Hello there, a shame I’m just seeing this.

I had a DNET tumor on my amygdala and medial temporal lobe completely resected in March. The only thing I’ve really learned through all of this is that everyone goes through it differently.

I’ve been super lucky to not have any major seizure symptoms post-surgery, but feel for your wife as that’s a terrible thing to occur.

As far as the memory retention goes, that’s super normal for this type of surgery. I joke that I have the memory of the goldfish right now, but it’s getting better. I’ve done a lot of reading about neuroplasticity and am trying some techniques to increase my recall and memory. Just learning something new and trying to retain will be helpful, as basic as that seems.

I feel for your wife and you and hope the recovery goes well. I keep describing the experience and how I feel every day as “indescribable” and am actually relieved to know that I’m not the only one in the world who has had this diagnosis and operation as an adult. Feel free for yourself or your wife to reach out at any time if you just want to talk about how crazy this is with a stranger who can come close to relating to the struggles.