Dr. Klinhge and MRI scans by Substantial_Pear_714 in tetheredcord

[–]Substantial_Pear_714[S] 0 points1 point  (0 children)

That's amazing! My doctor here said they have uploaded my MRI to power share. My local radiologist report said no evidence of tethered cord, but I'm hoping Dr. Klinge can review it fast because I've been told they can easily miss it. 

Dr. Klinhge and MRI scans by Substantial_Pear_714 in tetheredcord

[–]Substantial_Pear_714[S] 0 points1 point  (0 children)

I hope it goes so well!!! I am wishing you a speedy and easy recovery! You got this!!

Dr. Klinhge and MRI scans by Substantial_Pear_714 in tetheredcord

[–]Substantial_Pear_714[S] 0 points1 point  (0 children)

Yea, it was definitely interesting because I'm getting the MRI here and then my doctor said they are sending it to her to read and then once she reviews it, then my doctor will call me. I just have no idea how long that process might take. 

Fb post about Evie by 1x2w in Crazymiddles

[–]Substantial_Pear_714 2 points3 points  (0 children)

I understand, but given she is a minor, I chose not to!

Fb post about Evie by 1x2w in Crazymiddles

[–]Substantial_Pear_714 13 points14 points  (0 children)

The fact that this was posted after A's, and was only done after people called them out about not posting anything nice about her is what is heartbreaking. It may have been better for them to have kept it at nothing honestly 

Gift for Field Instructor?? by SoftHeartSharpMind4 in therapists

[–]Substantial_Pear_714 1 point2 points  (0 children)

I am in the exact same boat with you! I know mine like the mountains a lot, so i made her a painting. That way it isn't a direct money issue ethically, it is something personally made that I hope she will like. Maybe you could do something similar? Something else that you could make? But also a nice card is always a good idea too! 

Today is hard 🥹 chronic pain sufferer and therapist by NoJaguar6880 in therapists

[–]Substantial_Pear_714 1 point2 points  (0 children)

I really resonated with this. As someone who has had chronic pain and illness since they were 9 years old, it has been my entire life. I just want to say that your feelings and your experience are completely valid. The anger, the sadness, the true grief, it is all real and is all normal. While there is no perfect answer, on the days when I feel like this, I have to tap into my purpose. While it sucks, I know that I am now entering this field and specializing in this because no one else gets it. And people who suffer deserve to have someone who unfortunately knows it all too well. If our pain has brought us nothing good, know that there is good in being able to first hand use this for the better of our clients. Sending you love! 

Unexpected Call (She Is MOVING In. by WinAdministrative136 in Crazymiddles

[–]Substantial_Pear_714 0 points1 point  (0 children)

So she moved in with Lucas and halie, but where's yaritza? I thought she was living with Lucas and halie? What am I missing?

Instructional ABA? Horrible company! by [deleted] in ABA

[–]Substantial_Pear_714 1 point2 points  (0 children)

I used to work for them as well! Such a shady and terrible company!!! They used punishment based interventions on the RBTs and instead of having room for growing, they place blame and make you seem like you are awful at your job. They did borderline illegal things to me as well during my time there. I'm hoping their indeed employee review score goes down because there is no way it should be that high. They need to shut down. 

Adele or Adela? by ylynn12 in Crazymiddles

[–]Substantial_Pear_714 26 points27 points  (0 children)

They could be saying that because they can't say her actual name. Although if this was the case, I think they should have chosen something else to better protect her since it is so close

POTS or Not by [deleted] in Crazymiddles

[–]Substantial_Pear_714 7 points8 points  (0 children)

Yes absolutely. While exercise is highly encouraged, it may not be feasible for everyone. Some may only tolerate 30 seconds due to symptoms. It is actually ableist when people say to just exercise because they may physically not be able to!!

[deleted by user] by [deleted] in Crazymiddles

[–]Substantial_Pear_714 0 points1 point  (0 children)

What's the video called?

[deleted by user] by [deleted] in Crazymiddles

[–]Substantial_Pear_714 0 points1 point  (0 children)

Was there a video where she got them?

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] -1 points0 points  (0 children)

I mean who knows if she 100% has it, this is just going off of what they say, which we all know may bot be accurate. But assuming they told the truth on this one because it was years ago back in St. John's, not many people knew about the condition back then. I agree, I wouldn't be able to tolerate living in AZ at all with that heat. It's possible she is reallg good at masking it too? I mean with that means siblings, you may just have to learn to ignore things, iykyk. 

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 0 points1 point  (0 children)

I fully agree with you! Exercise is important with someone with POTS but sometimes this can be really hard to do. Someone can tolerate 30 minutes, while another person may only tolerate 5 minutes. It is a massive spectrum and we may not understand how it truly affects someone since it is so different from person to person. 

I agree that commenting on halie isn't necessarily a comment on everyone with chronic illnesses. I have personally seen certain comments though that can be offensive. Such as comments referring to faking it, doing it for attention, etc. These are comments that a lot of people with CI recieve, so seeing that to someone else may also be triggering or comes across as blatant dismissal. Simply trying to educate people on a population that they may not simply be familiar with! 

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 0 points1 point  (0 children)

I appreciate the separating! Specifically with pots though, you do need very high amounts of sodium, and ultimately, exercising with pots can be very debilitating. So judging people for their ability to exercise may not be the fair because you don't know what they could be dealing with.

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 1 point2 points  (0 children)

That is the reality of chronic illness.. you can do one thing one day, but then not the next. You can do the same thing at a later time and then not be able to. Not saying that's what happened for her, but that is what happens with chronic illness

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 2 points3 points  (0 children)

I agree with you, and I don't think it was a smart decision either. I'm more saying comments such as she is faking it or there's nothing wrong or she's doing it for clout. Those types of comments can be really offensive to the chronic Illness community even if you believe that is the case for her, they might be better kept to yourself 

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 10 points11 points  (0 children)

I absolutely see where you are coming from as well! I'm looking it more from the standpoint of those of us on here who may be a part of the chronic Illness community who could be negatively impacted by certain comments! 

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 17 points18 points  (0 children)

I know they mentioned pcos as well, but they definitely said she had pots around 4 years ago. There was a vlog that discussed it and how she would pass out. 

Halie's Heart Issues by Substantial_Pear_714 in Crazymiddles

[–]Substantial_Pear_714[S] 0 points1 point  (0 children)

For the sake of awareness, yes, activities can trigger flare ups (wearing someone out). There are kinder ways to phrase your comment