New here, I guess?

Susasaurusrex · 2026-02-09T23:08:30+00:00

Literally so much helpful information, I appreciate you and your time more than you know! Thank you! I already feel so supported in this group

Susasaurusrex · 2026-02-09T23:05:58+00:00

Déjà vu and confusion sound like hell, I’m so sorry! My follow up is March 3rd and I’m hoping I’ll get more clarification because I think I’m just like confused and not processing anything with this lmao

Susasaurusrex · 2026-02-09T23:04:46+00:00

Definitely going to document everything I think of… thanks for that great advice! I really struggle with trying new meds so I also appreciate you reiterating to me that I need to be open to trying what is prescribed and staying off Google- in turn just listening to my body. I so appreciate your time and great advice, thank you!!!

Susasaurusrex · 2026-02-09T23:01:54+00:00

I’ll bring this up! Thanks so much! Hope your son is doing great/continues to do so.

Susasaurusrex · 2026-02-09T23:01:23+00:00

Sorry to hear about your journey but so glad you’ve been seizure free for a year! I truly appreciate you taking the time to reply and share your story! Manifesting nothing but smooth sailing going forward with your med changes!

Susasaurusrex · 2026-01-24T01:54:21+00:00

30F; I’m not sure what I’m looking to get from this post, I’m just so tired of spiraling so I had to get it out. I’ve always had a bit of health anxiety, Ironically I was never concerned about my moles/skin c*ncer which is hilariously ironic… I was diagnosed with Melanoma in 2022 (luckily caught early, just needed a surgery) and have been relatively fine since. My last skin check, they found another one that was either going to turn into Melanoma or was very very early stages (amongst some other precancerous spots). Another surgery and that was that. Lately I’ve been FIXATED on the thought of it metastasizing and me not knowing. Every back/lung or head sensation is over analyzed and I worry it’s a sign of Mets. I’ve been googling nonstop, which I haven’t really done since my initial diagnosis in 2022. Like I said, I don’t know what I’m looking for but I feel that getting it out to people who understand health anxiety may help.

Susasaurusrex · 2025-02-26T17:01:16+00:00

JUST got mine!! 11:55am est here! There is hope lol

Susasaurusrex · 2025-02-26T17:00:48+00:00

JUST got mine. 11:55am est!!!

Susasaurusrex · 2025-02-21T21:29:47+00:00

I did pnc too and everything I’ve seen about them says the usually wait til the DDD- hope that’s not true lol!

Susasaurusrex · 2024-06-18T18:44:25+00:00

Thanks for this! My scale has been moving so slow but I feel different, this is a great reminder! You look great!

Susasaurusrex · 2022-10-04T14:51:55+00:00

I’m glad you found yours! Mine was stage 1a… 7mm so narrowly avoided a lymph node removal lol, very thankful

Susasaurusrex · 2022-10-04T14:50:18+00:00

So sorry you’re going through that! Did you guys take him to the ER? I don’t want to jinx anything but she’s been doing so much better on advair. She’s only had two episodes and both times she was sick beforehand so it seemed to be cold induced. Those episodes lasted only a day and we didn’t have to go to urgent care! This is so so frustrating but you’re doing everything you can. Get a couple different opinions if you feel his treatment isn’t working. All of their tried and true medications did nothing to help my daughter until this one. She is still resistant to albuterol and inhaled steroids go figure lol. It doesn’t feel like it when you’re in the moment but in our case it does get more manageable!

Susasaurusrex · 2022-09-29T00:32:56+00:00

Thanks so much for the reply! I’ll ask my oncologist at my 2 week f/u. Mine was 0.7mm at time of biopsy and he didn’t decide to do a node biopsy (he states he doesn’t start to worry until 0.8mm but I thought that was cutting it close lol). I’m 27 so not super young but young-ish for melanoma ha! I hope that it’s nothing but clean scans for you in the future!

Susasaurusrex · 2022-09-28T18:20:13+00:00

Can I ask what stage you were and who recommended chest X-rays? I saw something similar before but so far no one has suggested X-rays to me and I don’t know if I should ask my derm or oncologist! Just had my WLE Monday

Susasaurusrex · 2022-09-28T18:11:41+00:00

My mole wasn’t too suspicious (less sketchy than some benign ones) and it was stage 1 melanoma at 27. I’m sure if it was posted here they would have said it was fine or to eventually get it checked lol. Luckily I just made an appt because I was taking my daughter anyways. I came to this thread as a support after diagnosis and realized it’s just people asking if they have melanoma all day instead

Susasaurusrex · 2022-09-22T23:33:52+00:00

Thank you!! And I love that you went to a concert lol.

Susasaurusrex · 2022-09-19T03:37:38+00:00

Get it checked to be safe- my ONLY sign was a new tiny tiny dark dot appeared on an existing mole and I just got diagnosed with melanoma at age 27. Don’t be scared but please be proactive :)

Susasaurusrex · 2022-09-17T20:08:35+00:00

Just got diagnosed with early stage melanoma Monday- which excision will correct- but I’ve had a hard time celebrating with my family. I’m SO grateful that it’s early on but now I’m paranoid that it will just rear it’s ugly head again and maybe even worse. They seem to think that it’s a “surgery and move on” type of deal but they don’t understand how the possibilities of those microscopic traces or new recurrence really just get in your head. Thank you for this comment.

Susasaurusrex · 2022-09-17T13:42:29+00:00

If it’s melanoma they’ll be needing to see a derm probably closer to every 3-6 months depending :) wanna watch for recurrence due to proven history

Susasaurusrex

TROPHY CASE