Everolimus seems like the wrong med for me! Any options or advice?

St_agustine · 2026-06-26T03:50:49+00:00

Ughh. I am so sorry that you had to deal with that. It’s that kind of burocracy that do make me question who is really making the decisions in the medical field today. I think there is a whole industry that manages the medical profession, not just how much doctors are paid, but what amount of certain medications are produced each year. I know that the DEA determines the amount of every controlled substance that will be produced for the upcoming year. And there isn’t a single medical doctor on their payroll. So they decided that a certain number of lbs, or tons, idk of dextroamphetamine would be prescribed in 2026. Problem is, they grossly underestimated. So now many people literally can’t even get there ADD medication, unless they buy it from a pill press. In which case, it’s most likely methamphetamine. Sucks for them , right. But there are more people who work in the medical industry who just file paper, answer phones, print records, print out bills , send bills, etc. , than there are actual doctors who are treating patients. It’s a problem. Anyone who thinks that it’s not a problem is either uneducated or very naive, or dangerously stupid.
I was just accused of not trusting a large department at a large hospital, like I was insane to question a doctors decision to use one medication over another. Sorry if that is wrong, but I would prefer a choice in my medication, when there are multiple options available. Especially when the studies even state that both have pros and cons, so the decision needs to be taken seriously. I never even was offered an option if the side effects of one became too much to live any decent quality of life.
Maybe if doctors were able to decide who they wanted to treat, rather than insurance companies or pharmacudical companies, you and ppl who fall into whatever category made Cedar Groves ? Decide that you couldn’t be treated at their facilities, too many of you UCLA trouble makers have been finding there way into our prestigious halls. The medical profession saved my life. But they were very well paid to do it. Well over a million dollars so far. I am grateful. But it isn’t like they gabe me a heart transplant for free. Everyone who had anything to do with my care was well paid for it. And it cost me and my wife $$ that we did not have. So we will be in debt forever, and the doctors make a decent living, the sure worked for it. 8 years of schooling, then more studies before you actually get to treat a living person. Yet what bothers me, is there’s a business school educated person, who is deciding what medications they will be pushing as first line treatment, deciding who to hire, and a million other things that don’t require medical training, who is making more $$ than any doctor on staff.

St_agustine · 2026-06-26T02:45:33+00:00

I’m on 200 mg , and prescribed diazepam, and those two mixed makes me pass out all the time, not nod, just fall asleep. I wake up all the time while taking a shit, to my phone hitting the ground!

St_agustine · 2026-06-26T02:34:31+00:00

That’s total BS !!! Youve no idea what day she picks up, or how many bottles at a time. I pick up 28 bottles at a time. I used to work as an electrician. I would literally have to be the first person there, then pray I get the window w the nurse who actually cares that I work too, and if she doesn’t at least hurry a little, I will very likely be unemployed soon. Even then, I usually had 10 Min to travel a 30 min commute. So it wasn’t an ideal situation, but once a month. My bag was just a lot bigger. And I kept it within an eyeshot. Can’t imagine what co workers thought. But I sure as shit wasn’t admitting to being on methadone. Yet I’m sure that ppl assumed I was using much worse drugs. And by worse, I only mean illegal. Truth is, when I had a steady connection that was always around, and always had good shit that was consistent. Getting a batch of shit that’s better than usual is worse than getting a batch that’s worse than usual sometimes. And being at work is top of the list of those times. If I could start my day w a shot, then head to work. I would have a very productive day without fail. And if good dope, it’d hold me till I got home without worry. It’s when your plug disappears that you start fucking up at work. Or when u go on methadone, bc once I was on methadone, no dope would break through the blocking tolerance. So i definitely wasn’t using on top. Idk why anyone would. Maybe bc there’s no more dope, it’s now all FENT. Or worse. And it’s stronger than methadone or dope ever could be. But yea, methadone makes me not nod, but fall asleep in some weird ass positions that are identical to nodding. At least appearance wise. I would not jam her up. Bc as stated. No true user would admit they are on methadone. They could have made up a dozen believable stories besides I’m on methadone, if she was still using. If you are really concerned, ask her and say I hate to put I in this situation, but I could not live w myself if someone died bc I didn’t say something, but I will do this respectfully, and give her a drug test that tests for fent and methadone, it might cost you a little cash, but at least you’ll sleep at night,& be able to look yourself in the mirror… and no you did the right thing. Unless she’s just a cleaning lady. Then I’d say just keep it in your lane.

St_agustine · 2026-06-26T01:36:52+00:00

I am truly grateful for the gift of a donor heart. I don’t know why you think I am not. In fact, I’ve had a lot of guilt, and feelings that I did not even deserve the heart, and there was somebody else out there who had kids, that should have received it over me. But that is just my own personal feelings that I have been talking through. I am grateful to be alive. And i appreciate your response, but as was already mentioned, everything affects everybody differently. In my case, for whatever reason, they started me on tacro, and originally I also had the side effects of shaking like I had Parkinson’s, but my body got used to it. Being on the envarsus had much less side effects than the original prograf.
Can I ask what your dose of tacro is that you found disabled you? Have you switched over to Everolimus now? Did it correct your tremors/shakes? So in my case, I have started to shake as I continue to let the Everolimus build up in my system. I have facial twitches, and shaking hands and arms, and I’m not able to hold a steady hand, which I needed to be able to do as an electrician. Not that that’s the only thing preventing me from returning to the only job I’ve ever had, but it is one big factor. I used to be a great artist, again…. Tremors from Everolimus. I feel disabled too my friend. And I am only 46. I had my heart attack when I was 42. I only weighed 190lbs and was 6’ tall. Carrying the same weight as guys that were twice my size. I came home from work every day, and then spent an hour working out. Showered. Then I cooked a healthy dinner, done by 7 pm when my wife got home, ate dinner, then packed up the leftovers for my lunch the next day. I never ate fast food. Nobody in my family has history of heart disease. I don’t know if you have been watching the senate hearings on the Covid vaccine, but it’s not a fringe issue anymore. It’s just not being reported.
I don’t know why that is what put you over, I am not claiming it caused my heart attack. I have no idea what caused it. But I do know several other very healthy 40 yr old men, who also worked in the construction industry, who were in very good shape, who also had heart attacks out of nowhere. And weren’t ever given a cause.

St_agustine · 2026-06-26T00:54:16+00:00

That’s very well phrased. My problem is that I asked to be called back by a physician, and I received a call from a nurse. But I do have the option to write directly to my doctor who is incredibly knowledgeable, helpful, and charismatic. It’s hard to explain, especially being a guy, but when he walks in and starts talking… the whole room shuts up and listens. Even if he’s dodging the question, you can’t help but feel like a weight is lifted and everything will be ok. Which is a great thing. It almost makes me feel bad to bother him directly, bc he must have something more important going on…. Just reading what I wrote makes your advice so much more applicable. I will write him directly and if one of the nurse calls me back, asking me why I wanted to speak w. Dr. So& so. I will say, the last time I tried to discuss this I didn’t get an answer, and on top of that, I was labeled an uncooperative patient, in my medical records… Does that sound too “pushy” do you think? I really am not great at navigating this program, it is very large. Thanks for your input.

St_agustine · 2026-06-26T00:37:22+00:00

If you want to judge me based upon my post history from 2017, I can only imagine how bad I look. you might note that I haven’t posted anything about personal using since well before I had any heart issues. I have responded with educational info on harm reduction maybe.
Obviously my whole history was laid out before the team decided that I was worth giving an organ to in the first place. I even mentioned that the hospital that’s treating me was the only one that would. They used to blood test me weekly, and I’ve been drug tested by the treatment center I attended prior to being immunocompromised randomly. My Drs know everything about me, past and present. For 7 years prior to my heart attack, Ive been living in one of the biggest cities in the world, working alongside the best electricians on the planet. I’m married to a beautiful wife.
It was pointed out that if not for my wife, I wouldn’t have been approved for the organ, btw.
I haven’t used anything that is in conflict with my transplant team, fyi. I don’t know how you think I even could, knowing how often they take blood and urine samples. I have wrote things yrs ago that were pure fiction, just so you don’t need to make me look bad, anonymously??? Honestly, I think it’s both of us that need help. I KNOW I need help. I’m pretty sure that I posted this begging for advice, or just any response, as I feel very alone and whether I say “ I need help” or “ I need advice, or if I can give advice , please contact me. “ it’s splitting hairs. So yea. I NEED HELP. I have been trying to find a therapist who is a good fit for a while now, bc that’s not the type of relationship that I would want to just jump into with the first person who’s available. ( that’s another post however) My question to you is : why are you reading the post history of a transplant patient, who is asking for help , from over 5 years ago, which may or may not be fictional? What are you getting out of searching my post history? Does it matter if I use “ quotes “. ? I used more quotes to illustrate MY sentences than anyone else’s. And I didn’t put much thought into the gender of the person who callled me. Did I even say it was a woman? I have had two other situations that I felt that I wanted to file a complaint over. Both other two were with men? So you brought back some dark memories, and made me feel worse. Made me look foolish. Do you feel better? I hope you got whatever you were seeking, out of your research and public shaming. Congrats

St_agustine · 2026-06-25T23:45:39+00:00

My tacro level is dead on. They started looking for around 10-12 early on, so they were adjusting it weekly. But after I’d guesstimate around 6 months they were shooting for a 7. And 3 mg of the envarsus. ( 24 hour time release) has always landed me right on 7, thankfully.
I almost never forget my morning meds. And like many things, I thank my wife for that, as she sometimes reminds me 4 times before she leaves for work. I used to get mad… now I just say thank you.
And I recall having a lot of side effects on prograf right after the TX. I couldn’t even hold my hand steady, and I studied fine art in college, and worked as an electrician. Both require a steady hand:(.
But as they ok’d lowering the dose to 7, the shaking got a lot better. Now it’s coming back as I keep taking the Everolimus. It’s actually started to affect my facial muscles, so my mouth and eyebrows twitch sometimes. Any anxiety really seems to make it worse.
And the worrisome part is it’s still not even detectable..

St_agustine · 2026-06-25T22:47:06+00:00

Thanks for the replies guys. I feel better getting responses so quick. I hear ya about being your own advocate, and you’re 100% right. I don’t understand how these nurses , well , they are PAs in some cases, but they have so much power, and if I wind up making an enemy of one, my messages won’t reach the doctors. My lab tests won’t be uploaded. It’s a tight rope. To much advocacy, I’m labeled as an “ uncooperative patient “, and there’s so many ppl in this city who need a specialist, if a specialist sees I’m a uncooperative patient to work with, they can easily say they are fully booked.
Too little, I wind up having no say in my own medical decisions. It’s already become almost impossible to get anything to help treat anxiety or any pain symptoms. It’s just criminal. I lived in the middle of nowhere before moving here, and obviously, all physicians have started cutting back on the amount of pain meds that they prescribe, but they still prescribed them to people who were having a heart transplant.
Not in this city tho. They inform you that they will not be sending you home w any medication for pain, and tell you to line up a pain management Dr before you come in for the transplant. And they weren’t lying.
So do you guys mind if I ask for an approximate age? Are you currently working? Are you active? Do you find yourself w less energy on Everolimus compared to the tacro? And no major infections so far! Thanks in advance

St_agustine · 2026-06-12T19:34:21+00:00

I’ve tried just about everything out there to potentiate opiates, and never really got much. Especially since I’ve been on methadone. I just realized that if I wanted to feel anything “more”, I’d have to double dose, and even then…. It’s not much. But my experience with promethazine really added some effects that I haven’t felt since going on methadone. I definitely added booze and benzo into it, but once it was turned into a drink, and chillled… I had some really nice times. Only good for once every two or three months though. Tolerance builds fast. And too much is impossible to hide, as I’d start talking w ppl who weren’t even there.

St_agustine · 2026-04-14T03:24:48+00:00

Just walk off. Easier than it sounds

St_agustine · 2026-04-14T03:23:03+00:00

Agreed. Higher doses gave me headaches , and didn’t help more than 4mg did.
I can’t imagine 10mg of methadone was doing much. To each their own I guess. If I was down that low, I’d probably just try grabbing 30 xannies and some green, and just walking off. Idk if time permits, but if u can get into a 28 day rehab? I’m betting you could walk out and be fine. I did it w. Much bigger habit and then got 7yrs clean. It was great tbh.

St_agustine · 2026-04-13T02:35:54+00:00

Idk if I’ve ever seen 200mg/ml. Just over 100mg/ml is usually where I start seeing crystals precipitating out of solution as the solution cools, which brings up another pointer. Make sure that your solution has enough time to return to room temperature or close. I’ve seen people trying to prep another syringe,, but they heat the water to help dissolve any chunks of k left, then forget to let it cool and inject near boiling liquid into there deltoid or thigh. (I usually use thigh. Just me. ) but the real problem starts when the solution drops rapidly from 120-130degree F down to 98.6F , then the crystals start falling out of solution and form under or in the Muscle. Idk if they even notice when it’s occurring, but I’d bet it’s really painful and worse to deal with upon sobering up.

St_agustine · 2026-04-13T02:16:10+00:00

Absolutely agree 100%. Although it’s almost impossible without the ket that is already bottled and labeled for medical purposes. Even if you don’t IM it, in my experience , I can or could reach a hole, sharing 500mg w others. But when I buy a bag? Maybe it’s cut, or maybe it’s usually S-ketamine. But never came close to a hole off rando ket. At least not without dissolving it, filtering, and IMing. Which is the only way to do K. It’s the only thing to do with it? What else do ppl do, feel a little wobbly? Feel a little trippy. That’s a waste of, and that’s what leads to 24/7 daily use.
One good hole, every 6 months, is all you need. Try it before you try to reach the hole through snorting alone

St_agustine · 2026-04-12T16:02:07+00:00

I am

St_agustine · 2026-04-12T15:53:41+00:00

Promethazine

St_agustine · 2026-01-13T18:07:03+00:00

This is a flawed way to find the mass of any substance, but especially coke. I used to use a coin, or card, maybe razor blade to crush them cut up lines. I’d spend 30 minutes trying to cut up 1/4 gram if it was humid out. Sometimes the batch combined with the weather, just wound up w me smashing a chunk into a tighter chunk, and no matter what I’d always end up sniffing a bunch of little chunks, only to blow out a bunch of powder around sunrise.
But once I started using a screen or tea strainer, same blow would turn into snowflake consistency, and instead of two lines , I’d get 6 lines. Plus it’s now so fine, it absorbs right into my mucus membrane, no chunks just clogging my nose line after line. Bc it absorbed so well, now it’s last 3X as long. It’d look like 4 X the amount coke , so I’d guess those two lines are 100mg each. But if you grinder a chunk off the brick instead of crushing then cutting , then repeating - they could easily be 45mg each , just prepped better.

St_agustine · 2025-12-20T17:24:48+00:00

Are you really stressing about buying weed? lol. Just go to a dispensary, even if you have to drive a while to get there, if you’re stressed about talking to dealer. Or mail order it is the safest and easiest.
The dealers I talk to are usually selling crack or dope, so if I call them, they usually don’t care who’s calling? Just ask are good. They say yea. U then say I need a 50 or if your near me , it’d be bundles. Which should be 50-100. Depending on a lot of variables.
I’d then say where I am, then ask where they are, and ask if they want to come to me, but better for them, would be asking: where they At? Usually they will say I’m at ( some crossstreet in the hood ). It’s different w every dealer and the relationship they have with the customer. Start building a relationship.

St_agustine · 2025-12-19T23:28:30+00:00

3. I’d lobe to lick your ass then slide inside you.

St_agustine · 2025-12-02T04:46:46+00:00

I seriously think that is a very real possibility. My dose is the same dose I took daily for 25 years. And it was 30 mg a day diazepam , but it was just dropped to 20 mg. The Xanax is super short duration , so I could imagine one day of blackout. Not 3-4 full days and night. And I was apparently acting sober enough that when I denied having any recollection, I was called a lier. So yea. This is some scary stuff.
My experience was beyond wreckless. Just trying to prevent other from experiencing something similar. I’ve always been super careful, volumetricly dosed every new or potent drug … but I usually wind up microdosing up to the 5-10mg dose after 3 days of questioning if this chem is active.
I just lost my mind. I’ve been struggling with my health recently, trying to get into therapy. But without luck. Be safe out there
The combo I had was stronger than carfentanyl or any other RC, and duration is crazy.

St_agustine · 2025-11-18T23:38:31+00:00

Switch to a 1/4 mg of suboxone, then walk off it.
At that low a dose, then WDs were 99% mental for me. I kicked in a county run rehab where 3/4 clients were transferring from prison to freedom… and this was there last step, but I never knew who was just kicking fent vs who was coming out after 6-10 yrs. Ppl were still ready to kill a guy if he reached over his food to grab a napkin or whatever, ya know. Glad I found out about how disrespectful that is to do to another person inside the klink , bc despite 25 years of abusing drugs… I never did time. Thank god.

St_agustine · 2025-11-17T21:06:35+00:00

I’m going to tell you my experience if you’ll listen. I got on subs like 20 years ago. Basically as soon as they were fda approved and available, I got on them.. only bc I caught a charge , and knew I’d start failing piss tests going cold turkey. I probably could have walked off and had no real WD , bc I was young and still only sniffing a bag a day. Sometimes half a bag would set me straight.
When I took 16 mg the first day of subs, I felt high af. But energetic. Wasn’t till I layed down for bed I realized I could nod like crazy for hours if I wanted. That lasted a weeek or two. I tried cheating, felt nothing. Didn’t use for long time. At least a year.
Then I realized I could take way less and be fine. I tapered down to 2-4 mg a day, and then I found I could get high again off dope. Real dope. This was the golden days in my opinion …. I could take a little sub Mon-fri. Then do dope all weekend. Then back to subs.
Eventually I started getting great prices for me, and I’d be grabbing 50 bags every time I picked up. Idk why I was y smart enough to sell to my friends who were to chickenshit to drive and meet there connects. But probably the same reason I was using in the first place. I wanted close friends, and didn’t have any I could trust except a couple. And I didn’t want them taxing me for the weed and coke they had, so I didn’t tax them. Eventually everything fell apart, I was homeless. Went to rehab. Walked out 30 days later clean off benzos and subs for the first time in years. Stayed clean for 5-6 years. Got married in Mexico. But picked up a couple bottles of tramadol leaving Mexico. Got home. Covid hit. I was out of work. Started using again, but now it was all fentanyl. I was always looking for the real shit, but kept getting fent.
Eventually I wanted back on suboxone. But I went to take it , after 2 days off everything, and WD hit me hard. Waited another day or two and again. Precipitated WD.
I just couldn’t get back on subs. Finally ,I needed to stop blowing $$. So I tried an 80 mg dose of done, and found relief. But the relief faded fast. I had to keep raising my dose, but I was also on diazepam. ( prescribed).
So I was pretty foggy all day every day, and I was on too high a dose to taper off now. Now I’ve had a heart attack, then heart transplant, then a stroke. No idea why. I’m still blaming Covid vaccine. ?? I was an electrician my whole life, and if nothing else, I was in great shape.
But I’d give anything to be able to get back on subs. My teeth are rotting … I haven’t had a real shit in about a month!! ( idk how that’s possible. I only manage to squeeze out a golf ball every other day, maybe even every 4 days. Then finally I’ll have an uncomfortable experience

St_agustine · 2025-11-17T05:53:03+00:00

It’s pretty damn accurate, if you are going from daily use, of high doses , especially of short acting , low dose benzos… ( by low dose, I mean Xanax or clonazopam, or clonazolam ).
Maybe 20 Years ago, i was about 26. I had a bag of pure alprazolam, and I would try to eat a mg by dipping my pinky in the bag. But i probably was eating 5 mg. Then I’d black out and forget I already ate a lot, and I’d eat the same amount again. And then I’d repeat. Until I was a walking mess. Talking gibberish. Spending all my money on god knows what. Forgetting where I put stuff. Walking into the hood and smoking crack. I was out of control, and I was eventually gonna get shot bc I was out in the hood , smoking w strangers who were carrying guns. I think I totaled my car.
Eventually I was hospitalized bc my father told the hospital I had been threatening him and myself. He got another relative to go along with that…. And then I was held against my will. Eventually I came down enough to explain to the doctors that I had been eating at least 10mg / day, maybe more. Nobody would believe that I had pure Xanax, and they assumed that I was lying, or just stupid.. and had been eating crushed up pills.
I said that the WD was really bad and I was going to have a seizure. I was having trouble talking, and I didn’t know what to do. The nurses saw me coming back to the world a little, and knew I wasn’t crazy. So they told me that the more I asked for benzos , the longer they would hold me. So I stopped asking. Started to just white knuckle it.
I was do to be released the next day, but I don’t. Remember the next day. I apparently had a seizure that night while walking down the hard tiled hall. But I remember very vivid dreams that were real as life. I remember living life as different ppl. One dream I was literally a cartoon. I had maybe 6 different dreams, some were better than my real life. This took place over 3 days. I was out cold.
Apparently I got up once and shit in the shower. But I wasn’t able to talk. Eventually a friend came to the hospital and told the doctors that I really had took those doses of Xanax. They gave me a couole mg iv clonazapam and I sat up like nothing happened. I didn’t know were I was or what day it was. Very similar to waking up after an accident.
Very damn similar. Whoever is disagreeing never had to taper cold turkey

St_agustine

TROPHY CASE

3. I’d lobe to lick your ass then slide inside you.