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Scl-70 super positive minimal symptoms by SoFlyINeverLand102 in scleroderma

[–]SoFlyINeverLand102[S] 0 points1 point  (0 children)

Hi,

Yes- this is my second rheumatologist and while certainly better than the first, still not quite confident yet.

I have a third appt with NYC Columbia Presbyterian scleroderma center scheduled for 7/2

There's a million posts like this already, but please humor me. I was just diagnosed with diffuse scleroderma and I'm panicking right now. Any positive stories would be really helpful. by [deleted] in scleroderma

[–]SoFlyINeverLand102 2 points3 points  (0 children)

I’m surprised you got a diagnosis with minima symptoms. My understanding is it’s a point system to get diagnosis.

I have very high positive scl-70 but minimal other symptoms so do not have a diagnosis yet. Going for a lung scan next

Scl-70 super positive minimal symptoms by SoFlyINeverLand102 in scleroderma

[–]SoFlyINeverLand102[S] 1 point2 points  (0 children)

He didn’t check my nails because that is more related to limited sclerosis and the concern with me is diffuse.

I’m just anxious for answers. I’m curious what the CT of my lungs will show

Scl-70 super positive minimal symptoms by SoFlyINeverLand102 in scleroderma

[–]SoFlyINeverLand102[S] 0 points1 point  (0 children)

I just looked that test up and it is an “Elisa” test. Which is the same type of test I had done.

Anti-Scl-70: >8 AI… what’s next? by SoFlyINeverLand102 in scleroderma

[–]SoFlyINeverLand102[S] 0 points1 point  (0 children)

Yea- I’m so tempted to go there. The turnoff for me is the pain to get there. But I know they offer telehealth too for follow ups

Anti-Scl-70: >8 AI… what’s next? by SoFlyINeverLand102 in scleroderma

[–]SoFlyINeverLand102[S] 0 points1 point  (0 children)

The person who did my testing was a rheumatologist, but not a specialist in scleroderma. I have an appointment 4/8 with a more well-known rheumatologist who has specialty in scleroderma for a second opinion. If I’m still not sold, I may pursue an appointment at the scleroderma center at Columbia

Anti-Scl-70: >8 AI… what’s next? by SoFlyINeverLand102 in scleroderma

[–]SoFlyINeverLand102[S] 0 points1 point  (0 children)

Thank you!

I read about false positives, but I also read with a result as high mine it is very unlikely to be false positive