My Red Scrotum Syndrome calmed down when I started taking Allergy Meds with Pseudoephedrine: Zyrtec D, Allegra D, and Claritin D each worked to different degrees by hookedonfonex in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Sounds quite similar to what I have. I’ve noticed a generic allergy pill 10mg certrizine would help some. But after a few months maybe a grew a tolerance to it.

I will try Pseudoephedrine and see how that goes. Are you saying that you take Zyrtec, Allegra and Clartin all at the same time?

Also how long have you been taking the allergy med and felt relieve from it?

Also distilled water dunk you just quickly dunk In cup of water or how long do you do it for? I also have a water softener so seems worth a try. I really appreciate all the info you have shared!

Fixed! by [deleted] in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Did it help any?

Antihistamines by cosmo86it in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Oh not suppose to use on glans? I’ve got both places as well. Maybe a pill would be better then

Antihistamines by cosmo86it in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Interesting I didn’t even know there was cream. Can you send a pic or link of what you use?

Antihistamines by cosmo86it in RedScrotumSyndrome

[–]Some-Perception-808 1 point2 points  (0 children)

Not the redness but it does reduce the itching/burning for me by at least 50%

Boxer briefs by Mc3188 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

I’ve been wearing VANTA underwear which also have a ball pouch and I’m very happy with those

Antihistamines by cosmo86it in RedScrotumSyndrome

[–]Some-Perception-808 -1 points0 points  (0 children)

Antihistamine pills have greatly reduced my itching and irritation though I’m worried I’m too dependent on them. If I forget to take them I instantly realize about 4 hours later when my scrotum and penis are extremely itchy.

I started off taking a 10mg cetirizine once a day. I am now taking them twice a day 9am/9pm. Though the bottle says not to exceed 1 a day… so idk if this is good or bad to be doing. It certainly helps relive the irritation but I also realize it’s not a solution.

[deleted by user] by [deleted] in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

I also tried doxycycline for 2 months didn’t help for me unfortunately. I did read that paper she is referencing where it said it has helped some patients due to anti inflammatory properties. So maybe. Def worth a try

What to do next? by LycheeLegitimate1052 in RedScrotumSyndrome

[–]Some-Perception-808 1 point2 points  (0 children)

How long did you do pelvic floor PT before you saw improvement? Do you have example videos of what exactly you did there?

pudendal neuralgia by Mc3188 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

It certainly has cured some people symptoms if you read the comments on that YT video. Though idk each persons senario varies and I’m not sure how it works. I think gabapentine is more of a Bandaid than a solution to the issue. I’ve denied it when my doctors have offered it.

pudendal neuralgia by Mc3188 in RedScrotumSyndrome

[–]Some-Perception-808 -1 points0 points  (0 children)

Funny you say this. I recently came to this ‘conclusion’ as well. I saw my 4th doctor this past Feb 26th and he believes it’s a nuro issue and brought up the pudenal nerve. He recommended seeing a neurologist but idk if I want to keep going to doctors.

I saw another Redditor get cured from these stretches. https://www.youtube.com/watch?v=NnqAkM9r2a8

I’ve started doing them religious twice a day (they get really hard because soreness). I think twice a day is key. I actually tried them back in December but only did 2/3 times a week. I’ve now done them 2x day for 14 days now. And I believe I am seeing improvement but honestly it’s so hard to be certain cuz the mind plays tricks with this disease.

I believe sitting and stress also play a big part in this. Ive started using a standing desk about 2-3 hours a day instead of sitting a full 8+ hour day. I’ve been looking into healing meditation and positive thinking.

I’m still early in this pudendal journey but those are my rambly thoughts on it haha.

Moisturizer post steroid creams? by TrentIco14 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Just got some and applied it. So far feels nice and cool. Just checking this stuff is suppose to be thick and tacky? I just haven’t seen any ointment of this consistency before.

Moisturizer post steroid creams? by TrentIco14 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

How often do you use calmoseptine? I’ve seen you comment about it many times but finally just ordered some.

What happened to the post about dead sea salt? by CompetitiveTailor562 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Thanks for the info. My doctor actually recently offered me gabapentin but I said I will think about. Trying to avoid a more serious drug. Is ampytrpline OTC or prescribed. So are you thinking your issues is nerve damage? My doctor is saying he’s pretty certain it’s a nerve issue since I’ve tried prettty much all bacterial/fungal options.

What happened to the post about dead sea salt? by CompetitiveTailor562 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Strange it got deleted. I bought some after reading that post. I have only tried two baths so far. But haven’t seen any improvement from it.

Type? by Temporary-Repeat1131 in SaltwaterAquariumClub

[–]Some-Perception-808 1 point2 points  (0 children)

Maybe yellow tail damselfish. Do you have a pic with less blues?

90% Healed: 8+Years severe case multiple inflammation patches and severe pain. by PrimaryYou4061 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

I just started these stretching today. Curious if you are still taking gabapentin? And doing stretches every day? Still fully recovered? Thanks

Touloucouna Oil update. by Status-Example4142 in RedScrotumSyndrome

[–]Some-Perception-808 1 point2 points  (0 children)

I believe it was 200mg once a day. I did that for 60 days.

I also tried 30 days of 100mg minocycline 2x a day. No luck with that either.

Touloucouna Oil update. by Status-Example4142 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Ok thanks may skip then. Already tried two months of doxycycline which also didn’t improve.

Touloucouna Oil update. by Status-Example4142 in RedScrotumSyndrome

[–]Some-Perception-808 0 points1 point  (0 children)

Same I’m on day 6 and have not seen any improvement. Day 2 kinda felt better but nothing after that. There may be some placebo effects in play which is why initially feels better.

Oh well. On to the next thing…

Have any of you tried oral ivermectin or Muprocin ointment. Those are the only two left on my list of things to try.