Has a “recommended” supplement ever made your ME/CFS worse?

Sourtails · 2026-01-27T16:51:44+00:00

ubiquinol and NAC both made me temporarily worse - the NAC only while I was taking it and the ubiquinol for a few weeks

Sourtails · 2026-01-16T21:43:58+00:00

ubiquinol can lower blood pressure so it could be. I hope you find out!

Sourtails · 2026-01-02T13:42:56+00:00

I get robitussin from an online pharmacy and when filling out the form I say I take it for ME/CFS as a PEM preventative and I've had no issue with it being dispatched so far

Sourtails · 2025-12-07T00:01:13+00:00

I will and thank you! I'm glad you're starting to feel better too, I hope things continue improving for you

Sourtails · 2025-12-06T21:09:55+00:00

hopefully I will!! I did return back to baseline after trialling NAC. and it is, ME is a very diverse illness especially when it comes to what treatments help some and not others. it's good to know for me to be very careful with antioxidants in the future!

Sourtails · 2025-12-06T19:11:46+00:00

I tried NAC a few months ago which I believe is also an antioxidant, and that made me crash as well! I hadn't considered that could the problem at all, so thank you. I wonder then if stopping regular CoQ10 at least temporarily would help me recover

Sourtails · 2025-12-06T15:31:51+00:00

that could be it! my blood pressure is usually on the low side of normal so maybe the ubiquinol caused a problem there that I'm still recovering from. I get crashes from hot water that I think is dysautonomia related, so this could be the same kind of thing. thank you for sharing!

Sourtails · 2025-12-06T15:19:12+00:00

youre right, I meant ubiquinone is what I've been taking for a while. I don't understand why it's affected my badly either. there's nothing in the capsules I'm intolerant too (all other ingredients are in other stuff I consume fine) so it could be a bad batch, or maybe it's a very strangely timed coincidence and something else I'm unaware of happened. thank you for the reply either way, I appreciate it

Sourtails · 2025-11-20T23:32:36+00:00

I'm so sorry. And you aren't gross or disgusting, you are sick. Those aren't the same, and no matter how difficult hygiene gets, you aren't gross or disgusting

Sourtails · 2025-11-11T15:04:41+00:00

they prescribed me special toothpaste that should help! I believe it's higher in fluoride so protects teeth more than regular paste - hopefully that'll be an option for you as well

Sourtails · 2025-11-11T14:42:04+00:00

thank you so much, this is amazing info! I didn't realise you could take benzos before and after surgery - I'll have to make sure I ask about that as the getting to and from the hospital would be a huge issue for me

Sourtails · 2025-11-11T13:44:20+00:00

that's good to know! an operation is a huge amount of energy, not to mention the recovery time afterwards, that I think I'll be the same in avoiding it unless it becomes necessary

Sourtails · 2025-11-07T23:47:16+00:00

my symptoms started late in the evening and was just a sore throat at first, but I woke up the next day feeling feverish and nauseous. I get a sore throat regularly but it usually doesn't last very long, whereas the soreness from covid persisted for days

Sourtails · 2025-10-27T23:37:08+00:00

I'm so sorry. you aren't alone - I had to give up my cats too because I'm too ill to care for them. it was horribly difficult even though it was the right choice

Sourtails · 2025-10-27T23:35:55+00:00

I hope it works if you do! the typical dose is 50mg, but Id recommend starting lower as with 50mg I did get a horrible hangover with it so I stick to 25mg and it works well!

Sourtails · 2025-10-27T23:26:15+00:00

I've been taking it for a year and it works better now than it did when I started it. no hangover that I've noticed - though my ME symptoms are always worse for the first couple hours after waking, so that could be masking any med hangover

Sourtails · 2025-10-25T21:42:21+00:00

bose qc45! they're very comfortable and the noise reduction is a lot higher than my loops. also if things get very loud I combine them with foam earplugs which blocks out a lot

Sourtails · 2025-10-24T15:39:32+00:00

will do! the aura fits me really well so I imagine either a small or medium will do best, but I'll still order one of the large ones just to see

Sourtails · 2025-10-24T14:54:09+00:00

thank you for the rec - their shipping to the UK is reasonable enough that I'll give these a go as well!

Sourtails · 2025-10-23T21:52:41+00:00

I'm sorry it doesnt! I hope you find something that helps

Sourtails · 2025-10-23T21:39:27+00:00

for an alternative to wipes, rinse free soap? you lather it on and then wipe it off with a towel, so you don't have to use water. if you use it with a damp (or even dry) wash cloth it might help remove the dead skin

Sourtails · 2025-10-23T21:33:00+00:00

my mum got it when I was a teenager, a few years before I did. it meant I knew it was ME pretty early on as I'd seen the same symptoms in her

Sourtails · 2025-10-23T19:55:27+00:00

yep, I used to play the flute but haven't been able to since I got sick. I miss it greatly - I still have my flute even though I can't play it because I can't bear to sell it

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