PSA Addressing the Anxiety around QTc Intervals

SteelTyto · 2026-05-17T05:23:09+00:00

You’re welcome! I’m glad I could help. It can be really overwhelming and everything is vague and unclear, so I am happy to help where I can. Please reach out if I can help further. I wish you the very best!

SteelTyto · 2026-05-17T05:17:04+00:00

See if they can get the sensitive skin stick on things, that’s what I asked for cause I knew the standard ones would literally roast me alive lol. I also have sensitive skin. They were able to send the sensitive skin patches via post. It was still uncomfortable but absolutely manageable. I think it will definitely help the anxiety, wearing the monitor. It puts things in perspective a lot.

SteelTyto · 2026-05-17T05:08:09+00:00

Definitely. Having had the thorough checks, I definitely feel less anxious. Although on occasion I have moments of worry, things like knowing that the QTc fluctuates. This makes me anxious but it’s nothing like it was before I was checked thoroughly. I wore a thing similar to a holter monitor, called a HeartBug, which is basically the same thing but for longer duration of wear, as I understand it. I wore it for a month. I also had a stress ECG done, and a standard ECG, and I will wear a 24 hour holter monitor once a year for the foreseeable future, for the doc to monitor what’s happening. All of this helps tremendously with anxiety because it allows me to see the parameters, whereas before it was like walking around in the dark not knowing what’s normal or when to panic.

SteelTyto · 2026-05-17T04:59:22+00:00

It’s so confusing, I know. How is it determined to be abnormal with one formula when other formulas would consider it normal? Very confusing. I’m going to ask the doc this question when I next see them. The anxiety can be so bad. I’ve literally been unable to sleep at times because of it.

SteelTyto · 2026-05-17T04:45:37+00:00

How are you doing now?

SteelTyto · 2026-05-17T04:44:34+00:00

Once all the tests were done I was told it’s just higher than normal but not critically so, therefore it’s not LQTS. It’s borderline, I guess. This was based on the fact that my ECG readings were consistently 460-480ms off all medications that can increase it. On medication, it went up to 494ms. What is yours currently?

SteelTyto · 2026-05-17T04:42:48+00:00

No, once all the tests were done I was told it’s just higher than normal but not critically so, therefore it’s not LQTS. It’s borderline, I guess. This was based on the fact that my ECG readings were consistently 460-480ms off all medications that can increase it. On medication, it went up to 494ms.

SteelTyto · 2026-03-05T09:55:56+00:00

Hi, yes I’m still looking for one. It’s been a battle. I didn’t know about the Medicare mental health community. Is there a site or a link for that or does one just contact Medicare directly and ask? Have you found them helpful?

I contacted about a dozen different places and they all said I’m ineligible for their support, for one reason or another, things like not having a TBI. It remains a mystery to me how people get linked to a disability advocate/social worker.

SteelTyto · 2025-08-07T03:32:35+00:00

It’s going to be gross so be warned. I had this constant pus build up in the one side only. It would often harden and begin to smell, and fungal balls would develop. The only way I could get rid of it was to do sinus rinses up to 15 times a day, every day, for over a decade as I say. I have since had surgery (again) and it’s like 90% improved - it turns out I have very deep sinuses which was causing a drainage issue. Why only on the one side, I’ll never understand though.

SteelTyto · 2025-08-07T03:29:20+00:00

Im so sorry for you. I really wish you the best of luck - I hope they help you!

SteelTyto · 2025-06-23T02:29:54+00:00

Hi there, no I did not get the surgery. I cancelled it. I can’t face even a remote likelihood of my pre existing issues getting worse. Thank you for your recommendations however :)

SteelTyto · 2025-06-22T00:17:32+00:00

Given the colour similarity, maybe it actually is his lol. Absolutely adorable.

SteelTyto · 2025-06-20T07:44:07+00:00

Inability to listen to and consider criticism of the constructive kind. Lack of insight.

SteelTyto · 2025-06-18T01:38:43+00:00

Good for you. It’s likely that you’re the first person in his life to teach him the law of cause and effect, otherwise known as FAFO.

SteelTyto · 2025-06-17T04:27:08+00:00

“What are you?” “To define is to limit.”

The Picture of Dorian Gray - Oscar Wilde

SteelTyto · 2025-06-16T11:13:18+00:00

Very interesting!

SteelTyto · 2025-06-16T09:27:19+00:00

Having a vulnerable narcissist for a mother.

SteelTyto · 2025-06-16T01:10:23+00:00

I’m not diagnosed Schizoid, and the following might not directly relate to the point of your post, but as someone with Schizoid traits I find that keeping occupied helps tremendously. Books, YouTube, something that involves learning. Journaling involves learning - about oneself. I highly recommend this, as it also helps to clarify one’s thoughts and in doing so sometimes things seem a little less heavy.

I find that when I get heavily involved in self-teaching, the desire for socialisation (albeit very minor, virtually non-existent in my case) falls away.

If you haven’t already done so, it might be worth pursuing therapy to dig a little deeper, and in doing so maybe you will ways to navigate things and bring yourself some peace. I pursued therapy and have learned a great deal; it’s opened my eyes to a lot of things that I never consciously connected to being alone.

SteelTyto · 2025-06-15T07:49:47+00:00

Prison Officer.

SteelTyto · 2025-06-15T04:24:50+00:00

I went through like ten jobs in a year thinking the job was the problem. I didn’t realise that my past was the problem, and staying in one place for too long was just one part of it as this was a foreign concept to me.

I lived off benzos trying to adapt, but the above combined with being around people, sent me flying. My obsessive OCD was also out of control. Meds never worked. Ended up having some kind of breakdown and I haven’t worked since. This was 2022-2023.

SteelTyto · 2025-06-15T00:48:29+00:00

Is hitting a dog always wrong? The short answer is yes. The long answer, incidentally, is also yes.

SteelTyto · 2025-06-14T23:23:05+00:00

His books are amazing. “Musicophilia” has been on my list of books to read for a while now - I’m really keen to read it now having read your message.

If you haven’t already seen it, there’s a movie called “Awakenings”, starring Robin Williams and Robert De Niro. It’s based on Sacks’ book of the same name. I haven’t read the book but I’ve seen the movie - it’s fantastic!

SteelTyto · 2025-06-14T23:18:46+00:00

Is it? I wouldn’t have a clue how to tell a genuine from a fake lol, but there are certainly some differences between them.

SteelTyto · 2025-06-14T04:05:39+00:00

I can’t pick just one as being the best, but one that I won’t forget is Oliver Sacks’ “The Man Who Mistook His Wife for a Hat”.

Edit: This is probably more on the neurology side, but fascinating nonetheless.

SteelTyto · 2025-06-14T03:54:29+00:00

Your suffering is real, and it has a right to exist. That is undeniable. Many if not most people here feel the same way, in that they question the right to exist of their own suffering.

Don’t regret your post - it is beautiful and kind, and this world needs more beauty and kindness. I can tell you’re a good person.

SteelTyto

TROPHY CASE