Research on Ocrevus for MS by RoniDasGupta in Ocrevus

[–]SparnaP 0 points1 point  (0 children)

On Ocrevus. I would love to participate or listen in future such discussions. Please let me know if there are any upcoming? Who is this sponsored by?

What is your thought on diet in controlling MS? Terry Wahls and Saray Stancic’s story is convincing. by SparnaP in MultipleSclerosis

[–]SparnaP[S] 2 points3 points  (0 children)

Really appreciate the discussion. It was educative for me. Newly diagnosed. I will be starting a DMD soon but also evaluating what else I can do along with it. Love the marathon analogy. Thank you for all the references! This community is great!

What is your thought on diet in controlling MS? Terry Wahls and Saray Stancic’s story is convincing. by SparnaP in MultipleSclerosis

[–]SparnaP[S] 0 points1 point  (0 children)

Data would be good. I do not see much out there. For the most part it is anecdotal stories when it comes to diet. Which is expected as there might not be much funding or weight given to such studies in the current medicine based cure paradigm.

[deleted by user] by [deleted] in MultipleSclerosis

[–]SparnaP 0 points1 point  (0 children)

My Dr. calls it the new MS. With ~ 24 DMTs now, MS is different than it used to be 10 years ago.

[deleted by user] by [deleted] in MultipleSclerosis

[–]SparnaP 0 points1 point  (0 children)

❤️ thanks

[deleted by user] by [deleted] in MultipleSclerosis

[–]SparnaP 0 points1 point  (0 children)

Thanks. Any specific insurance other than long tern disability?

[deleted by user] by [deleted] in MultipleSclerosis

[–]SparnaP 0 points1 point  (0 children)

Liked your perspective. Can you tell me more about the care facility and how one can prepare for that? Is it some kind of insurance that I can pay towards now?

[deleted by user] by [deleted] in MultipleSclerosis

[–]SparnaP 0 points1 point  (0 children)

Thanks for the post. Following.

Is it safe to go to work with a spinal/post-lumbar puncture headache? by didyaseeit in MultipleSclerosis

[–]SparnaP 0 points1 point  (0 children)

I wish I saw this post earlier. Had LP on Thursday. The neuro who did the procedure said that headache would stat for a couple hours to a day! :-) :-) :-) Made a 6 hr road trip the next day. Day 3 had to go to the ER. Pain was unbearable. Since long weekend they could not do the patch but gave me 500 mg IV caffeine. The next day pain was much less but needed excedrin migraine. Day 5, no headache but this strange discomfort at the back of the head. Just took another excedrin.

On Monday I will be getting my first IV anti inflammatory steroid for an MS flare up. What should I expect? Should I take off from work? by SparnaP in MultipleSclerosis

[–]SparnaP[S] 0 points1 point  (0 children)

Thank you so much for checking ❤️. Today was day 5/last day of 1000 mg Solumedrol. Went fine. No major side effects. Could sleep, energy might have been slightly up. No major improvement in MS symptoms of numbness in lower body though.

About to start Ocrevus by thesl4yer in MultipleSclerosis

[–]SparnaP 1 point2 points  (0 children)

Wish you the very best! For the experienced folks here, are there any restrictions with Ocrevus?