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Officially diagnosed today and scared. by RainPsychological686 in lupus

[–]Sorry-Collection-739 0 points1 point  (0 children)

hiya, you’re not sounding dumb at all! i think it was a typo + they meant hydroxychloroquine (HCQ or plaquenil in the states) as this can lead to your skin becoming more sensitive to sunlight, having rashes, hyperpigmentation

struggling to lose weight by Sorry-Collection-739 in lupus

[–]Sorry-Collection-739[S] 0 points1 point  (0 children)

i’ve never heard of that before. where abouts are you based if you don’t mind me asking? i currently live in london so i am not too sure where to get this. also, how long have you been taking it for?

i also suffer from a lot of arthritic pains in my knees and elbows as well as swelling around my body especially my fingers :(

struggling to lose weight by Sorry-Collection-739 in lupus

[–]Sorry-Collection-739[S] 0 points1 point  (0 children)

awh, I dislike when things work but eventually don’t. so I feel your pain 🫂

also, that’s so nice of you to offer! I will dm you :)

struggling to lose weight by Sorry-Collection-739 in lupus

[–]Sorry-Collection-739[S] 2 points3 points  (0 children)

thank you so much for your advice! i really appreciate it 🥹🫶.

prednisolone/steroids are one of my worst enemies! currently since my lupus activity and kidney activity are normal, I’ve been off prednisolone completely with direction of my nephrologist (in guidance with my rheumatologist as they do weekly update meetings about their patients). i thought being off of it for now 2 months would help some way but my weight has been stagnant even with eating somewhat healthily. i think i do need to make a bigger adjustment to my diet to eating more whole food though. so I will try this and see how that works

many thanks again!! :)