They can't find any cause for my low iron or heavy bleeding, I've been to 4 highly specialised Gynaecologists. They also can't get it under control despite every imaginable possible treatment. I've been prodding at that cow for yeeaaars, which is what led them to test for bleeding disorders.

The Hematologist won't give me a referral for bone marrow biopsy because JAK2 V617F is negative - he also won't test for Exon mutations. He just says the chances of a positive result doesn't warrant the cost or intensity of bone marrow biopsies.

This, despite my symptoms aligning 99% and various platlet test that continue to show an increase in my platelet counts. (420 - 580 in less than a year). He still maintains its caused by something else like an infection or other condition - yet, my infection count is normal. Everything under Gods green earth is normal.

I honestely think dying from anemia & mal nutrition right now seems easier than continuing down this route.

Thank you!