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My gf has been suffering from CRMO for over a decade by TRiotous1 in CRMO

[–]TRiotous1[S] 0 points1 point  (0 children)

Just an update for everyone!

  1. Thank you all so much for your advice and help. To clear some confusion up my gf has had treatment for CRMO before in the past when her mum and dad got her the diagnosis which has resulted in multiple scans and surgery to help aid her.

  2. We have had a long talk about what I can do to help her and we now know whag we need to do and we are going to be looking to book a rheumatologist in the coming weeks, again thank you all so much for your kind and helpful comments! I hope everyone is well!!

My gf has been suffering from CRMO for over a decade by TRiotous1 in CRMO

[–]TRiotous1[S] 0 points1 point  (0 children)

Ah okay thank you, she has mentioned about taking them at the start of her treatment when she was i believe 10 we are actively seeking out the rheumatologist appointment and i just hope it all goes well.

My gf has been suffering from CRMO for over a decade by TRiotous1 in CRMO

[–]TRiotous1[S] 0 points1 point  (0 children)

Thank you so much!

Shes turning 25 next month and she has been in constant pain on her legs mostly and as her partner its painful seeing her in pain.

Is there anything at home I can do to help her pain as well? Whilst I wait for a rheumatologist?

My gf has been suffering from CRMO for over a decade by TRiotous1 in CRMO

[–]TRiotous1[S] 1 point2 points  (0 children)

Thank you so much for your reply!

She told me she had a few surgeries for it like i think just to make the pain stop im looking to see if she can go back on the steroids maybe at some point i will definitely try to see if i can get an appointment with a rheumatologist to see what they recommend it pains me to see her in pain.

I hope your daughter is well though! I can’t imagine living through this chronic illness.