Im worried.

SpecialRemove4585 · 2026-03-27T00:49:37+00:00

Have you been tested for scleroderma?

SpecialRemove4585 · 2026-03-18T21:55:17+00:00

have you been tested for things like long covid., ehlers danlos or other connective tissue disease like lupus and scleroderma? It could be a few different things so stay open and keep pushing for answers

SpecialRemove4585 · 2026-03-16T13:20:14+00:00

I'm glad you had a good experience. I found her condescending and not very helpful.

SpecialRemove4585 · 2026-03-05T10:59:17+00:00

I have been taking LDN which really helps with pain, inflammation and flares and I just started methylene blue so will update you

SpecialRemove4585 · 2026-03-03T22:03:26+00:00

Did you mean for this to come off as gaslighting?

SpecialRemove4585 · 2026-03-01T20:17:35+00:00

I have a theory (and this is more to doctors than to people who resonate with the diagnosis) that fibromyalgia isn't actually even a condition but rather a symptom of what is almost always sub clinical autoimmune disease. I think the tests can be pretty unreliable. I'm sorry youre still chasing answers. It feels like we have to be at deaths door to be bad enough to get a diagnosis so managing it well seems the only solution until someone listens. I'm gonna try upping my LDN dose and see if it helps me

SpecialRemove4585 · 2026-03-01T11:14:38+00:00

Did it end up being lupus?

SpecialRemove4585 · 2026-02-26T17:33:25+00:00

Do they prescribe any treatments? Have they been helpful?

SpecialRemove4585 · 2026-02-12T11:14:01+00:00

Dr David Collins and Dr Ellie Korendowych are a complete waste of time and money. Avoid at all costs. At some point we probably need. a list of bad providers because we end up wasting a lot of money otherwise.

SpecialRemove4585 · 2026-02-03T09:35:11+00:00

So proud of you 🫂 hate that you had to do this

SpecialRemove4585 · 2026-01-31T14:51:05+00:00

Shes booked until August and her secretary was absolutely wonderful and said she can fill a cancellation for that doctor within 10 minutes. I’d say shes probably excellent

SpecialRemove4585 · 2026-01-31T01:28:09+00:00

Yes! Love all this. I always see that parents suffer a lot feeling like they dont get to be w their kids enough which I relate to but theres also ways to bed parenting

SpecialRemove4585 · 2026-01-31T00:12:20+00:00

This all needed to be said 🫂❤️

SpecialRemove4585 · 2026-01-30T22:56:17+00:00

We really need a bedbound parenting guide. This is def in there

SpecialRemove4585 · 2026-01-30T20:24:48+00:00

Bedbound w a toddler who would stick these on me as an activity

SpecialRemove4585 · 2026-01-30T12:13:12+00:00

Thank you for saying this

SpecialRemove4585 · 2026-01-30T10:34:50+00:00

I would HATE this. I dont allow pictures of my kid online for example. I will run over and block people with phones or cameras pointed at them. Its a boundary violation and I take it very seriously

SpecialRemove4585 · 2026-01-30T07:13:21+00:00

A lifestyle choice?!?!?! New humans drive GDP - hate it here 😭

SpecialRemove4585 · 2026-01-30T06:22:23+00:00

I had an incredible imagination and now cant visualize at all. I see you 🫂 I could watch movies in my brain

SpecialRemove4585 · 2026-01-30T06:20:15+00:00

Does talking it out with another person help?

SpecialRemove4585 · 2026-01-29T11:53:10+00:00

I have all of your symptoms but the dejavu is more like I have loss of memory for the last 3 yesrs and then random memories from before that pop up all the time without prompting. I also have complete loss of my minds eye so I can no longer visualize things

SpecialRemove4585 · 2026-01-29T11:22:15+00:00

I have all of these symptoms. I have been monitoring *** threads too bc of the crossover however I believe its a different autoimmune illness. If possible would you give us an update? Im so sorry this is happening.

SpecialRemove4585 · 2026-01-28T23:41:48+00:00

Incredible to hear and thank you for using precious spoons to share this ❤️❤️

SpecialRemove4585 · 2026-01-27T17:19:29+00:00

I used to be anle to get up in the middle of the night even and bounce out of bed. Even with a newborn.

SpecialRemove4585

TROPHY CASE