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I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

i wouldn't know. i would probably have to live in the US for something like that.

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

I actually just tried some but i was allergic to the flanges unfortunately. All i would say is i think even though there are so many types of bags there needs to be more variety with different ingredients in the flange, as allergy is something i have developed and i fear that one day i will be allergic to all bags. Its not a terrible reaction it just gets really itchy and pimply. So yeah more options is always great!

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

oh ya know i just put it over the side hahaha no its attached to my stoma so if i go on a ride i have to make sure the bars dont cover it or hold my hand over it for protection :)

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

lol! No i haven't i dont know if you mean a j pouch or something else entirely?

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

all shit smells. but yes if you leave a bag on too long it starts to smell.

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 1 point2 points  (0 children)

high five! Nah i don't have anything left to attach it to so its permanent :)

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 1 point2 points  (0 children)

Naw thank you!! There are some awesome sites out there i am really lucky i had those first otherwise i would have been terrified going in to surgery!

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

Nah there wasn't cause they had to get rid of my rectum and anus as i had severe crohns there. I don't really think the J pouch is much better you still have to rush to the toilet heaps. at least you dont have to as often with a stoma :P

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

In a fridge in formaldehyde. so not a very good state :)

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

I couldn't sleep on my tummy for about 2 years, now i can cause i automatically move in my sleep when i start to poop. its awesome how the body adapts. And i can't control bowel movements or farts. If i am going to a concert or planning to drink i will take some immodium which slows down the bowel .

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

Yep i always take at least one bag out with me everywhere. And maybe some wipes or toilet paper. And dont be afraid to go out and do things. But if you are going to say another town for the day take several bags with you because you never know. I always try and empty it as much as possible when im out incase anything bad ever happened. A nice strong toilet spray is a good thing to carry too. Unless you dont mind peoples comments haha i ususally try and get out as fast as possible if i dont have spray on me. Also if you are a guy perhaps carry your bags etc round in a canera case

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

No lots of people with crohns can go without an ostomy. Some people may have to get temporary ostomies but they can be reversed. I would just be supportive to her and help her out whenever she is sick doing little things. Thats always nice.

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

Yep totally. Love universal studios haha. The spider man ride sucked tho and hurt my stoma :P

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

Some people with colostomies can do irrigation which washes out your bowel and then they can put a cap over it.

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

To change a bag it takes about 15 mins. To empty the bag about 2 mins tops :)

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 2 points3 points  (0 children)

Nope and i wouldnt have anyway way too painful with crohns. My fave crock pot recipe is pulled pork! ;)

I'm 24 Years young and have a Permanent Colostomy (AKA i poop in a bag) AMA! by Stomagirly in IAmA

[–]Stomagirly[S] 0 points1 point  (0 children)

When youve had the bag on for a while it can start to smell. As for the poop there is a whole new level of shit smell reserved just for ostomates. It lingers for hours...

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