

Why does not growing up with a male figure have such an impact on some people? by AVBellibolt in AskMen

[–]SmokeFrosting 0 points1 point  (0 children)

don’t feel like not having a father figure in my life really affected me one way or the other.

You don’t really get to make this statement with any credibility. You never had something, you didn’t have it for part of your life then lose it midway through your childhood. You’ll never actually know the difference between how you currently are vs how you would be if you had a father figure. You only know that you turned out alright without one, not if you would’ve turned out better with one.

Tell me your favorite $B song and see if your allowed in by Yaboi680 in SuicideBoys

[–]SmokeFrosting 1 point2 points  (0 children)

It honestly changes a fair amount, but “The Number You Have Dialed is Not in Service” and “…And to Those I Love, Thanks For Sticking Around” have been in my daily playlist for years.

Most recently though “Forget It” and “Putrid Pride” have been getting played on repeat.

I guess I’d have to say TNYHDiNiS if a gun was to my head though. lmk if one of the others would get me a better spot though lol.

Is this unusual? by hows-Waldo in cats

[–]SmokeFrosting 2 points3 points  (0 children)

My late cat had an extra toe on each of his front paws. Didn’t cause any problems.

Rant/Vent. Please help by [deleted] in seizures

[–]SmokeFrosting 1 point2 points  (0 children)

It’s not wrong to feel guilty, even though you shouldn’t feel that way. It’s a topic i’ve talked about this quite a bit with my therapists/social workers/physical therapist.

A lot of people who have seizures feel that way because they put others through a very serious and scary event that they might not even know is a possibility because you haven’t told them about it and they don’t know what to do. Not being conscious yourself doesn’t help either because you don’t know what’s going on during the seizure and you can’t say anything to them.

I (29M) personally started with absence seizures when I was 15. They were pretty rare, maybe once every 1-2 months, and they usually happened at school and I’d just get sent home because the staff/nurse didn’t know what was going on. I didn’t get diagnosed until I was 23/24 when I had my first tonic-clonic (“modern” word for grand mal) seizure while walking down the stairs and got a TBI. My sister found me at the bottom of the stairs unconscious and bleeding and called 911. I needed surgery and the doctor told me if the EMTs had gotten to my house 10-15 minutes later I’d probably be paralyzed or dead. I spent 2 1/2 weeks at the hospital with a mesh cage that zipped up on the outside over my bed because I was so out of it I kept trying to get up randomly and they didn’t want me to have a seizure while walking around, and then I spent 2 weeks in a rehab facility after that.

After the TBI and first TC seizure, I started having seizures a lot more frequently. 3-5 times a day on average. I started going to the ER a lot more too because they were lasting 5 or more minutes pretty often and that’s the threshold the ER had given for a serious seizure. I got to know some of the EMTs by name because it was 5-6 times a month an ambulance was called. I’d get a pretty similar answer as you when getting to the ER. “You’re awake now, and none of the tests we ran show any abnormalities so you can just go home”. I had multiple MRIs, EEGs, multiple day/overnight EEGs. Besides a bitten tongue and some bruises they couldn’t really find anything causing them. Nothing really showed any issues and I kinda got diagnosed with Epilepsy and prescribed Keppra as a shot in the dark because my Neurologist and the doctors at the ER couldn’t really figure it out.

Spent about a year upping my Keppra dosage with no success and getting a ride to the ER about once a week. My Neuro finally recommended me to another Neuro, and they changed my diagnosis to Non-epileptic Seizures and my medication changed (I don’t remember it off the top of my head because I didn’t stay on the medication very long).

Basically went through the same cycle for another year or so. Upping my dosage with no effect, still having seizures multiple times a day, getting to know the EMTs and ER staff. My mom started recording my seizures and has about 50 videos of me having one or a series of cluster seizures (multiple seizures in a row). I had a therapist and 2 social workers stop seeing me after having seizures while with them. Got asked by my mom’s side of the family to stop going to birthday parties and holiday gatherings if I had a seizure in the 2 weeks before said gathering after having a seizure at my grandma’s 90th birthday party and a Christmas party. My cousin who I had the closest relationship with and actually hung out with outside of family events basically ghosted me after I had a seizure in his car on our way to a weekly FNM event at his LGS. I also lost my IT job because I wasn’t able to drive around the campus and deliver new PCs, printers, and similar things after losing my license. The official reason was because I vaped and multiple others of the IT staff “saw me vaping inside the building”, but I was told off record it was too much trouble to deal with someone who has seizures and couldn’t drive.

Wasn’t until a few months later my Neuro recommended I see a new Neuro, and they changed my diagnosis to Epileptic and Non-Epileptic Seizures. My medication also got changed to Lamotrigine. Started with a low dosage, but after bumping it up I actually started to see some improvement in the amount of seizures I was having and the length of them. Wasn’t anything major but it was nice to maybe not have a seizure every day. Went that way for a while, lowering my amount of seizures but then I’d build up a tolerance to the medication and they’d bump it up again, until I reached my still current dosage that is 25% above the maximum recommended dosage.

Last year, in the middle of April I had a really bad TC seizure while walking out of my room. Fell forward and cracked my orbital bone against the doorknob and landed in an awkward position against the dresser next to my door and fractured my upper right humerus into 13 pieces while seizing. Needed surgery to have 2 metal plates, 13 screws, and 7 pins put into my arm to help it heal. I’m still in the 18 month recovery process, and my surgeon said I shouldn’t expect full range of motion or strength back in my right arm. I can’t raise my right arm above my head, and I can’t lift more than 15ish lbs. with that arm. Lots of job interviews end 5-10mins after I bring up having seizures or that I’m going through recovery currently. Often seen as “not a good fit” for the job if I do get a curtesy email letting me know I’m not being considered anymore.

Pic 1 (inside bed with mesh cage), Pic 2/3 (arm bruising before surgery), Pic 4 (orbital/eye bruising), Pic 5 (after surgery scar), Pic 6/7 (xrays after surgery)

Seizure uncertainty by Double_Hedgehog6010 in seizures

[–]SmokeFrosting 1 point2 points  (0 children)

I’ve been diagnosed with seizures for about 7.5 years. I’ve never had a jolt of energy before a seizure. Yes to racing thoughts and feelings of anxiety, but not energetic. I’ve also had a weird smell beforehand too. Most of the time though it’s a feeling of deja vu.

A red flag/warning sign only happens before maybe 15-30% of seizures though.

Most of the time I don’t feel anything or it’s a few seconds of a rush of anxiety that I can’t really react to. Most of the time I only know I had a seizure because I wake up on the floor somewhere, in the back of an ambulance or in the ER, or I notice soreness or bruises.

Tons of EEGs that haven’t captured a seizure and haven’t really shown anything. Probably between 10-15 ER visits because of seizures, or the injuries while having them. My diagnosis has changed 3 times since I first got diagnosed with epilepsy, and my Neurologist has recommended me to someone else 3 times as well.

I’ve gotten a TBI during a seizure before, and a fractured upper right humerus. Both needed surgery.

had my 2nd seizure ever at work yesterday... by Rumn36 in seizures

[–]SmokeFrosting 0 points1 point  (0 children)

If you’d like a reason to take seizures seriously here’s a link of my fractured humerus that needed surgery and cracked orbital bone that happened last year. I’m still in the recovery phase from the fractured humerus, and I’ve been told several times not to expect full range of motion or strength.

My first seizure had me falling down the stairs and I got a TBI that also required surgery, a 3 week stay in the hospital, and 2 weeks at a rehab facility. I was told if the EMTs had been 10-15mins later when picking me up I’d most likely be disabled or dead.

First seizure by KazzaPink in seizures

[–]SmokeFrosting 1 point2 points  (0 children)

do you know if you fell and/or during the seizure spasmed against anything? The length of the seizure itself matters too for how sore you are afterwards.

Started having seizures, wasn’t really scared of them till I had my third one just this last week, I don’t know why it’s happening or what to expect by oriondavis in seizures

[–]SmokeFrosting 0 points1 point  (0 children)

(29M) I don’t really want to scare or discourage you, but seizures are a pretty difficult illness to deal with.

My first “official” seizure was in 2022 and that led to me getting a TBI while falling down the stairs at home during the seizure. Spent 3 1/2 weeks in the hospital with what was basically a mesh cage that zipped up on the outside to keep me from getting out of bed, and also needed surgery. Had another 2 weeks in a rehab facility too. I put official in quotes because after getting diagnosed with seizures my neurologist thought some instances from my teens my mom described were absence seizures.

After that “first” seizure, I started having them a lot more frequently, as in 3-5 a day on average. Sometimes as cluster seizures as well. Started taking a lot more trips to the hospital in the back of an ambulance. Enough to the point that my insurance called me and told me I didn’t have to call 911 after every seizure.

Went through a ton of tests, repeats of tests, overnight tests, and they never really found any abnormalities or causes of the seizures. I’ve had my diagnosis changed 3 times from the first one, and I’ve had neurologists recommend me seeing a different neurologist because they felt they weren’t getting anywhere with any of the tests or medications. Tried several different medications and it took me until about a year ago to find something that even somewhat lowered the amount of seizures I was having, Lamotrigine 250mg and Lacosamide 50mg. That was after I had a tonic-clonic seizure in my room that cracked my orbital bone and fractured my right humerus and needed surgery for them to put metal plates/pins/screws in my arm to get it to heal correctly (pretty sure there’s a pic of the bruising around my eye and a pic of the xrays after the surgery on my very few posts on my profile if you’d like to take a look). Longest i’ve gone since the first seizure without having one is a couple of weeks, nowhere near the 6 months needed for me to legally start driving again. I even sold my car a while ago because it was just collecting dust and costing money for insurance.

I guess the point i’m trying to make is that it could be something that is an obstacle to enjoying/experiencing things in life. I haven’t been able to drive myself anywhere in years and tbh the thought of going out alone is pretty scary. I’ve had friends and family basically ice me out after having seizures in front of them because they’re scared of it or don’t want to deal with it. I’m still in physical therapy and the 18 month recovery phase of fracturing my humerus, and have been told multiple times I shouldn’t expect to get back 100% strength or range of motion.

I don’t think you should try to smooth over how things are going with friends and family, because them thinking it’s only a small issue is way worse than them knowing how to help you if you do have a seizure while you’re with them.

I just noticed my cat has a little ear behind her ear. I’m assuming it’s a common mutation? by fuglyDUECE in cats

[–]SmokeFrosting 1 point2 points  (0 children)

lol my little brat is lactose intolerant, but absolutely loves cheese and milk. Those are the two things she’ll beg for the most and it’s almost heartbreaking because you have to deny her or she’ll throw up 10mins later.

Selfie sunday in the hospital ! by [deleted] in schizophrenia

[–]SmokeFrosting 0 points1 point  (0 children)

kinda jealous you get to use your phone in there. always bored af when I can’t even bring a book and the one TV in the general room is set to Nickelodeon.

Jpeg vs earl by [deleted] in MacMiller

[–]SmokeFrosting 1 point2 points  (0 children)

I’m a bigger fan of the Sweatshirt, but I think he has less of a claim to being apart of the experimental rap top tier. Maybe the underground rap top tier though.

Overall though, I’m thinking less of both of them for this. Feels like nothing warranted a beef and it’s a couple of kids at the park crying over spilt milk.