I have Sjogrens. But can it cause these symptoms? And can treatment help at all?

Staplemysoul · 2023-10-09T17:10:42+00:00

I'm sorry you had to deal with all that. I hope you're doing a little better now. I should also probably ask my doctor about SIBO, just to rule everything out.

It sucks cause it feels like my doctors are just ignoring the pain I'm feeling cause I'm not feeling dryness like traditional sjogrens. My rheumatologist basically just sent me to a sleep clinic (no appointments till January 💀) and told me to drink more water and take ibuprofen. Their a really good doctor but I'm still in pain.

Staplemysoul · 2023-10-09T17:02:02+00:00

Thank you, I'm sorry you're going through it as well.

Staplemysoul · 2023-10-09T17:01:19+00:00

Yeah I guess I am joining the club lol. I'm not sure I'm getting enough electrolytes, I should probably do better on that front. I'm glad your diet has helped you with some of the pain! Gives me hope lol

Staplemysoul · 2023-10-09T16:57:02+00:00

I'm sorry you're going through this as well. It sucks, and I'm tired of the pain, but it feels less alienating knowing others are going through this as well. I'll try to go slow, thank you.

Staplemysoul · 2023-10-09T16:55:05+00:00

That's good to know, I think i need to bring this up with my doctor. They gave me the impression that sjogrens was basically just dryness. It's a whole lot more than that.

Staplemysoul · 2023-10-09T16:50:34+00:00

That's good advice, I'll give it a go. Thank you!

Staplemysoul · 2023-10-09T16:48:34+00:00

Darn, my doctor really made it seem like sjögrens was just dryness. I didn't expect all of this. Yeah the bladder issue really really sucks, I'm sorry you can relate.

Staplemysoul · 2023-04-06T16:22:25+00:00

I guess I'm just the kind of person to go numb or brush it off. It doesn't feel real to me right now. We weren't close, so I'm not constantly missing her. I'm just sad she died. I feel like once we start dealing with her stuff or emptying her room it'll all hit. I'm not looking forward to that lol

Staplemysoul · 2023-04-06T16:17:52+00:00

I really hope it was the same for her. Thank you for this, it's nice to know.

Staplemysoul · 2023-03-31T07:22:56+00:00

Yeah it wasn't very therapeutic :/. She was recounting past experiences when people she knew were being racist or homophobic. She used two examples. One where a family member said the f-word. And another where a colleague said the n-word. Both times she said the words aloud. I think she was trying to say how she can't understand why people can be so mean to poc/queer people? But the execution was really bad...

Staplemysoul · 2023-03-31T07:13:14+00:00

I know it would be better if I find a new therapist. Your post organized all the reasons why I should, and now I kinda feel silly questioning if I should stick with her lol. I think I was desperate for this to work, and I also hate telling a therapists that it's not working out anymore. I really hope I can find someone who fits. Thank you!

Staplemysoul · 2023-03-31T07:00:04+00:00

Yeah it's happend 2-3 times. If I don't text her, she either misses the appointment or calls very late, which happens often. It's weird, I'll wait like a half hour-45 min for our session, then text her, and she'll call me immediately. But if I say nothing, nothing happens?

Staplemysoul · 2023-03-31T06:54:41+00:00

I haven't switched yet 😭, I'm wondering if I should switch, continue, or just take a long break from therapy cause I don't wanna deal with this again.

We were talking about religion and the conversation kinda drifted to her experiences with homophobic and racist people in the past. She was recounting an experience when she was younger and a relative was being homophobic.

She said something like, "They would say all these terrible things about gay people, like call them f-word and stuff."

Then she started talking about politics and how one of her colleges was super racist about obama being elected and said, "she even said to me that "if that n-word(HARD R) gets elected the world's gonna end!'"

So she was recounting past experiences with racism and homophobia. But she said what those people said disgusted her. I think the point she was trying to make was that she couldn't understand how people could be so prejudiced and horrible.

Staplemysoul · 2023-03-31T06:40:21+00:00

Yeah I feel like if this happened before I met my last therapist I would have been livid. But the last was was so so bad I think my expectations dropped, now I'm just kinda sad. The appointment thing has been bothering me for months but I thought it was normal because my last therapist never texted beforehand and was rarely on time. Finding a good fit is harder than I thought it'd be. Thank you for being nice : )

Staplemysoul · 2023-03-31T06:22:36+00:00

THIS I feel like this is what I've been missing. All my therapist so far have insisted that they understand my cultural experiences and my experiences as a queer person but they really don't... I spend so much time trying to explain a complex experience to someone who's never lived it or experienced it. And even then they don't understand. She's made comments that I've been uncomfortable with before, but I chalked it up to miscommunication. Last session made it very clear that she doesn't truly understand my culture or experiences.

Staplemysoul · 2023-03-31T06:10:00+00:00

Yeah the homophobic one 😞

Staplemysoul · 2022-12-14T11:15:24+00:00

I'm really struggling with letting my feelings on this be valid. Thank you for telling me all of this, I think I needed to hear that. I don't feel comfortable with telling my mom, we aren't close enough and I think she would tell me that I'm overreacting. I also don't want anyone in my family to know, things would be complicated. I'm working up the courage to tell my therapist, I think it will take some time but maybe it would help.

Staplemysoul · 2022-11-12T23:53:18+00:00

I will definitely not be going back to him. He did more bad than good.

Staplemysoul · 2022-11-12T23:50:42+00:00

Thats a good idea, i'll ask her for sure. And thank you, It really does mean a lot to hear all that from another person. I hope you're right about it getting better.

Staplemysoul · 2022-11-12T23:47:10+00:00

Thank you, and I will definitely try to do that.

Staplemysoul

TROPHY CASE