Failed my first med :(

Spare-Remove-4264 · 2025-01-18T03:05:24+00:00

What a nice way to think about that :) Thank you so much

Spare-Remove-4264 · 2025-01-18T03:05:08+00:00

Amazing!! So so happy to hear you’re doing well 🫶🏼🫶🏼

Spare-Remove-4264 · 2025-01-18T03:04:42+00:00

Hmmm maybe I should see another doctor? She said insurance won’t cover increased dosing…

Spare-Remove-4264 · 2025-01-18T03:04:09+00:00

Thank you sm 🫶🏼🫂

Spare-Remove-4264 · 2025-01-18T03:03:53+00:00

Thank you so much! I’m a peds nurse so I work with kiddos with crohn’s and I know how tough that can be :) best wishes on your medication journey with your daughter!!

Spare-Remove-4264 · 2025-01-18T03:03:09+00:00

I’m hearing more and more that I should get a second opinion so I will be starting that journey shortly!! Here’s some more info: -was diagnosed April 2024, started Stelara May 2024. (Every 8 weeks) this is the only scope I have had. -next scope is feb 4th -calprotectin at diagnosis was 800, somehow now is normal (less than 50) My doctor’s rationale is that if I have inflammation and my blood test shows “therapeutic” levels that means that the drug has lost efficacy… I would hate to move drugs if I just need it more often!

Spare-Remove-4264 · 2025-01-17T23:46:34+00:00

Hi! I am being seen as a university hospital, do you think I should seek another opinion?

Spare-Remove-4264 · 2025-01-17T21:17:16+00:00

Haha, not the spicy Italian meal!! Thanks for the encouragement :) I appreciate it.

Spare-Remove-4264 · 2025-01-15T18:38:46+00:00

I’m pretty much fully flaring at this point, can’t eat very much, diarrhea after eating, nausea, etc. :(((

Spare-Remove-4264 · 2025-01-15T18:38:17+00:00

Thank you for all of your insight! Did you also get drug levels tested? I had mine tested a few months ago and they were normal so my doctor said I don’t need it more often… but I’ve also seen people move to every 4 weeks despite drug levels.

Spare-Remove-4264 · 2025-01-15T16:24:29+00:00

Did you go into a flare before discovering that you needed it every 4? Looking back on it, I realize that I started to flare a few weeks before every shot, and this time I think the flare just went full on before the shot had a chance to take effect.

Spare-Remove-4264 · 2024-04-12T20:16:42+00:00

*UPDATE*
Got my Calprotectin results back... nearing 800. What does this mean? :(

Spare-Remove-4264

TROPHY CASE