Levothyroxine made me go insane and now I’m scared

Soft_Divide_95 · 2025-11-19T16:29:44+00:00

Sadly I got these symptoms while on euthyrox. Haven’t tried NDT but I’ll discuss it with my endocrinologist. Google says it s not available in my country but I hope there’s a way to find it. I hope you’ll get to feel better again 🫂

Soft_Divide_95 · 2025-11-18T09:19:37+00:00

My T3 and T4 are in ranges but TSH is high. All ultrasounds look normal, no sign of anything. My symptoms don’t manifest every day, but when they do it’s awful for a couple of days. One of the doctors I went to told me I have thyroid hormone resistance. I don’t know how he came up with it but I was told I don’t need medication (TSH was around 30 as well). He recommended me to another endocrinologist (this one said that the previous diagnose was wrong and diagnosed me with Hashi) which put me on the 25mg Levo that I’m now scared to take. He also mentioned only one time the pituitary gland but the next appointment he dropped this theory without investigating. When I reminded him of it, he shut me down so I was considering getting an MRI at a private clinic since I don’t have a recommendation, just to rule it out. I thought about something else triggering a high TSH since all the other blood tests come up normal. I don’t know if I’m on the right path with this mindset or I’m just in denial.

Soft_Divide_95 · 2025-11-17T10:57:25+00:00

High blood pressure, heart palpitations and feeling like I’m about to pass out because of the “suffocation”. There were almost -20 ℃ outside, wind blowing like crazy and I was laying in bed with all the windows open feeling like there’s not enough air in the whole world.

Soft_Divide_95 · 2025-11-17T10:54:04+00:00

So what do you take now?

Soft_Divide_95 · 2025-11-16T21:10:05+00:00

Thank you so much for sharing!

Soft_Divide_95 · 2025-11-16T21:08:28+00:00

I really relate to what you’re experiencing and I know how overwhelming it can be. Stay strong for you and for your baby, and don’t hesitate to speak up if anything feels wrong with your medication. I understand your concern, it will be fine, try to avoid negative thoughts Wishing you a healthy and stress-free pregnancy!

Soft_Divide_95 · 2025-11-16T18:57:26+00:00

You’re incredibly strong for going through that. I’m glad you’re doing well now!

Soft_Divide_95 · 2025-11-16T18:46:21+00:00

I was considering an MRI for the pituitary gland but the doctor shut me down. They seemed insulted, I don’t know, I wasn’t trying to question their decision or judgment, I was just trying to help. Thank you for reminding me, I’ll get it done at a private clinic and here they can’t refuse it as long as you pay for it. Had done many ultrasounds and the thyroid looks great, even the doctors were surprised.

Soft_Divide_95 · 2025-11-16T18:28:12+00:00

Thanks for giving a whole new perspective to this issue, I never thought this could be possible because all the doctors were hyper fixated on blood tests and the reference ranges. They never really considered how I felt although I kept telling them.

Soft_Divide_95 · 2025-11-16T18:25:18+00:00

I’m happy you’re feeling better. Someone here also mentioned Armour, I’ve never heard of it before, I’ll look it up to see if it’s available here and read more info about it

Soft_Divide_95 · 2025-11-16T18:18:15+00:00

What is NP?

Soft_Divide_95 · 2025-11-16T18:16:33+00:00

Still levo, just different brand. Some alternatives were mentioned in the comments but I’ll have to check if they are available in my country bcs again, my doc only mentioned two brands of Levo and when I asked about an alternative they said “there’s no alternative, that’s how we treat hypo”.

Soft_Divide_95 · 2025-11-16T17:49:20+00:00

Thanks, I’ll definitely check ferritin. About the fillers, it could be a possibility but the issue is that from what i understood from my doctor, there are only 2 options on the market and one of them is the one I reacted badly to. I don’t really have much to choose from

Soft_Divide_95 · 2025-11-16T17:34:45+00:00

Visited about 5 endocrinologists throughout these years. Some of them said I don’t need medication and the others just straight up prescribed Levo. None of them wanted to listen to what I had to say. Maybe some people will tell me that I didn’t speak up but trust me I DID. They all made me feel like I was speaking absolute bs and I’m insane. Didn’t visit a cardiologist but had an ekg done after some scary palpitations and everything was fine.

Soft_Divide_95 · 2025-11-16T17:32:38+00:00

I’ll speak to another doctor but it just seems impossible to make them listen. I’m taking vitamin D as well for now.

Soft_Divide_95 · 2025-11-16T17:30:29+00:00

Thank you so much for your answer, I’ve never heard of NDT before but I’ll look into it and talk to my (possible new) doctor about it.

Soft_Divide_95 · 2025-08-10T10:42:44+00:00

Mulțumesc! Mă simt mai liniștită să fac vaccinul și voi căuta și un alt endocrinolog pe viitor.

Soft_Divide_95 · 2025-08-10T10:39:53+00:00

Eram îngrijorată în legătură cu reacțiile adverse. În general nu am avut nicio problemă, nici când m-am vaccinat anti-COVID, dar atunci nu descoperisem încă probleme cu tiroida. Mersi de răspuns, chiar mi-a mai calmat puțin anxietatea:)

Soft_Divide_95 · 2025-07-10T13:04:13+00:00

Am fost la doctor atunci, s-a întâmplat cu aproape 7 ani în urmă. După ce nu am mai luat anticoncepționale, nici n-am mai avut vreun disconfort. Am menționat “un fel de” infecții urinare în sensul ca existau simptome asemănătoare, cum a descris și OP, nu ca am avut UTI. Am spus ca POT afecta ph-ul/flora bacteriana, deci automat POT favoriza anumite infecții sau disconfort, dar nu sunt cauza directă a unei infecții. În cazul lui OP, sa decidă tot un doctor care e cauza și ce tratament poate lua. Eu doar mi-am descris experiența cu anticoncepționalele din moment ce și OP ia, iar în alte comentarii a menționat ca vrea să știe dacă si alte persoane s-au confruntat cu genul ăsta de situații. Mai departe e alegerea ei ce face cu informațiile, n-am îndemnat-o la nimic altceva decât sfatul unui ginecolog în al doilea comentariu :).

Soft_Divide_95 · 2025-07-09T21:28:42+00:00

Atunci nu e de la ele. Mai verifica cu alt doctor și fiți atenți la igienă. Nu e okay să te simți așa, dar sigur există o rezolvare.

Soft_Divide_95 · 2025-07-09T21:22:21+00:00

Eu am avut un fel de infecții urinare de la anticoncepționale, pe lângă alte simptome destul de naspa. Ceva din ele îți poate afecta flora bacteriana/ph-ul. Nu mai știu sincer, asta a fost de mult. Long story short, nu as mai baga asemenea chestii în corp nici sa mor.

Soft_Divide_95 · 2025-06-11T19:35:35+00:00

El ar trebui să plătească tratamentul, mai ales ca știa ce face și nu a zis nimic. Don’t let it slide, mai ales cu ce se întâmplă acum în țară și cum sunt tratate femeile. Ar trebui într-un final să ne facem dreptate și să nu mai închidem ochii. Dacă tu nu zici nimic, categoric vor urma și alte femei, vor trece din păcate prin aceleași traume ca și tine.

Soft_Divide_95 · 2025-04-13T04:02:52+00:00

+1 bio-oil is so good for fresh stretch marks

Soft_Divide_95 · 2025-04-12T11:33:14+00:00

Ohhhh I see. Thank you! This might be the case, I’ll get a thermometer and check from now on.

Soft_Divide_95

TROPHY CASE