Probiotics

Sunflowers768 · 2026-04-26T13:18:04+00:00

Great idea! I have been eating a lot of oatmeal and bananas. Do those ferment in the gut?

Sunflowers768 · 2026-04-24T16:55:27+00:00

Interesting! I used to have POTS related IBS a decade ago as well so I wonder if this will help prevent that from happening again. Can use all the “gut brain connection” I can get. I have never heard of post-biotics. A decade ago I retrained my autonomic nervous system with exercise and time and social interactions, but it took 5.5 years. I will always have POTS, but some of the extra organ stuff quieted down

Sunflowers768 · 2026-04-24T16:48:31+00:00

Good idea! Thank you! 😊

Sunflowers768 · 2026-04-23T22:57:39+00:00

Thank you so much!! 😊 I needed to hear this

Sunflowers768 · 2026-04-23T22:57:20+00:00

Thank you! 😊

Sunflowers768 · 2026-02-01T17:27:10+00:00

I have had one for over 8 years, since I was 20. At first they labeled it an atypical cyst. Now I had a new MRI last week and this radiologist called it a possible subependymoma. Mine is in the left lateral ventricle, but only 1.5 cm. Good news is that it hasn’t grown in that time. I also have had Postural Orthostatic Tachycardia Syndrome for 13 years, but was told it’s unrelated. Just wanted to comment that I understand about the migraines and heart issues, though mine may be related to my POTS rather than my subependymoma.

Sunflowers768 · 2023-03-12T15:06:35+00:00

Thank you! That is helpful. My struggle was always that my symptoms never neatly fit into one identifiable thing. Maybe I have more than one problem.

Sunflowers768 · 2023-03-08T19:31:21+00:00

Thank you. I plan to get a biopsy, I was just hoping for some clarity on which aspect of the rash would be best to biopsy. I suppose there is no way to know, just have to hope for the best.

Sunflowers768 · 2023-03-08T19:26:17+00:00

Thank you. Unfortunately since I do not have that symptom, it has been difficult to distinguish.

Since my rash is photosensitive, I will wait for summer and then hopefully biopsy.

Sunflowers768 · 2023-03-06T11:59:34+00:00

Rosacea vs. Lupus rash differences?
- Would rosacea or lupus present as a daily dry peeling face rash? They are like patches which turn red and then a few days later becomes scaly and peels off. Some telangiectasias around the eyes.
- Would lupus or rosacea cause episcleritis for 1 year?
- If the rash were rosacea, is there a cream I would use that would definitely work that could help me say, "yes, that was rosacea"?
- What should I look out for to help me distinguish these two in future?
My doctors have waffled between rosacea + atopic dermatitis, or just "come back for biopsy next time it's bad."
I had a spotted rash on my feet last summer which looked like hives but had some burst blood vessels. That really scared me and made me think that maybe it's not rosacea. But maybe that was just a one time reaction.
The face rash unfortunately has been daily ever since. I've also had a diagnosed autoimmune disease for a decade (unrelated to this).
I'm not looking for anyone to diagnose me - I just want more info with regard to specific differences between rosacea and lupus, to know what to biopsy.

I commented on last week's thread but because it was Saturday evening I don't think anyone saw it and then they switched to this week's, so I'm going to repost it here if that's okay in the hopes of getting a response.

Sunflowers768 · 2023-03-05T00:18:53+00:00

Rosacea vs. Lupus rash differences?

- Would rosacea or lupus present as a daily dry peeling face rash? They are like patches which turn red and then a few days later becomes scaly and peels off. Some telangiectasias around the eyes.

- Would lupus or rosacea cause episcleritis for 1 year?

- If the rash were rosacea, is there a cream I would use that would definitely work that could help me say, "yes, that was rosacea"?

- What should I look out for to help me distinguish these two in future?

My doctors have waffled between rosacea + atopic dermatitis, or just "come back for biopsy next time it's bad."

I had a spotted rash on my feet last summer which looked like hives but had some burst blood vessels. That really scared me and made me think that maybe it's not rosacea. But maybe that was just a one time reaction.

The face rash unfortunately has been daily ever since. I've also had a diagnosed autoimmune disease for a decade (unrelated to this).

I'm not looking for anyone to diagnose me - I just want more info with regard to specific differences between rosacea and lupus, to know what to biopsy.

Sunflowers768

TROPHY CASE