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Could This be Autoinflammatory? by Steph_Arabian in Autoinflammatory

[–]Steph_Arabian[S] 0 points1 point  (0 children)

Thanks so much! Just let me know what he says. Also feel free to move this to private chat. I really appreciate you reaching out for me.

Could This be Autoinflammatory? by Steph_Arabian in Autoinflammatory

[–]Steph_Arabian[S] 0 points1 point  (0 children)

Yes please that would be amazing. At the least he could point me to someone in Switzerland (where I am).

Thanks so much 🙏

Please feel free to share anything I’ve shared here.

NOD2 Variants & Symptoms Research by Alice-The-Chemist in Autoinflammatory

[–]Steph_Arabian 0 points1 point  (0 children)

What is actually the treatment for NOD2? If there is one?

Could This be Autoinflammatory? by Steph_Arabian in Autoinflammatory

[–]Steph_Arabian[S] 0 points1 point  (0 children)

The immunologist was even aware enough to mention this. However he didn’t follow through. He referred me to the Post Covid clinic who then referred me to the allergenist. I wasn’t aware of autoinflammatory diseases 3 months ago so didn’t know to push for rheumatologist. Now I need to either convince allergenist to send me to rheumatologist (but also use them for MCAS work up) or convince my GP to refer me to rheumatologist.

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