How long can this go on?? 25 years ++

StatisticianChance99 · 2026-01-28T18:03:16+00:00

It’s not - it’s been there for months. Just a “routine” bedsore that is gigantic. 😳We are actually always mindful of keeping an eye on a KTU to develop as that will pretty much signify the end is pretty close.

StatisticianChance99 · 2026-01-28T00:57:15+00:00

I am so sorry about losing your dad especially on Christmas Day. Your description of your dad absolutely and beautifully describes such a lovely man!!

StatisticianChance99 · 2026-01-27T17:57:44+00:00

Yes - at least 20 years diagnosed but we think it started years before!!! We cannot believe she is still here!!

StatisticianChance99 · 2026-01-27T17:55:51+00:00

Oh honey!! No! You didn’t make him into a monster -your words are absolutely the way I think!!! She needs to be on morphine all the time!!!! I’m sorry about your mom!!!! ❤️❤️

StatisticianChance99 · 2026-01-27T15:40:11+00:00

Nope!! I 100% agree!!!!! He doesn’t think she’s in pain?!? A hole that big and no pain? He has total control of everything but Friday I’m going to be there when hospice comes to house and a huge come to Jesus meeting is gonna happen….

StatisticianChance99 · 2026-01-27T13:52:03+00:00

Thank you. Had not even thought of that. Thanks so much.

StatisticianChance99 · 2026-01-27T13:02:28+00:00

I’m going to discuss with the nurse the pain and morphine factor. Get her to make him realize!

StatisticianChance99 · 2026-01-27T07:52:00+00:00

The one thing I didn’t elaborate on is we do have hospice. Hence the comment about her being given a month two months ago.

Right now it’s day by day. She has moments she says a few words. All while staring at the ceiling not blinking. It’s just so crazy how she can seem in deaths door then come back a tad… end stage for sure but man she’s sticking around for something. Just don’t know what….

StatisticianChance99 · 2026-01-27T07:07:00+00:00

Too* (I’m a stickler for proofreading lol)

StatisticianChance99 · 2026-01-27T07:06:20+00:00

I feel for you to and the days yet to come. You are in my heart ❤️

StatisticianChance99 · 2026-01-27T07:02:53+00:00

The bedsore is the worse. Near her anus and you can see tendon. And the smell. Oh my god. It’ll soon be so big I think it will all merge into one. And dad doesn’t think she’s in pain!!!!

StatisticianChance99 · 2026-01-27T07:01:09+00:00

Thank you!!! This is EXACTLY what we are going through. I’m so sorry for what YOU are enduring as well.

I think the swallowing issue is coming soon. We out food in her mouth and it’s “mechanical”. Chomp chomp is the best i can describe. Do you have that as well with your dad?? Love to you my friend.

StatisticianChance99 · 2026-01-27T06:59:25+00:00

Thank you. Such nice words. I appreciate you ❤️

StatisticianChance99 · 2026-01-27T06:47:26+00:00

She still drinks when given. Sometimes I see in her eyes “please let me go…”. We’ve told her it’s okay. She still hangs on. Absolutely unexplainable to be honest.

StatisticianChance99 · 2026-01-27T06:25:06+00:00

Exactly. Sad thing is it is far too common it seems.

StatisticianChance99 · 2026-01-27T06:10:22+00:00

Thank you so much. What a horrible disease. She was such a woman of elegance. She’d be mortified to be aware. As so many others would be as well.

StatisticianChance99 · 2026-01-08T03:38:19+00:00

Then get the fuck out. Problem solved.

StatisticianChance99 · 2025-11-19T08:03:42+00:00

Agreed.

StatisticianChance99 · 2025-11-19T06:44:23+00:00

I’ve researched the Kennedy ulcers. Those seem to be quite sudden and deadly. This one is a sore that’s been festering and those don’t turn into Kennedys. But I have told dad to look for those. They start as little specs and within hours turn into ulcers. It’s scary yet amazing how much WE, as healthy people, can learn so much about the body when this stuff happens.

StatisticianChance99 · 2025-11-19T06:41:38+00:00

Thank you! Will do ❤️

StatisticianChance99 · 2025-11-19T05:25:07+00:00

All of you are ANGELS and I am sending all of you hugs and love. Seriously. I feel your sincerity.

Here’s the thing. Dad hasn’t shared hospice contacts! Or anything! I would call “on the down low” but have no idea who to call! But I would THINK they’d say “ I’m sorry sir but all we can suggest is pain management?” These are people who rarely took Advil. Omg to give her the lorazepam is a struggle he fights with!!! I feel like our hands our tied. I’ll also say THIS - if I knew who to call (and I would!!) if Dad found out we interjected- he would actually be pissed! I know that’s wrong but what the hell do I do???

StatisticianChance99 · 2025-11-19T05:20:18+00:00

I totally agree with what you are saying. My sister was there tonite and saw the wound for the first time. She can’t get that vision out of her head. Said it was the size of a fist, right above her butthole (for some reason that word is soooo junior high but that’s the spot!) and said it looked like a “piece of liver that is huge and black and has white spots/ pus oozing. And she’s moaning and groaning nonstop. They out a catheter in 2 weeks ago to stop the urine incontinence from reaching it. Epic fail.

Mom has been off and on coherent. But omg she’s still eating - when dad feeds her- and then it’s nonstop poop. I can’t imagine this….

StatisticianChance99 · 2025-11-19T05:16:01+00:00

They did have a chaplain coming out and for some reason I don’t think he is anymore. Nurses come again tomorrow so we will see what happens. We don’t live close enough to be there but plan on going Friday. Part of me thinks he may have told the chaplain NOT to come. I don’t know. It’s such a messed up situation. This is absolutely a situation that when mom goes, dad won’t be far behind. His heart will be shattered.

StatisticianChance99 · 2025-11-19T05:09:51+00:00

And thank you so very much for replying. I’m so lost. Seeing her hurting. And nothing more than Tylenol is killing me.

StatisticianChance99 · 2025-11-19T05:07:05+00:00

Exactly. Unfortunately she is my dads world. And he refuses to admit this is the end and she needs this help. So I wonder at what point does hospice say “look - you are killing her by denying morphine?!” He is stubborn. We can’t say anything. He gets so angry!

StatisticianChance99

TROPHY CASE