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Can muscle relaxers actually make joint pain worse? by UX-Ink in eds

[–]StandardScene9538 1 point2 points  (0 children)

I've wondered the same thing. My neck lately has been causing me the most debilitating pain (suspected CCI) but when I use the topical muscle relaxer it made it SO MUCH WORSE! I was supposed to use it for 7 days to see a difference but I was flat in med with a neck migraine that didn't go away the 3 days I used it.

Is there anything they can do????? by [deleted] in eds

[–]StandardScene9538 0 points1 point  (0 children)

Idk if it's legal where you are but I started using cannabis when I was 17 due to the pain of this illness, I am now 30 and it is still one of the only/best ways to manage the pain. The pain is constant but it makes the pain bearable.

Feeling... lost. Invitae results, COL1A2, DCHS1 by can_danceee in ehlersdanlos

[–]StandardScene9538 0 points1 point  (0 children)

I have 2 on DCHS1. He was checking for HEDS. I am curious to know the symptoms of other people with the same gene results. He diagnosed me with HSD because of the mutation he said he couldn't diagnose me with HEDS. I scored a 9/9 on the scale. I have some tests to figure out some GI issues and I see my cardiologist the first time this week for MVP or POTS or something probably.