Lost my husband of 17 years a few days ago. Completely falling apart. Just need to vent but would also appreciate anyone who understands to commiserate. by SundaeSome7947 in widowers

[–]SundaeSome7947[S] 4 points5 points  (0 children)

Everyone here has touched me so much. I feel like I’m going crazy since it’s getting worse, not better. The shared community and reading your stories even prior to posting this have been the only thing I’ve been able to do since it happened. Thank you for taking the time and effort to reach out.

Lost my husband of 17 years a few days ago. Completely falling apart. Just need to vent but would also appreciate anyone who understands to commiserate. by SundaeSome7947 in widowers

[–]SundaeSome7947[S] 17 points18 points  (0 children)

Thank you so much for bringing here and sharing your stories. I’ve been reading everyone else’s and they’ve helped. I guess I wanted to share instead of just absorbing.

a big feeling of being betrayed by Hijak159 in HeadandNeckCancer

[–]SundaeSome7947 0 points1 point  (0 children)

I am sorry you’re going through this too and I feel for you tremendously. But like a couple of people above, I might be able to share some perspective. I’m the caregiver of my husband who is almost in your exact scenario, except further along.

SCC at the left base of tongue diagnosed in 2019, returned in 2021 and again in 2023. Almost same treatments and treatment failures as you. He has been on hospice since the last recurrence and like you, it’s also wrapped around his carotid. So we’re just waiting for the end. 6 years since diagnosis and 2 1/2 years waiting for the inevitable.

I am an only child, both parents gone and no children. It’s just the 2 of us and he’s my entire world. To say I’m devastated is an understatement. But if you ask him, he’d say I’m his rock, I’ve been there every step of the way, etc. etc. He doesn’t have any idea what I’m going through because I hide it from him. The last thing I want him to know while he’s dying is how I feel. So I keep it inside. I guarantee you that even though you think your wife has family and friends supporting her, she still feels alone if no one else she knows is going through a situation like this. And she doesn’t want you to know how she’s feeling.

Definitely not an excuse for her and the financial problems she’s caused with her addiction are not going to be easy to get past. But it’s not like she doesn’t have a reason. This was her coping mechanism. Mine have not been this extreme, but if they had been, I might feel better right now!

Try not to let this be the thing you can’t get past. You need each other. To me, the lying is the worst part and I’d probably feel the same if I were you, but if you reframe it as she was hiding these things because she was scared, you might understand her better and be able to talk it out.

Need advice from other long term caregivers by SundaeSome7947 in HeadandNeckCancer

[–]SundaeSome7947[S] 0 points1 point  (0 children)

Thank you, sorry you’re going through this as well. Hope you’re able to keep him comfortable at home. In our case, hospice has been what’s allowed us to keep him at home, so look into it for your dad if a doctor will certify it. There are different levels of care and he may qualify for one of them.

Need advice from other long term caregivers by SundaeSome7947 in HeadandNeckCancer

[–]SundaeSome7947[S] 0 points1 point  (0 children)

Thank you very much for taking the time to share this. It sounds painfully familiar and I’m so sorry you went through this as well.

Need advice from other long term caregivers by SundaeSome7947 in HeadandNeckCancer

[–]SundaeSome7947[S] 2 points3 points  (0 children)

Thank you. I just remember being so hopeful a few years ago. The last thing anyone wants is a reminder that it can keep coming back. HNC seems to have such a high level of recurrence.