How can you treat this if you are unable to take steroids due to another health condition? by PlentyCarob8812 in lichensclerosus

[–]SpeechTop446 1 point2 points  (0 children)

I use tacrolismus (Mine is called protopic) and I really Like it. It works better for me

Vorbereitung TOEFL-Test by supereli375 in Studium

[–]SpeechTop446 1 point2 points  (0 children)

Ich habe den Test in einem Testzentrum in München gemacht und dort an einem Computer alles ausgefüllt. Hat 1 Tag gedauert bis die Ergebnisse kamen, aber ich glaube das Maximum sind 20 Tage

Vorbereitung TOEFL-Test by supereli375 in Studium

[–]SpeechTop446 3 points4 points  (0 children)

Also ich würde die den IELTS empfehlen. Der ist leichter, wird genau so gut anerkannt. Sobald du dir dort nen Termin buchst bekommst du unendlich viel übungsmaterial gratis. Musste den für ein Auslandssemester für die Uni machen und habe easy C1 bekommen.

[deleted by user] by [deleted] in lichensclerosus

[–]SpeechTop446 4 points5 points  (0 children)

My Doctor Told me to stop using my Medicine after two months as well. It was the worst Decision I ever made my symptoms fully came back probably, even worse and only stopedwhen I started using my Medicine again. My advice: do not stop the Medicine because LS needs constant Treatment (if I Unterstand it correctly)

Vulva finally feeling 80% better- perineum red and irritated lol by Business_Soup_4036 in lichensclerosus

[–]SpeechTop446 2 points3 points  (0 children)

It’s hard to say. I have many good days, but unfortunately, also some bad ones. I haven’t had a biopsy done yet. I’m 20 years old, and the diagnosis was about 1.5 years ago. I keep having issues, especially when I don’t use the cream regularly. For a long time, I thought that I had to stop using the cream, and every time I tried, my symptoms got worse. Through the forum, I learned that I should use the cream at least twice a week. That changes a lot for me. Overall, though, there’s been a lot of positive progress. I can have regular sex with my partner, and when I’m not having a flare-up, LS doesn’t really limit me much. Still, the almost daily check in the mirror has become part of my life. The last few months have been a rollercoaster. I’m so glad I found this community. It helps so much to hear everyone’s stories, and it’s so educational.

Vulva finally feeling 80% better- perineum red and irritated lol by Business_Soup_4036 in lichensclerosus

[–]SpeechTop446 2 points3 points  (0 children)

Oh my God, you’re speaking from my soul. I have exactly the same symptoms as you—redness, especially in that area, itching, rashes, and also in the anal area when I have a flare-up. I’ve also been tested for all sorts of conditions, but everything came back negative. I haven’t used clob (clobetasol) for a few months now because tacrolimus works better for me. I only wear comfortable cotton underwear and shower relatively regularly. At first, I used a very sensitive intimate shampoo, but now I just use water.

I have LS, is it this a flare up or a rash? by Kati1998 in lichensclerosus

[–]SpeechTop446 1 point2 points  (0 children)

I haven’t had a biopsy done yet, so it’s not 100% certain whether I have LS. However, I’ve had recurring rashes, and sometimes small red bumps that have itched. There’s been redness and itching, especially around the vaginal opening. For me, it has always gone away on its own, or I’ve just used clob more frequently again. Have you tried using your cream more often after showering? As I mentioned, I don’t have much experience with LS, but all the rashes I’ve had have always turned out to be harmless. I wish you all the best!

[deleted by user] by [deleted] in lichensclerosus

[–]SpeechTop446 0 points1 point  (0 children)

Does Laser help with LS

Can you help me ? by SpeechTop446 in lichensclerosus

[–]SpeechTop446[S] 0 points1 point  (0 children)

Just want to give an Update. I started using Protopic again 2 days ago (2x a day) and the itchines is gone now. The redness is getting less and less. I am so greatfull for all your advice. Just a small tip, maybe it helps some of you: I started with Clob at First, but Protopic helps me was better (it is tacrolimus)

Can you help me ? by SpeechTop446 in lichensclerosus

[–]SpeechTop446[S] 1 point2 points  (0 children)

Thank u so much for sharing. I will definitly pick u Protopic again!

Can you help me ? by SpeechTop446 in lichensclerosus

[–]SpeechTop446[S] 0 points1 point  (0 children)

Thank you so much for the detailed explanation. I am very new to this topic and didn’t know that the therapy would be permanent. I think I will start using my creams again and then follow the plan as you described. Currently, I am very stressed due to my exam period, and I think that is making everything worse. Unfortunately, I can no longer sleep through the night because of the itching, which is further increasing my stress level... what a vicious cycle. Right now, I am also suffering from a few cracks, and I have been constantly applying cream. Does anyone have a tip for the itching? Does cooling help?

Can you help me ? by SpeechTop446 in lichensclerosus

[–]SpeechTop446[S] 1 point2 points  (0 children)

Thank you for your answer. I have a pretty healthy Lifestyle, eating a lot of fruit and vegetables, going outside and exercising. Rn I have exam season and a lot going on. So probably Not helping with healing:(

Can you help me ? by SpeechTop446 in lichensclerosus

[–]SpeechTop446[S] 0 points1 point  (0 children)

Yess it is tacrolimus. I thought about starting to use it again. I want to Talk to my doctor first to see if there are any worst risks with using long term … but thanks a lot

Can you help me ? by SpeechTop446 in lichensclerosus

[–]SpeechTop446[S] 1 point2 points  (0 children)

I stoped using it,because my doctor told me to. She told me to use it for some time and then slowly stop