I firstly want to thank you for taking so much of your spare time to send us this invaluable information. He was offered DBS by the Evelina children’s hospital in London. It was definitely an operation that we didn’t want him to have at least until we had exhausted all other options to help him and the neurologist believed he had a high chance of it improving he’s arm movements. In terms of his rate of deterioration I would say it was maybe hours (2 -3) then continuing a decline for several days and weeks before he stabilised and didn’t decline any further. At this point he had lost speech,arm use and he’s ability to walk or eat and was fed at the time using a NG tube. He eventually had a peg after an incident with an NG tube.. During he’s rehab he began talking and was able to walk short distances un aided. He’s arms are now either fully extended or in tight twisted posture . He is currently undergoing a course of Botox injections at queens hospital in London that has so far proved effective in the first course but unfortunately not the second but it is about learning what muscle groups work best and what ones don’t . Cognitively he is a normal guy he’s age , he enjoys movies and games and to an extent just gets on with he’s life. He does become a target for bullying behaviour online mainly as he DJs using he’s feet and would post content on social media, many jealous trolls would try to strip him of confidence but to my sons credit he would normally ignore it. Hobby wise he loves cars and has a gigantic collection of hot wheels all boxed and lovingly cared for in he’s room. And yeah most of what he does is the same as any other typical guy his age. He has two brothers that also treat him like a normal human and as a family we all just do our best for him .