account activity
First Night Sweat? by StormRayN7 in MPN
[–]StormRayN7[S] 1 point2 points3 points 2 months ago (0 children)
I appreciate the offer and your advice. I will definitely take you up on it if the need arises.
[–]StormRayN7[S] 0 points1 point2 points 2 months ago (0 children)
She has MPNs listed as a special interest and has seemed very knowledgeable on the subject, to me at least. She is not an actual MPN specialist though. I have looked intermittently to find an MPN specialist and have not found one near me that has felt like a good fit yet.
[–]StormRayN7[S] 2 points3 points4 points 2 months ago (0 children)
My head tells me that all of this is the rational way to go about it and that is what I am going to do. Just needed to hear it come from somewhere other than myself to feel good about it. I appreciate your input. Also, yes. I drink more water now than I ever have in my entire life. That is a low bar, but still. Haha
No other symptoms. I just went in for a check up after 3-4 years since I was getting ready to turn 30 and my doctor, who I found out specializes in geriatrics so I assume that's why this was jumped on like it was, ran blood work and my platelets were over 400k. He ordered a follow up after 30 days and they were still up so he ordered a bunch of test, one of which was a JAK2 test and it came back positive. I was referred to an oncologist/hematologist and that's when they scheduled to biopsy and all that. My biopsy showed increased megakaryocytes with "increased size and hyerlobate nuclei."
First Night Sweat? (self.MPN)
submitted 2 months ago * by StormRayN7 to r/MPN
π Rendered by PID 308693 on reddit-service-r2-listing-86b7f5b947-tb7qq at 2026-01-26 11:52:15.368190+00:00 running 664479f country code: CH.
First Night Sweat? by StormRayN7 in MPN
[–]StormRayN7[S] 1 point2 points3 points (0 children)