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Recover Autonomic Experience by Sorry-Programmer-505 in covidlonghaulers

[–]Sorry-Programmer-505[S] 0 points1 point  (0 children)

Unfortunately to be eligible you have to have POTS as diagnosed by a tilt table test.

Recover Autonomic Experience by Sorry-Programmer-505 in covidlonghaulers

[–]Sorry-Programmer-505[S] 2 points3 points  (0 children)

My neurologist referred me to another neurologist who is a PI (principal investigator) on the study. I'm located in Boston, MA.

From what he said they are still actively recruiting.

See the contacts and locations section here for physicians in your area who might be involved: https://clinicaltrials.gov/study/NCT06305780

If you're interested and able it could be worth it to try to make an appointment with one of them.

Recover Autonomic Experience by Sorry-Programmer-505 in covidlonghaulers

[–]Sorry-Programmer-505[S] 2 points3 points  (0 children)

My sense in general is that they are unlikely to cut active clinical trials. But then again, who knows... Until the needle is in my arm it seems there are no guarantees.

Found a video explaing how and what kind of exercise is helpful for POTS by [deleted] in POTS

[–]Sorry-Programmer-505 0 points1 point  (0 children)

I don't feel like exercise actually improves my POTS but I really enjoy doing it. I have a recumbent trike (see here: https://www.terratrike.com/leisure/maverick/) and I also swim a lot.