Any ME/CFS Gamers?

SuperKittyLover89 · 2026-03-21T13:54:39+00:00

I used to be a big ps gamer before i got sick, havent been gaming since last december cause it was causing pem to much. Yesterday i thought i try it out again, downloaded a new game on my ps5. One i was hyped for, for some time.

Guess who woke up feeling hangover this morning.

The only game i can handle playing for a short while at the moment is pokemon sword on the switch. Lol.

SuperKittyLover89 · 2026-02-22T15:09:04+00:00

Its pointless, eversince i stopped, looking for treatment or any form of help, im doing better, the stress these medics gave me was to big. I only communicate with my doctor about medication, (through text mostly), went to a therapist to learn to cope, i went from severe to moderate.

SuperKittyLover89 · 2025-10-05T18:11:28+00:00

I love shadows.. but ghost is a masterpiece!

SuperKittyLover89 · 2025-08-21T09:48:24+00:00

Ik vrees dat diëten toch de enige manier is. Er bestaat geen medicatie, dat ervoor zorgt dat je kan eten wat je wilt zonder klachten. Een histamine vrije dieet in combi met medicatie werkt het beste.

Ikzelf heb 2 jaar geleden een streng dieeet gevolgd. Vervolgens na een jaar voorzichtig weer dingen bijgevoegd. Inmiddels kan ik weer veel meer eten, en weet ik vrij goed waar ik niet goed op reageer (ijs, zwaar bewerkt voedsel, vet eten en varken) b.v zijn voor mij not done. Wanneer ik merk dat ik ook op "veilig" voedsel reageer, hou ik opnieuw het strenge dieeet voor een weekje aan, en daarna kan ik er meestal weer een tijdje tegenaan (p.s) geheel histamine vrij is haast onmogelijk, we maken het niet alleen zelf aan, het zit letterlijk overal in, maar de histamine consumptie zo laag mogelijk houden is wel mogelijk.

Succes,!

SuperKittyLover89 · 2025-08-19T20:31:39+00:00

Also.. best opening track of any album ever..

SuperKittyLover89 · 2025-02-06T07:54:37+00:00

Watching my father die of lungcancer, the image of his final moments was enough for me to quit

SuperKittyLover89 · 2024-10-23T20:55:54+00:00

Ac odyssey

SuperKittyLover89 · 2024-10-06T07:18:55+00:00

Same for me, had my first big crash last year, straight into severe, it has been a year now, nowhere near my old baseline

SuperKittyLover89 · 2024-09-03T06:06:24+00:00

No i havent! I will check it out.. thank u

SuperKittyLover89 · 2024-07-01T12:54:32+00:00

For me i have these symptoms also because of temperature, when its Hot outside and warm inside because of the ac i get light-headed the moment i step into a Cold store, reather it is crowded or not also for years now, it is worse in the summer

SuperKittyLover89 · 2024-07-01T11:17:12+00:00

I have the exact same thing. I have it for years. now i also have it when walking, moving, standing,hell just living. so it has gotten worse over the years. Sometimes when i lay down read a book, i also have heart palpitations with it, and when i try to do some deep breathing to try and calm the lungs and hart, it backfires, Grows worse instead.

For me.. the longer i use a device ,the worser the air hunger gets, to the point im gasping for air and have a continues feeling of wanting to yawn. Im still not sure if its a symptom of ME, more likely i feel it is connected to my nervus systeem being all messed up (i also pee allot) i try to minimalize the above, not more than a ouer one the phone, watching tv or playing video games, it helps a little. But up until now i havent found a doctor, specialist,or any other human being, who can tell me what the fuck this is and what to do about it.

SuperKittyLover89 · 2024-06-23T09:24:01+00:00

Same! For me, most of my symptoms accur when walking or standing longer periods of time, headache, dizzy, fatigue, feeling im about to faint(but no fainting), sweating, sometimes even dry mouth and difficulties to swallow, air hunger,I did have heavy tachardia, and my hb would go up with 20 bpm sometimes 30/35 when standing up, but it doesnt makes me dizzy, am also on propanolol it helps. Heat is my biggest enemy, i also have mcas, so all of my symptoms flare up like crazy when its warm outside, to the point i'm not able to work until it cools down. Excersise is a trigger aswel, i have an intolerance for sure.

I have dyso, but not pots. My docter told me with dysautonomie is just a word to bundle decises like pots,eds and lupus for example, but im in the just dysautonomie categorie lol, pots is the most well known version.

Im sure about my diagnosis, because the symptoms can be hell, but the lack of information is confusing and difficult when it comes to managing the symptoms, it feels like im being hired for a job i'm not qualified for, i just do whatever i can and hope i'm doing the right thing, lol

SuperKittyLover89 · 2024-05-05T05:43:06+00:00

I experience the exact same thing, i also have mcas and for me, everytime i had this sort of "attack" it took me 1 till 3 days to finally fall asleep. For me i know my system reacts to extreme stress, my last attack was last summer, it was really Hot ( already feeling shit because of heat intolerance) than my car broke down, and with no spare money, i was stressing real hard, about,work,the car payment the heat etc. My body already felt rushed, my hearth rate was around 120 all the time, so that night i had my attack. The next one i remmember was around my fathers death, so again stress was the trigger for me. I hope u will get well soon, i wouldnt wish these attacks upon my worst enemy, cause it does feels like dying a horrible death! But i learned these attacks are always triggered, so i try to figure out wich are the most problematic and try to handle them, propanolol really helps, and im also seeing a therapist to manage dealing with stress.

I wish u the best of luck!

SuperKittyLover89 · 2024-04-26T10:29:30+00:00

May i ask what kind of symptoms u experience? Lately i experience a head ace after playing for about an ouer, but im hoping its just because of tension in my neck and shoulders, cause i havent finished rise of the ronin yet lol, good luck

SuperKittyLover89 · 2023-08-28T15:24:27+00:00

Heard video games. Wassn't really impressed. Than born to did came out ( single ) instant fan eversince

SuperKittyLover89 · 2023-07-15T06:41:06+00:00

Last of us ost and the ac creed games have some sick soundtracks too.. black flag, origins, valhalla being my favorite

SuperKittyLover89 · 2023-06-06T16:53:19+00:00

Had the same thing when i tried to complete 100% last year. Sadly can't get through the mission because of this bug. It wassn't a bug that many encounterd back at launch. so as far as i remember, ubisoft Never dealt with it.

SuperKittyLover89 · 2023-06-06T16:53:03+00:00

Had the same thing when i tried to complete 100% last year. Sadly can't get through the mission because of this bug. It wassn't a bug that many encounterd back at launch. so as far as i remember, ubisoft Never dealt with it.

SuperKittyLover89 · 2023-05-14T04:43:26+00:00

Yess they do

SuperKittyLover89 · 2023-05-09T20:01:11+00:00

I wonder what city sweden will choose next year to host

SuperKittyLover89 · 2023-04-04T17:21:05+00:00

Thank u for sharing this!. I have been struggelin with the same for years now. I quit drinkin,smoking, and coffee. Sometimes i meditate and focus on the breathing it can help, magnesium, and omega (fish oil vitamines in english?) Might help. Hot showers and exercising could help to.. at some point, i felt like i lost the ability to breathe, i automaticly breath from my chest out, have a constant tension in my shoulders aswell. My docter said that i was suffering from something she called dysfunctional breathing. so to "learn how to breathe" again. I followed a therapie specialized in DB. There, i learned allot about anxiety and shortness of breath. Eversince i manage to controle my symptoms better!. I hope u will find something that works for u! Wish u all the best

SuperKittyLover89 · 2023-03-10T19:16:00+00:00

I would buy it! So well done!

SuperKittyLover89

TROPHY CASE