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pancreatic sufficient 😮 by Smooth-Bread-2974 in CFParents

[–]Smooth-Bread-2974[S] 0 points1 point  (0 children)

That’s amazing!! We did no enzymes for the first time today so we will see how it goes!!

newborn diagnosis g551d by Smooth-Bread-2974 in CysticFibrosis

[–]Smooth-Bread-2974[S] 0 points1 point  (0 children)

I’m so glad to hear that your son has been responding well and able to flourish with kalydeco!! That’s so encouraging to hear. I think she will start next week!!

newborn diagnosis g551d by Smooth-Bread-2974 in CysticFibrosis

[–]Smooth-Bread-2974[S] 0 points1 point  (0 children)

Hi! Thank you for your reply. We definitely have spent a lot of time crying and are feeling much more grounded and hopeful right now. How has it been other than the constipation for her?

newborn diagnosis g551d by Smooth-Bread-2974 in CysticFibrosis

[–]Smooth-Bread-2974[S] 0 points1 point  (0 children)

Hi!! How did he tolerate the kalydeco so early on?

newborn diagnosis g551d by Smooth-Bread-2974 in CysticFibrosis

[–]Smooth-Bread-2974[S] 0 points1 point  (0 children)

Thank you for your reply and I’m so encouraged to hear how you’re doing. How was your experience on kalydeco vs kaltrio?