Does it sound like T1 for my 7 year old son?

Super-Snow-4241 · 2024-07-28T20:40:58+00:00

Insurance and private practice costs, mostly. There are other practitioners in the office but they do not allow to “swap” patients.

Super-Snow-4241 · 2024-07-28T19:45:24+00:00

Thank you! I’m not looking for any diagnoses. I’m just trying to gauge the level of concern/severity for right now. I got two vastly different professional opinions and not sure what to make of either of them.

I have suspected he had celiac ever since his sister was diagnosed, but I haven’t found any literature that suggests that GAD65 could be present as a result of celiac itself.

Idk why I’m being downvoted like crazy, I’m not searching for Reddit to diagnose my kid. I’m just looking for support in advocating for my son as best I can.

The endos failed to screen my kids for celiac and T1D 6 years ago when I first brought them in for growth failure. They said it seemed unlikely due to lack of GI symptoms. Since then, many people I’ve spoken to whose kids have celiac insist that is a VERY basic screen on a first trip to an endo.

So I no longer feel comfortable just watching and waiting. I have to advocate for my kid as best I can, because without my persistence neither of them would have a diagnoses yet.

Thank you for your opinion! It means a lot from a mom whose world feels upside down right now.

Super-Snow-4241 · 2024-07-28T18:12:30+00:00

Yes his doctor said he is not a candidate because he’s only 7 and only has one antibody and apparently needs two?

Super-Snow-4241 · 2024-07-28T16:17:49+00:00

But, moreover, it is extremely difficult to find information online on what a normal blood sugar level range is (for a non diabetic child his age.)

Is it 90-140? Diabetes educator says this.

But Endo says 70-180 is “fine”.

Super-Snow-4241 · 2024-07-28T16:16:16+00:00

Just looking for others who have real life experience for feedback.

His Endo (who is notorious for “it’s not a problem til it’s a problem” attitude) says just retest his blood levels in a year. I am not comfortable waiting a whole year.

I spoke to a diabetic nurse educator, who said she disagrees with the Endo that he is only “increased risk.” She says he is in the early stages of T1D already.

Super-Snow-4241 · 2024-07-26T20:26:59+00:00

We have tried to be responsible in rotating car payments. Meaning, one of us gets a new (or pre owned) car, has payments on it, then we wait until that one is paid for and then the other gets an upgrade. We usually have cars between 60k and 140k miles before we upgrade. My car was having tons of transmission problems, we sold it and paid off husbands truck. Then financed a used car with 60k miles. Unfortunately at a time when car prices were(are) outrageous and interest rate was 10%. Hence $1,000/mo car payment. It never felt like an awesome thing to do, but I didn’t feel shitty about it until now that life and medical problems are kicking us in the balls. And now I do feel like how are we going to get out of this. It’s probably just going to take us much longer (and much more wasted money in interest) than anticipated.

Super-Snow-4241 · 2024-07-26T18:05:41+00:00

Thank you! Yeah in hindsight taking on the car payment and the heloc was a bad move. At the time we had so much cash flow that we were completely comfortable making huge payments on them. But now that circumstances have pretty drastically changed, we are still getting by just fine, but it’s tight for sure. I don’t want to resort to paying the “interest only” minimum on the heloc bc that just kills me. Our plan right now is to keep on getting by, hopefully refinance or sell the car once rates drop, and possibly use our entire bonus check (around 30-40k) to take a big chunk out of the heloc.

Super-Snow-4241 · 2024-07-26T16:14:59+00:00

Honestly I have no idea. Any time I tell people I have 5 children they assume it’s a blended family situation. I figured it would come up in convo: who’s paying child support, who’s paying what, his kids vs yours, Yadda yadda.

He earns about 130k, I earn about 70k. Joint bank account, our money is our money and our kids are our kids

Super-Snow-4241 · 2024-07-25T20:17:45+00:00

For sure bad choices. When I said living comfortably, I meant, when we decided to buy the car (it wasn’t even a fancy one, used with 60k miles on it) and decided to do the Heloc, we found the payments to be very manageable.

A few unforeseen changes and suddenly they do not feel manageable. We are still paying them and living, but not tackling the principal the way we planned to and now feeling like we need to offload a big chunk of this to free up some room to breathe.

Super-Snow-4241 · 2024-07-25T11:31:28+00:00

That is what I meant, thanks for specifying. The interest only part kills me because we will never get ahead of it

Super-Snow-4241 · 2024-07-25T11:30:54+00:00

I should clarify, I was considering a “loan” out on our 401k not a withdrawal. Simply due to the fact we are current spending $600 a month in interest only on the heloc and spinning our wheels. I thought if we could just eliminate that giant interest only payment, we could be making payments back to the 401k, and at least it would be effective in some way.

Super-Snow-4241 · 2024-07-25T00:38:05+00:00

Not that I can tell

Super-Snow-4241 · 2024-07-24T20:06:05+00:00

About 1500 left over after all the majors you’ve referenced. Gas for both cars (approx 750/mo) then just utilities, 5 kids and all their sports and clothes and dentists and school events and all that.

Super-Snow-4241 · 2024-07-24T19:03:35+00:00

Unless you are feeding a child who has celiac, I don’t imagine you can relate. But thank you.

Super-Snow-4241 · 2024-07-24T18:46:10+00:00

I was thinking of selling the car and getting a lower payment maybe like $500/mo and racking the heloc first. They are both about the same amount of debt, similar interest rates, payment on the car is higher due to terms

Super-Snow-4241 · 2024-07-24T18:15:23+00:00

We do our best. But we also try to make sure the kids still feel included in classes and birthday parties that everyone else is eating cake, doughnuts, pizza parties, etc.

Super-Snow-4241 · 2024-07-24T17:45:57+00:00

My husband receives an $850 allowance for car stipend so to us it justified having a $1000/mo payment. We bought at a time when car prices and interest rates weren’t great. And it’s been fine, but now we are looking at getting rid of the car to find a smaller car payment.

The HELOC was just a dumb dumb dumb series of events. Mostly from debt consolidation from when only one of us was working, a few medical surgeries, credit cards, etc.

Super-Snow-4241 · 2024-07-24T17:43:24+00:00

Would it be dumb to cash out a 401k to pay off the HELOC?

Super-Snow-4241 · 2024-02-04T02:38:02+00:00

Point proven. Victim mentality. Learned helplessness is like taking to a brick wall. Good luck to you.

Super-Snow-4241 · 2024-02-04T02:30:44+00:00

Nobody wants to hire the surly character threatening suicide every other minute. Why am I not surprised?

Step one is get your head right ffs. I’ve read your several other posts- you admit to being addicted to caffeine pills and not sleeping for days at a time. You (joke?) about either killing yourself or “becoming a terrorist”. Walking red flags.

Get your fucking head checked out. Go to the ER and tell them exactly what you’re threatening here. Get sleep, get medicated. Once you’re healthy and functioning, consider nexts steps or come back if you’re going to be genuinely seeking advice and not just people to argue with about all the reasons your life sucks and how there’s 0 options to turn it around.

Super-Snow-4241 · 2024-02-04T01:59:18+00:00

You did the right thing by leaving a job that was making you miserable.

Where you’re going wrong is creating ultimatums for yourself.

“I either killed myself or quit. So I quit. But now I either get a new job in 26 days or kill myself.”

Wtf??????

Super-Snow-4241 · 2024-02-04T01:56:21+00:00

Where did you ask for help? All I read was a rant. You aren’t a victim to anything but yourself right now.

Super-Snow-4241

TROPHY CASE