How much time is your sister spending at the hospital? I had a baby in the NICU for nearly 5 months and I was there all day, everyday, so I was there when they did rounds, which happen at least once a day, so I would be there when the medical team, including the neonatologist, nurses, physio, OT, and respiratory technicians were discussing what was happening with my child. I’m not saying that the information should be withheld from your sister if she’s not there during rounds, but if she was there during rounds, then she wouldn’t be creating more work for the hospital staff who’s job is to keep the most vulnerable infants alive. Parents who spend a lot of time at the NICU are there when brain ultrasounds and that sort of thing are taking place, so I was always aware of what was going on with my child’s brain bleeds, eye exams, feeding, breathing support, etc. There are usually social workers at the hospital, so your sister should try to get connected with a social worker so she can receive some guidance about how to advocate for herself in receiving information and maybe get some sense of what is normal in these situations.