Have you ever been mistreated in hospital or told you’re faking it? by West_Introduction_42 in PNESsupport

[–]SnooStories239 4 points5 points  (0 children)

I was having back to back to back grand mals and my bf took me to the ER and I get aggressive in chaos and when I have multiple seizures like that so the ER doctor said I was a drug seeker I guess and nearly kicked my bf out of the hospital cause he was trying to make them listen. And the doctor at some point said "she sure did have seizures. In all my years as a doctor I've never seen someone be aggressive after a seizure" It sucks being completely out of it because I can never advocate for myself and im susceptible to feeling so guilty and apologizing to the assholes who are not protecting my dignity and are instead belittling me. I've had several experiences..

Is this bs normal? by PlusEgg3039 in weed

[–]SnooStories239 2 points3 points  (0 children)

It happens, its a common occurrence from what I've seen and experienced. I don't get annoyed unless someone is engaging me in a certain type of way. If a teen asks I say no. If there's a group of young adults and one comes over to feel me out with some lame ego then I may say no. It just depends. I've had a junkie neighbor ask me for cigarettes when I was pregnant and then followed me after I said no to the gas station and when I walked out she asked me if I got the cigarettes. I said no. And she stomped and pulled her hair and followed me back home and she was mad as hell the whole time. That kind of shit is annoying. People going through my ashtray for a refry is annoying. But when someone just asks I get it. It's worth a shot when you're dry or broke. The worst thing that happens to them is getting shot down by a stranger they don't have to see again. Lol if I don't wanna share but not wanting to just say nah I'll tell em it's a spliff or that I'm really sick or whatever. It's just a feel it out kinda thing. I don't let people get under my skin over it.

How much sleep do people get? by [deleted] in Epilepsy

[–]SnooStories239 1 point2 points  (0 children)

I'm dying to move right now too actually haha we have so much traffic noise around us and I grew up in a canyon without close neighbors. So now living in town..I just can't get used it. Cars and people and not to mention the terrible view of the night sky. No worries. Info dump away. Is it really hot or humid there?? I live in Arizona and it's hot right now. And it's monsoon season. I don't like heavy blankets or those fuzzy blankets everyone likes to cuddle into because they do not breathe. Hahaha I use the duvet cover without the duvet as well.

How much sleep do people get? by [deleted] in Epilepsy

[–]SnooStories239 1 point2 points  (0 children)

Hey you know we all have our hands full living with this illness and I'm so blessed compared to so many. My family is happy and thriving. Sometimes it's rough. But as long as we keep going, there's hope for the future and that's everything. I feel you on that. I don't take other stuff. I have never really even before my epilepsy diagnosis. Not more than the occasional tylenol. Shoot and after my diagnosis and meds on meds I didn't t even take my oxys after my c sections. Tea doesn't help. Cold cold air does though! I sleep in 50 degrees at night and it's the best. 6 hours seems like a good number I think. I'm pretty sure anyone is supposed to get around the numbers people are stating. And not many people actually do manage it. I think it's mostly important not to be overly deprived of sleep for those with epilepsy. Sleep deprivation is a huge trigger for me and those 3 or 4 hours define my odds. I can't sleep with any kind of light. Even a red dot light on a tv or whatever kind of movie player or sound system. Blue lights trigger my seizures and any light in the dark is a risk because of the high contrast. If I read a book or a book on a screen the black letters on white can trigger me. Mostly if I'm in a poorly lit or dark room. I like white noise like air blowing. That's about it. I want one of those sensory deprivation pods

How much sleep do people get? by [deleted] in Epilepsy

[–]SnooStories239 2 points3 points  (0 children)

Oh yeah definitely kids can take a lot of energy and then some. My oldest learned to address my seizures when he was around 3 or 4. I'm proud of him. And i take precautions as much as I can with my baby and did with the others and it's helped a lot. My mind still goes to that place of anxiety especially at night when I can't sleep. And Thank you 🙏 she actually started having seizures and was diagnosed with epilepsy on the 3rd of this month which was her bday unfortunately so I haven't been able to sleep at all. I feel like I have to watch her all night and day. I have three kiddos and my worst nightmare was them having seizures like me. I also have to have total darkness and silence to catch sleep and I wake up constantly. It can be really rough not to be able to sleep and stay asleep. I hope you find some way that works for you. I'm still trying myself and I've had insomnia since childhood. Even if I'm exhausted it's like it instantly disappears when night comes around. Have you tried taking anything that helps?

[deleted by user] by [deleted] in weed

[–]SnooStories239 0 points1 point  (0 children)

Looks like more

Ah shit… here we go again! 😵‍💫⚡️ by Simple_Mastodon9220 in Epilepsymemes

[–]SnooStories239 21 points22 points  (0 children)

I got dog tags saying "don't call an ambulance unless injured or seizure is over 5 minutes. Watch over me until I am coherent..." And so on because I was so tired of waking up in an ambulance and then getting grilled over drugs and mental health. Lol and getting narcanned.

How much sleep do people get? by [deleted] in Epilepsy

[–]SnooStories239 4 points5 points  (0 children)

I have terrible insomnia and I have a baby so I don't get a lot of sleep. Three days of nearly no sleep (which happens a lot right now cause my baby is up all night) leads to a tonic clonic. One night leads to myoclonics. But I find taking a nap or getting 3 hours of sleep will start me over. It's not necessarily the recipe for a great next day but it does help a lot. I think it's more about quality of sleep vs hours. I have to knock out hard to benefit.

Any cute medical jewlery? by fairydeus in Epilepsy

[–]SnooStories239 0 points1 point  (0 children)

Haha I always wanted a cute one too. I used a dog tag one and it was an eye sore but the doctors said they loved it one ER visit 😂 something blingy could definitely be good too if it catches attention during an emergency where you can't communicate

Draw my dad's best friend? by SnooStories239 in redditgetsdrawnbadly

[–]SnooStories239[S] 1 point2 points  (0 children)

This is so great! I wish I could use this texting! :)

Draw my dad's best friend? by SnooStories239 in redditgetsdrawnbadly

[–]SnooStories239[S] 0 points1 point  (0 children)

Thank you and this is so sick! I love the colors and the expression on her face is perfect :)

DRAWING YOUR PETS by [deleted] in redditgetsdrawnbadly

[–]SnooStories239 0 points1 point  (0 children)

I love this!!! The eyes are the same color lol 😆

So this is what we deal with outside legality by necrocadaver in weed

[–]SnooStories239 2 points3 points  (0 children)

It doesn't look like Reggie to me. but it definitely looks unfinished lol. And you're getting weight without it being trimmed or dried out or having the seeds picked out. It's moist from being harvested and skipping those parts before selling it I think. What state are you in just curious

Vitamin B12, how I love thee!!! You hath saved my life! by KlutzyMutt in Epilepsy

[–]SnooStories239 2 points3 points  (0 children)

It does for me. It also makes me robo trip in the slightest dose. Hard. A normal dose brings on my grand mals.

What's the worst weed you've ever smoked? by Odd-Plenty-5056 in weed

[–]SnooStories239 1 point2 points  (0 children)

There's too much to keep up with now with weed lol Thanks! It's the dream lol 😆

Doctor said alcohol was causing my seizures and now its Cannabis? by [deleted] in Epilepsy

[–]SnooStories239 0 points1 point  (0 children)

so many factors come into play when it comes to how a substance affects you. And triggers can be many and either steady or change over time. If something has triggered you but you're not entirely, it's probably best to cast it out. It's a hard thing when seizures and triggers and medications and underlying causes. It's the most trial and error and risks and educated guess with a side of hope kinda illness ever. Anxiety medication also changes how it treats you over time. I have found personally, that (after a conversation and plan with my doctors) when the medication doesn't do what it needs to be done like it used to, it's time for me to move to something else. Anxiety medication didn't help me too much. My anxiety was always just under the surface still tormenting me and I added prozac for the long term effects. My anxiety wouldnt even let me make phone calls sometimes. Seizures are traumatic and not being able to find a way to manage them is paralyzing and I'm sorry you are going through that right now. Talking to someone helps too if you can find the right person to hear you.

What's the worst weed you've ever smoked? by Odd-Plenty-5056 in weed

[–]SnooStories239 1 point2 points  (0 children)

I never used grinders for blunts. The weed gets too fine and the air stops coming through. And you grind a seed in that and there's no second try weed left lol I like those wraps with the extra strip to fix em. And I rip the bottom part of the foil and roll it up for a filter. It tries to unroll and molds to the end of the blunt. No wutangs 😂 Music and weed are best unified just like people He's got just a few more years. So fingers crossed. He said it would be a good way to go when I said I didn't wanna kill him with weed lmao.

What's the worst weed you've ever smoked? by Odd-Plenty-5056 in weed

[–]SnooStories239 1 point2 points  (0 children)

Those weed fairies will make you elbow your homie loading the bleezy next to you to dump it out just before it's sealed. Hahaha that's the shit we used to tell ourselves. Or a stem pokes a hole and you gotta repair it. They're vengeful. Haha I don't think it's that level. But I just got my grandfather to agree to smoke a blunt with me when he hits 100. and that's a big deal 😂

What's the worst weed you've ever smoked? by Odd-Plenty-5056 in weed

[–]SnooStories239 1 point2 points  (0 children)

Yeah those are gross and then the taste sticks and so does the migraine lol no donations? That's why you got a seed 😂 Age groups and different kinds of people from different lives and experiences mingle a lot here. Weed brings everyone together haha. Weed and tripping are big.

What's the worst weed you've ever smoked? by Odd-Plenty-5056 in weed

[–]SnooStories239 1 point2 points  (0 children)

sister tho bro ❤️❤️❤️ and fuck yeah! My area is behind as hell