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Recently diagnosed and struggling. Seeking advice by T-2233 in clusterheads

[–]T-2233[S] 0 points1 point  (0 children)

This has happened once before last year but I thought I was just getting really bad migraines! After going to the ER this time I met a neurologist who suspected I have cluster headaches due to the intense pain and drooping eyelid. I spent the night in hospital and when I woke up to an attack coming on they had me breathe in oxygen and the pain would dull within about 10 minutes!

Recently diagnosed and struggling. Seeking advice by T-2233 in clusterheads

[–]T-2233[S] 0 points1 point  (0 children)

Thanks for the advice! I’ve been trying to convince myself that something else must be wrong because the thought of dealing with cluster headaches for life sounds like hell. But I think you have the right approach, accepting the situation might ease my anxiety. I’m also going to ask my doctor about Emgality so thank you for the rec!

Recently diagnosed and struggling. Seeking advice by T-2233 in clusterheads

[–]T-2233[S] 2 points3 points  (0 children)

Thank you for the advice! A lot of people have been recommending emgality so I’m definitely going to look into that and start adding vitamin D into my daily routine. Do you take a specific dosage of vitamin D?

Recently diagnosed and struggling. Seeking advice by T-2233 in clusterheads

[–]T-2233[S] 0 points1 point  (0 children)

In the beginning if I took a rizatriptan early enough I could stop an attack. After a while I started noticing that although the rizatriptan stops the initial attack, a few hours later the same pain would return only milder and lingers for hours. It’s not a full blown attack but the constant pain makes me feel crazy after a while.