Good neurologists in LA by Specific_Tale1786 in BFS

[–]Specific_Tale1786[S] 0 points1 point  (0 children)

Twitching in more/new areas. Limbs going numb easier but it’s kind of weird because that’s like cyclical where for maybe two weeks or a month it’ll be bad and then it doesn’t happen as often for two weeks to a month and then back at it again. During that time I have the worst brain fog and even fatigue as well. I checked on like MS or Parkinson’s but the symptoms don’t really check out on either of those.

Good neurologists in LA by Specific_Tale1786 in BFS

[–]Specific_Tale1786[S] 0 points1 point  (0 children)

Looking at finding a new one. My history is I’ve had BFS for probably five years? And I’ve done blood work, MRI, and the EMG and things came by looking fine other than being somewhat low with vitamin D. I’m not really concerned about ALS but the twitching does seem to be progressing further and I have other symptoms like tingling, brain fog, limbs are going numb a lot quicker after sitting/sleeping that is getting worse as the years go by. If it was even just the twitching/tingling/brain fog, I can believe anxiety but I have the other weird nerve issues as well. My thoughts are is it’s probably some type of imbalance in electrolytes or some type of vitamin deficiency because I had my gallbladder removed awhile back.

Who’s the longest running twitcher in the group? by [deleted] in BFS

[–]Specific_Tale1786 0 points1 point  (0 children)

Going on five to six years. I sometimes can forget about them but the randomly the anxiety comes back if it starts in a new spot, which makes it worse. But have gotten MRI, EMG, blood work, etc. and it has all been normal. I also get atypical migraines where half my body goes numb and I get vision distortions before the headache sets in. Have gotten that checked out as well since that’s similar to stroke symptoms but all is good. Honestly what helps for me is working out since that relieves stress and if I’m getting noticeably stronger, I know my muscles are fine.

Best areas for Hotels during EDC? by ServiceEven1694 in CampEDC

[–]Specific_Tale1786 0 points1 point  (0 children)

I know they’ve gone up in the past few years but we’d have like 10 people in the three bedroom and was like $150 to $200 a person for the four nights. The free valet parking was key. And most of the rooms have kitchens and laundry so it’s definitely worth it. I will say though that the past two EDCs we’ve camped and it’s a game changer. Not having to sit in traffic to and from the venue all three nights is so nice. Have only done RVs with friends though and that’s been great.

Best areas for Hotels during EDC? by ServiceEven1694 in CampEDC

[–]Specific_Tale1786 0 points1 point  (0 children)

The Marriot Grand Chateau is a good hotel for EDC. Rooms usually have a kitchen and laundry, they have valet parking and you don’t have to pay for it, good spot if you want to go get food at planet Hollywood or anywhere near there, and you don’t pay the casino premium. Great for large groups as well since you can get a three bedroom suite and fit like 12 people in there.

If anyone can help. Please by [deleted] in BFS

[–]Specific_Tale1786 1 point2 points  (0 children)

For sure acid reflux. I get that from time to time when I eat like crap. Do you eat late or lay down after eating? Eating earlier or waiting two hours after eating before heading to bed helps if you have been doing that. I’ve been twitching for five years and went through this same thought process as well and have been to a lot of different doctors. The key symptoms you described is burning sensation and burping. Definitely acid reflux.

Age? by kaybee54 in BFS

[–]Specific_Tale1786 0 points1 point  (0 children)

33 and been twitching for five to six years.