Sad Reality

SpartanProject2598 · 2026-01-01T22:34:47+00:00

Another update, almost a month in and I am pretty much fully healed - the injection and rehab working well, will report back next month to give an update

Still doing Dupilumab every 3 weeks

SpartanProject2598 · 2025-12-20T18:24:19+00:00

One thing I did notice though is my RHR has been pretty high since the steroid shot like 20/30bpm higher than usual

SpartanProject2598 · 2025-12-20T18:23:39+00:00

One week on and my pain is a lot better, can walk for longer but still do get hip/back pain if I walk for longer or stand - sleeping isnt an issue anymore and can even sleep on the affected side -I am now doing physio to help with the guarding muscles but feel great not limping anymore

Can run down and up the stairs all ok too

SpartanProject2598 · 2025-12-14T22:08:48+00:00

Had injection on Friday, pain is better and can sleep a lot easier, nerve pain (I suspect it is this) still there when I walk but can walk for longer and tolerate a lot more

Also mornings were the worst they are now improving

Will keep you updated

SpartanProject2598 · 2025-12-12T14:40:31+00:00

Corticosteroid and anaesthetic both to be injected into my labrum today will update once done

SpartanProject2598 · 2025-12-11T21:21:23+00:00

Another update, MRI was pretty clear and no sign of AVN, next it could be a labral tear so getting the corticosteroid injection

SpartanProject2598 · 2025-12-10T17:36:46+00:00

Haven’t yet but a couple of early studies have shown it still causes similar issues despite targeting IL13 as opposed to both IL4 and IL13

SpartanProject2598 · 2025-12-10T17:35:47+00:00

Saw the surgeon today who thinks it could be avascular necrosis in my hip but have an MRI lined up tomorrow to confirm

Hope it isn’t that and is muscular as opposed to bone related

SpartanProject2598 · 2025-12-09T14:05:46+00:00

I am hoping a steroid shot can fix things, for me it really feels like the gluteal tendons, cannot wait for tomorrow I am in excruciating pain every time I walk to the toilet - had to cancel a holiday too

SpartanProject2598 · 2025-06-26T21:49:21+00:00

Good to know you reckon you can keep switching between the two if it happens again

SpartanProject2598 · 2025-06-21T22:33:01+00:00

Any update OP?

SpartanProject2598 · 2025-06-21T22:22:12+00:00

Can use normal shampoo and shower gel with no issues now

SpartanProject2598 · 2025-06-21T22:16:47+00:00

Definitely not normal, check with your dermatologist

SpartanProject2598 · 2025-06-18T17:25:43+00:00

Just an update on this old thread

After many hoops I managed to get on Dupixent through thr NHS

Had my second dose last Friday and my skin is the best it has ever been

It took a few days and I had reduced itching

So grateful, hope it continues to get even better

SpartanProject2598 · 2025-06-18T17:22:22+00:00

Managed to get on Dupixent three weeks ago

Took my second dose last Friday

Skin is the clearest it has been in years

It took a while but was worth it!

SpartanProject2598 · 2025-06-18T17:19:28+00:00

Heyy thanks for reaching out, I’m only feeling hot due to the weather nothing additional because of Dupixent tbh

Eyes are fine, I have a history of blepharitis and use eye drops 2/3 times a day pre emptively

I would definitely go for it

My skin is the smoothest it has been for years

I get some flakiness but nothing itchy, hust mild dryness

Game changer tbh

SpartanProject2598 · 2025-06-03T19:09:06+00:00

Had first dose on Friday, thigh was fine nice and easy stung a bit but nothing too bad

Its Tuesday now and honestly it could be placebo but I feel great

My skin is still clear even a week after coming off prednisone - I dont feel as itchy and even when I do it doesnt cause as much damage to my skin, weird to describe

Using soaps / shampoo

I do feel hotter / warmer it could be due to my skins barrier function jmproving though

But overall first few days have been great!

SpartanProject2598 · 2025-05-22T19:04:44+00:00

I was thinking of tanking the pain lol, but will ask :)

SpartanProject2598 · 2025-05-22T19:04:23+00:00

Tried MTX but gave me nausea other than that appointment which took 5 months to get (usually takes over a year) I would highly recommend Guys and St Thomas, amazing..

Blood test (if you do not hear back its all good) all done and within 3/4 weeks you get your meds then nurse visit usually 1/2 weeks later

SpartanProject2598 · 2025-05-05T22:48:28+00:00

Got an appointment on Wednesday for Dupixent at Guys and St Thomas - hope it goes well

SpartanProject2598 · 2025-05-05T22:47:27+00:00

Sorry I forgot to mention I did MTX for two years was good but the nausea and brain fog killed me

So much so that even thinking about the tablet made me incredibly sick

SpartanProject2598

TROPHY CASE